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NCT04900493 · ClinicalTrials.gov registry record
The Rett Syndrome Global Registry
A clinical trial of Rett Syndrome, sponsored by Rett Syndrome Research Trust.
- Recruiting
- Registry status
- 5,000
- Enrollment target
- 1
- Study location
NCT04900493 is a study of Rett Syndrome that is actively recruiting participants, run by Rett Syndrome Research Trust. The registered enrollment target is 5,000 participants, above the 248-participant average among 18 other Rett Syndrome trials with a reported enrollment target (1916% higher). The trial reports 1 study location across 1 state.
The verdict
NCT04900493, a study of Rett Syndrome, is actively recruiting participants, sponsored by Rett Syndrome Research Trust.
- RECRUITING
- Registry status
- 5,000 participants
- Enrollment target
- 1
- Study location
Study Summary
The Rett Global Registry is a fully remote, global, caregiver-reported registry to collect information about caring for a loved one with Rett syndrome. In addition, caregivers have the ability to track and graph their loved one's symptoms and care strategies over time, store information for central access, and opt-in to complete medical record consolidation and summary. Qualified researchers and therapeutic developers may request access to de-identified aggregate information to further Rett research, or assist with clinical development planning to facilitate and expedite more effective clinical trials.
Conditions Studied
Study Locations (1)
Connecticut
- Rett Syndrome Research Trust - Trumbull
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 5,000 participants |
| Start Date | 2022-01-31 |
| Est. Completion | 2031-06-30 |
Interested in This Trial?
Full Details on ClinicalTrials.gov ↗What the Registry Record Tells You About NCT04900493
The ClinicalTrials.gov registry entry for NCT04900493 describes a study currently listed as recruiting, categorized as an unspecified phase. The registered enrollment target is 5,000 participants, a figure that helps gauge the scale of data the investigators plan to collect, above the 248-participant average among 18 other Rett Syndrome trials with a reported enrollment target (1916% higher). The listed sponsor is Rett Syndrome Research Trust, which has 5 total studies on file at ClinicalTrials.gov.
The record links to 1 condition, with Rett Syndrome appearing as the primary indexed condition, and to 0 interventions.
NCT04900493 reports 1 study location spanning 1 distinct geographic area - top geographies include Connecticut.
Frequently Asked Questions
What is clinical trial NCT04900493 about?
NCT04900493 is a clinical study titled "The Rett Syndrome Global Registry". The Rett Global Registry is a fully remote, global, caregiver-reported registry to collect information about caring for a loved one with Rett syndrome. In addition, caregivers have the ability to track and graph their loved one's symptoms and care strategies over time, store information for central ...
What is the current status of trial NCT04900493?
This trial is currently recruiting. The enrollment target is 5,000 participants. The study started on 2022-01-31. Estimated completion is 2031-06-30.
What conditions does trial NCT04900493 study?
This clinical trial studies the following conditions: Rett Syndrome.
Who is sponsoring clinical trial NCT04900493?
This trial is sponsored by Rett Syndrome Research Trust, which has 5 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT04900493 being conducted?
This trial has 1 study location across Connecticut. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
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Read our methodology - how this data is sourced, computed, and verified.
Related
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