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NCT04127006 · ClinicalTrials.gov registry record

Rate of Progression in EYS Related Retinal Degeneration

A clinical trial of Retinitis Pigmentosa and Eye Diseases, sponsored by Jaeb Center for Health Research.

Active
Registry status
103
Enrollment target
19
Study locations

NCT04127006 is a study of Retinitis Pigmentosa and Eye Diseases that is active but no longer recruiting, run by Jaeb Center for Health Research. The registered enrollment target is 103 participants, below the 259-participant average among 37 other Retinitis Pigmentosa trials with a reported enrollment target (60% lower). The trial reports 19 study locations across 13 states.

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The verdict

NCT04127006, a study of Retinitis Pigmentosa and Eye Diseases, is active but no longer recruiting, sponsored by Jaeb Center for Health Research.

ACTIVE NOT RECRUITING
Registry status
103 participants
Enrollment target
19
Study locations

Study Summary

The overall goal of this project funded by the Foundation Fighting Blindness is to characterize the natural history of disease progression in patients with EYS mutations in order to accelerate the development of outcome measures for clinical trials.

Study Locations (19)

Other

  • Hospital for Sick Children - Toronto
  • Helsinki University Hospital - Helsinki
  • Centre hospitalier National d'Ophtalmologie des Quinze-Vingts - Paris
  • University of Tubingen - Tübingen
  • Hadassah Medical Center - Jerusalem
  • Radboud University - Nijmegen

Florida

  • Vitreo-Retinal Associates - Gainesville
  • University of Miami: Neuro-ophthalmology Department - Miami

California

  • University of California, San Francisco - San Francisco

Colorado

  • Colorado Retina Associates - Denver

Georgia

  • Emory Eye Center - Atlanta

Maryland

  • Wilmer Eye Institute at Johns Hopkins - Baltimore

Massachusetts

  • Massachusetts Eye and Ear - Boston

Michigan

  • Kellogg Eye Center, University of Michigan - Ann Arbor

Trial Details

FieldValue
Enrollment Target 103 participants
Start Date 2020-02-25
Est. Completion 2026-04-01

Sponsor

Jaeb Center for Health Research

119 total trials

What the Registry Record Tells You About NCT04127006

The ClinicalTrials.gov registry entry for NCT04127006 describes a study currently listed as active not recruiting, categorized as an unspecified phase. The registered enrollment target is 103 participants, a figure that helps gauge the scale of data the investigators plan to collect, below the 259-participant average among 37 other Retinitis Pigmentosa trials with a reported enrollment target (60% lower). The listed sponsor is Jaeb Center for Health Research, which has 119 total studies on file at ClinicalTrials.gov.

The record links to 2 conditions, with Retinitis Pigmentosa appearing as the primary indexed condition, and to 0 interventions.

NCT04127006 reports 19 study locations spanning 13 distinct geographic areas - top geographies include Other, Florida, California.

Frequently Asked Questions

What is clinical trial NCT04127006 about?

NCT04127006 is a clinical study titled "Rate of Progression in EYS Related Retinal Degeneration". The overall goal of this project funded by the Foundation Fighting Blindness is to characterize the natural history of disease progression in patients with EYS mutations in order to accelerate the development of outcome measures for clinical trials.

What is the current status of trial NCT04127006?

This trial is currently active not recruiting. The enrollment target is 103 participants. The study started on 2020-02-25. Estimated completion is 2026-04-01.

What conditions does trial NCT04127006 study?

This clinical trial studies the following conditions: Retinitis Pigmentosa, Eye Diseases.

Who is sponsoring clinical trial NCT04127006?

This trial is sponsored by Jaeb Center for Health Research, which has 119 total clinical trials registered on ClinicalTrials.gov.

Where is trial NCT04127006 being conducted?

This trial has 19 study locations across California, Colorado, Florida, Georgia, Maryland. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.

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Data sourced from official public datasets. See our methodology for details. Retrieved and formatted by PlainTrial Editorial

Every figure on PlainTrial is rendered directly from the ClinicalTrials.gov registry, no number is typed in by an editor. This page mirrors this trial's own ClinicalTrials.gov registry record, live from the dataset. See our editorial standards & corrections policy, the methodology behind these numbers, or report a data error.