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NCT06346106 · ClinicalTrials.gov registry record
The Diagnostic Experience of Male Rett Syndrome
A clinical trial of Rett Syndrome and RTT, sponsored by Children's Hospital Colorado.
- Recruiting
- Registry status
- 80
- Enrollment target
- 1
- Study location
NCT06346106: Recruiting study of Rett Syndrome and RTT, sponsored by Children's Hospital Colorado.
NCT06346106 is a study of Rett Syndrome and RTT that is actively recruiting participants, run by Children's Hospital Colorado. The registered enrollment target is 80 participants, below the 521-participant average among 18 other Rett Syndrome trials with a reported enrollment target (85% lower). The trial reports 1 study location across 1 state. According to ClinicalTrials.gov, the official US trial registry.
The verdict
NCT06346106, a study of Rett Syndrome and RTT, is actively recruiting participants, sponsored by Children's Hospital Colorado.
- RECRUITING
- Registry status
- 80 participants
- Enrollment target
- 1
- Study location
Study Summary
The Diagnostic Experience of Male Rett Syndrome collects information on the lived experiences of parents or caregivers to boys with Rett Syndrome. Key information examined includes the process of getting a male Rett syndrome diagnosis, your son's systems of care, and your priorities for his health needs. Enrolled participants will complete an online survey with questions about having a son with Rett Syndrome. The Diagnostic Experience of Male Rett Syndrome study is available to parents or caregivers to boys (alive or passed) with Rett Syndrome. Compensation is not provided.
Conditions Studied
Interventions
- GENETIC Male Rett
Study Locations (1)
Colorado
- University of Colorado Anschutz Medical Campus - Aurora
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 80 participants |
| Start Date | 2023-05-24 |
| Est. Completion | 2024-04-30 |
What NCT06346106 shows while recruiting
NCT06346106 is an observational study that tracks outcomes without assigning an intervention. The registry caps enrollment at 80 participants, a relatively small participant target, below the 521-participant average among 18 other Rett Syndrome trials with a reported enrollment target (85% lower).
The record links to 2 conditions, with Rett Syndrome appearing as the primary indexed condition, and to 1 intervention - of which Male Rett is the first listed.
NCT06346106 reports a single indexed study location in Colorado.
Frequently Asked Questions
What is clinical trial NCT06346106 about?
NCT06346106 is a clinical study titled "The Diagnostic Experience of Male Rett Syndrome". The Diagnostic Experience of Male Rett Syndrome collects information on the lived experiences of parents or caregivers to boys with Rett Syndrome. Key information examined includes the process of getting a male Rett syndrome diagnosis, your son's systems of care, and your priorities for his health n...
What is the current status of trial NCT06346106?
This trial is currently recruiting. The enrollment target is 80 participants. The study started on 2023-05-24. Estimated completion is 2024-04-30.
What conditions does trial NCT06346106 study?
This clinical trial studies the following conditions: Rett Syndrome, RTT.
What interventions are being tested in trial NCT06346106?
The interventions under investigation include: Male Rett (GENETIC).
Who is sponsoring clinical trial NCT06346106?
This trial is sponsored by Children's Hospital Colorado, which has 7 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT06346106 being conducted?
This trial has 1 study location across Colorado. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
Learn More About Clinical Trials
Similar trials for Rett Syndrome
Matched on the same primary condition, ranked to surface studies in the same phase first, then by recruiting status, no relevance scoring or editorial curation.
Where NCT06346106's enrollment target sits among peer trials
80 8th of 18 higher than 11 of 18 other Rett Syndrome trials
participants (enrollment target), bucketed by value
Each bar is a band; taller bars hold more other Rett Syndrome trials. The dashed line + filled bar mark this entry. Hover or tap any bar for its full count and share, and where it sits relative to this entry.
Source ClinicalTrials.gov registry export · 2026-08-08
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Web Intervention for Parents of Youth With Genetic Syndromes (WINGS)
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Measuring Impact of Computer Gaming on Arm Use in Rett Syndrome
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-
The Rett Syndrome Global Registry
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