Medical Information Only. Always consult your healthcare provider before enrolling in any clinical trial.
NCT04900493 · ClinicalTrials.gov registry record
The Rett Syndrome Global Registry
A clinical trial of Rett Syndrome, sponsored by Rett Syndrome Research Trust.
- Recruiting
- Registry status
- 5,000
- Enrollment target
- 1
- Study location
NCT04900493: Recruiting study of Rett Syndrome, sponsored by Rett Syndrome Research Trust.
NCT04900493 is a study of Rett Syndrome that is actively recruiting participants, run by Rett Syndrome Research Trust. The registered enrollment target is 5,000 participants, above the 248-participant average among 18 other Rett Syndrome trials with a reported enrollment target (1916% higher). The trial reports 1 study location across 1 state. According to ClinicalTrials.gov, the official US trial registry.
The verdict
NCT04900493, a study of Rett Syndrome, is actively recruiting participants, sponsored by Rett Syndrome Research Trust.
- RECRUITING
- Registry status
- 5,000 participants
- Enrollment target
- 1
- Study location
Study Summary
The Rett Global Registry is a fully remote, global, caregiver-reported registry to collect information about caring for a loved one with Rett syndrome. In addition, caregivers have the ability to track and graph their loved one's symptoms and care strategies over time, store information for central access, and opt-in to complete medical record consolidation and summary. Qualified researchers and therapeutic developers may request access to de-identified aggregate information to further Rett research, or assist with clinical development planning to facilitate and expedite more effective clinical trials.
Primary Outcome
Measured by data obtained from genetic reports and caregiver-reported clinical diagnoses of enrolled patients.
Conditions Studied
Study Locations (1)
Connecticut
- Rett Syndrome Research Trust - Trumbull
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 5,000 participants |
| Start Date | 2022-01-31 |
| Est. Completion | 2031-06-30 |
What NCT04900493 shows while recruiting
NCT04900493 is an observational study that tracks outcomes without assigning an intervention. Its 5,000 participants enrollment target places it among the larger protocols in the corpus, above the 248-participant average among 18 other Rett Syndrome trials with a reported enrollment target (1916% higher).
The record links to 1 condition, with Rett Syndrome appearing as the primary indexed condition, and to 0 interventions.
NCT04900493 reports a single indexed study location in Connecticut.
Frequently Asked Questions
What is clinical trial NCT04900493 about?
NCT04900493 is a clinical study titled "The Rett Syndrome Global Registry". The Rett Global Registry is a fully remote, global, caregiver-reported registry to collect information about caring for a loved one with Rett syndrome. In addition, caregivers have the ability to track and graph their loved one's symptoms and care strategies over time, store information for central ...
What is the current status of trial NCT04900493?
This trial is currently recruiting. The enrollment target is 5,000 participants. The study started on 2022-01-31. Estimated completion is 2031-06-30.
What conditions does trial NCT04900493 study?
This clinical trial studies the following conditions: Rett Syndrome.
Who is sponsoring clinical trial NCT04900493?
This trial is sponsored by Rett Syndrome Research Trust, which has 5 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT04900493 being conducted?
This trial has 1 study location across Connecticut. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
Learn More About Clinical Trials
Similar trials for Rett Syndrome
Matched on the same primary condition, ranked to surface studies in the same phase first, then by recruiting status, no relevance scoring or editorial curation.
Where NCT04900493's enrollment target sits among peer trials
5,000 1st of 18 higher than 18 of 18 other Rett Syndrome trials
participants (enrollment target), bucketed by value
Each bar is a band; taller bars hold more other Rett Syndrome trials. The dashed line + filled bar mark this entry. Hover or tap any bar for its full count and share, and where it sits relative to this entry.
Source ClinicalTrials.gov registry export · 2026-08-08
-
Rett Syndrome Registry
RECRUITING
-
Cognitive Function in Rett Syndrome During Trofinetide Treatment
RECRUITING
-
Validating Innovative Biosensors for Rett Autonomic Symptom Tracking
RECRUITING
-
Web Intervention for Parents of Youth With Genetic Syndromes (WINGS)
RECRUITING · NA
-
Measuring Impact of Computer Gaming on Arm Use in Rett Syndrome
RECRUITING · NA
-
To Investigate the Efficacy of Treatment With Oral NA-921 (Bionetide) Versus Placebo in Females With Rett Syndrome
RECRUITING · Phase 3
Nationwide trials with similar profiles
Cross-condition peers matched on enrollment target and registry start date, not the same-condition list above.
Similar enrollment target
- NCT00060541 · 5,000 participants
Evaluation and Treatment of Neurosurgical Disorders
- NCT00575081 · 5,000 participants
Physiological Brain Atlas Development
- NCT00736749 · 5,000 participants
Long-Term Follow-Up of Patients Who Have Participated in Children's Oncology Group Studies
- NCT00900198 · 5,000 participants
Collection of Tissue Samples for Cancer Research
Similar registry start date
- NCT05962346 · started 2026-12 · NA
Fetal Endoscopic Tracheal Occlusion for Congenital Diaphragmatic Hernia
- NCT07125183 · started 2026-12 · Phase 2
Study on Efficacy and Tolerability of Weekly Doxorubicin in Elderly Patients With Advanced or Metastatic Leiomyosarcoma
- NCT07292298 · started 2026-11 · Phase 2
Phase 2 Single-Arm Rectal Cancer Brachytherapy for Patients With Low-Lying Residual Adenocarcinoma After Total Neoadjuvant Therapy to Improve Organ Preservation Rates
- NCT04263285 · started 2026-10 · NA
Treatment of Depression Post-SCI