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NCT06139172 · ClinicalTrials.gov registry record · NA
Web Intervention for Parents of Youth With Genetic Syndromes (WINGS)
A NA study of Rett Syndrome and Fragile X Syndrome, sponsored by Rush University Medical Center.
- Recruiting
- Registry status
- NA
- Development phase
- 92
- Enrollment target
- 1
- Study location
NCT06139172 is a NA study of Rett Syndrome and Fragile X Syndrome that is actively recruiting participants, run by Rush University Medical Center. The registered enrollment target is 92 participants, below the 521-participant average among 18 other Rett Syndrome trials with a reported enrollment target (82% lower). The trial reports 1 study location across 1 state.
The verdict
NCT06139172, a NA study of Rett Syndrome and Fragile X Syndrome, is actively recruiting participants, sponsored by Rush University Medical Center.
- RECRUITING
- Registry status
- NA
- Development phase
- 92 participants
- Enrollment target
- 1
- Study location
Study Summary
The purpose of this study is to evaluate the effectiveness of an adapted, telehealth functional behavioral therapy (FBTsIDD) specifically focused on promoting appropriate communication and behavioral strategies in individuals with syndromic intellectual and developmental disorders. Participants will be asked to complete virtual study assessments at intake and then on a monthly basis for the duration of 3-6 months. In addition, participants will attend weekly or biweekly virtual intervention visits with a study therapist.
Conditions Studied
Interventions
- BEHAVIORAL Functional Behavioral Training (FBT)
- OTHER Positive Parenting Strategies-Treatment as Usual
Study Locations (1)
Illinois
- Autism Assessment Research Treatment and Services (AARTS) Center at Rush University Medical Center - Chicago
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 92 participants |
| Start Date | 2023-09-15 |
| Est. Completion | 2026-12 |
| Phase | NA |
Interested in This Trial?
Full Details on ClinicalTrials.gov ↗What the Registry Record Tells You About NCT06139172
The ClinicalTrials.gov registry entry for NCT06139172 describes a study currently listed as recruiting, categorized as NA. The registered enrollment target is 92 participants, a figure that helps gauge the scale of data the investigators plan to collect, below the 521-participant average among 18 other Rett Syndrome trials with a reported enrollment target (82% lower). The listed sponsor is Rush University Medical Center, which has 320 total studies on file at ClinicalTrials.gov.
The record links to 8 conditions, with Rett Syndrome appearing as the primary indexed condition, and to 2 interventions - of which Functional Behavioral Training (FBT) is the first listed.
NCT06139172 reports 1 study location spanning 1 distinct geographic area - top geographies include Illinois.
Frequently Asked Questions
What is clinical trial NCT06139172 about?
NCT06139172 is a clinical study titled "Web Intervention for Parents of Youth With Genetic Syndromes (WINGS)". The purpose of this study is to evaluate the effectiveness of an adapted, telehealth functional behavioral therapy (FBTsIDD) specifically focused on promoting appropriate communication and behavioral strategies in individuals with syndromic intellectual and developmental disorders. Participants wil...
What is the current status of trial NCT06139172?
This trial is currently recruiting. It is a NA study. The enrollment target is 92 participants. The study started on 2023-09-15. Estimated completion is 2026-12.
What conditions does trial NCT06139172 study?
This clinical trial studies the following conditions: Rett Syndrome, Fragile X Syndrome, Angelman Syndrome, Tuberous Sclerosis, Telomeric 22Q13 Monosomy Syndrome.
What interventions are being tested in trial NCT06139172?
The interventions under investigation include: Functional Behavioral Training (FBT) (BEHAVIORAL), Positive Parenting Strategies-Treatment as Usual (OTHER).
Who is sponsoring clinical trial NCT06139172?
This trial is sponsored by Rush University Medical Center, which has 320 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT06139172 being conducted?
This trial has 1 study location across Illinois. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
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Read our methodology - how this data is sourced, computed, and verified.
Related
Every figure on PlainTrial is rendered directly from the ClinicalTrials.gov registry, no number is typed in by an editor. This page mirrors this trial's own ClinicalTrials.gov registry record, live from the dataset. See our editorial standards & corrections policy, the methodology behind these numbers, or report a data error.