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Prospective Huntington At Risk Observational Study
NCT00052143 · View on ClinicalTrials.gov ↗
Study Summary
The purpose of this study is to define the natural history and experiences of people who are at risk for developing Huntington's disease but who do not know their genetic status.
Conditions Studied
Study Locations (20)
California
- University of California at San Diego — La Jolla
- UCLA School of Medicine — Los Angeles
- University of California, Davis — Sacramento
Connecticut
- University of Connecticut — Hartford
- Institute for Neurodegenerative Disorders — New Haven
Florida
- University of Miami School of Medicine — Miami
- University of South Florida — Tampa
Kansas
- University of Kansas Medical Center — Kansas City
- Hereditary Neurological Disease Center — Wichita
Maryland
- Johns Hopkins University — Baltimore
- University of Maryland at Baltimore — Baltimore
Massachusetts
- Boston University School of Medicine — Boston
- Massachusetts General Hospital — Boston
Alabama
- University of Alabama — Birmingham
Arizona
- Mayo Clinic Arizona — Phoenix
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 1,001 participants |
| Start Date | 1999-07-09 |
| Est. Completion | 2009-12-17 |
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Full Details on ClinicalTrials.gov ↗What the Registry Record Tells You About NCT00052143
The ClinicalTrials.gov registry entry for NCT00052143 describes a study currently listed as completed. It is categorized as an unspecified phase, which is the standard way researchers label where a study sits along the investigational pathway from early safety work through later efficacy and post-marketing evaluation. The registered enrollment target is 1,001 participants, a figure that helps gauge the scale of data the investigators plan to collect. The listed sponsor is Huntington Study Group, which has 29 total studies on file at ClinicalTrials.gov, and sponsors are the parties responsible for study design, oversight, and regulatory filings.
The record links to 1 condition, with Huntington Disease appearing as the primary indexed condition, and to 0 interventions. Interventions can include drugs, devices, procedures, behavioral programs, or observational arms, and each is tracked as a separate registry field so that downstream queries can filter accurately. When a trial lists multiple interventions, it usually reflects a multi-arm design or a comparison protocol rather than a single treatment being tested in isolation. The brief summary published in the registry is the clearest source of protocol intent and should be read before drawing conclusions from any sidebar tags.
Geographic footprint matters for practical reasons: NCT00052143 reports 20 study locations spanning 13 distinct geographic areas — top geographies include California, Connecticut, Florida. A larger site network tends to correlate with broader recruitment capacity, but it does not imply anything about study quality, and site-level enrollment status can diverge from the overall registry status shown above. Every data point on this page comes from the public ClinicalTrials.gov dataset and is reproduced here for reference only; it is not a medical recommendation, an endorsement of the sponsor, or an invitation to enroll. Verify current status, eligibility criteria, and contact details directly at ClinicalTrials.gov, and discuss any participation decision with your own healthcare provider.
Frequently Asked Questions
What is clinical trial NCT00052143 about?
NCT00052143 is a clinical study titled "Prospective Huntington At Risk Observational Study". The purpose of this study is to define the natural history and experiences of people who are at risk for developing Huntington's disease but who do not know their genetic status.
What is the current status of trial NCT00052143?
This trial is currently completed. The enrollment target is 1,001 participants. The study started on 1999-07-09. Estimated completion is 2009-12-17.
What conditions does trial NCT00052143 study?
This clinical trial studies the following conditions: Huntington Disease. These conditions were identified from the trial registry and reflect the primary focus areas of the research.
Who is sponsoring clinical trial NCT00052143?
This trial is sponsored by Huntington Study Group, which has 29 total clinical trials registered on ClinicalTrials.gov. The sponsor is responsible for the study's design, funding, and regulatory compliance.
Where is trial NCT00052143 being conducted?
This trial has 20 study locations across Alabama, Arizona, California, Colorado, Connecticut. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
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