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NCT05064241 · ClinicalTrials.gov registry record · NA
Overcoming Barriers to Accessing Genetic Medicine
A NA study of Genetic Disease and Genetic Predisposition, sponsored by Boston Children's Hospital.
- Active
- Registry status
- NA
- Development phase
- 70
- Enrollment target
- 1
- Study location
NCT05064241: Active NA study of Genetic Disease and Genetic Predisposition, sponsored by Boston Children's Hospital.
NCT05064241 is a NA study of Genetic Disease and Genetic Predisposition that is active but no longer recruiting, run by Boston Children's Hospital. The registered enrollment target is 70 participants, below the 2,559-participant average among 30 other Genetic Disease trials with a reported enrollment target (97% lower). The trial reports 1 study location across 1 state. According to ClinicalTrials.gov, the official US trial registry.
The verdict
NCT05064241, a NA study of Genetic Disease and Genetic Predisposition, is active but no longer recruiting, sponsored by Boston Children's Hospital.
- ACTIVE NOT RECRUITING
- Registry status
- NA
- Development phase
- 70 participants
- Enrollment target
- 1
- Study location
Study Summary
To learn about patient barriers to accessing genetic medicine, we will analyze anonymous posts from a membership-based online community \[Inspire.com\], and investigate how these barriers differ for various populations. We will then test whether these barriers can be addressed by providing online access to a genetic counselor to answer patient questions for one group of patients (virtual advisory board group) and compare to that of a control group who does not have access to a genetic counselor (virtual peer-to-peer board group).
Conditions Studied
Interventions
- OTHER Access to Genetic Counselor for answering questions
Study Locations (1)
Massachusetts
- Boston Children's Hospital - Boston
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 70 participants |
| Start Date | 2023-04-15 |
| Est. Completion | 2025-09-30 |
| Phase | NA |
What the registry record for NCT05064241 still lists
NCT05064241 is an interventional study that assigns participants to a tested intervention. The registry caps enrollment at 70 participants, a relatively small participant target, below the 2,559-participant average among 30 other Genetic Disease trials with a reported enrollment target (97% lower).
The record links to 2 conditions, with Genetic Disease appearing as the primary indexed condition, and to 1 intervention - of which Access to Genetic Counselor for answering questions is the first listed.
NCT05064241 reports a single indexed study location in Massachusetts.
Frequently Asked Questions
What is clinical trial NCT05064241 about?
NCT05064241 is a clinical study titled "Overcoming Barriers to Accessing Genetic Medicine". To learn about patient barriers to accessing genetic medicine, we will analyze anonymous posts from a membership-based online community \[Inspire.com\], and investigate how these barriers differ for various populations. We will then test whether these barriers can be addressed by providing online ac...
What is the current status of trial NCT05064241?
This trial is currently active not recruiting. It is a NA study. The enrollment target is 70 participants. The study started on 2023-04-15. Estimated completion is 2025-09-30.
What conditions does trial NCT05064241 study?
This clinical trial studies the following conditions: Genetic Disease, Genetic Predisposition.
What interventions are being tested in trial NCT05064241?
The interventions under investigation include: Access to Genetic Counselor for answering questions (OTHER).
Who is sponsoring clinical trial NCT05064241?
This trial is sponsored by Boston Children's Hospital, which has 462 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT05064241 being conducted?
This trial has 1 study location across Massachusetts. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
Learn More About Clinical Trials
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Matched on the same primary condition, ranked to surface studies in the same phase first, then by recruiting status, no relevance scoring or editorial curation.
Where NCT05064241's enrollment target sits among peer trials
70 22nd of 30 higher than 9 of 30 other Genetic Disease trials
participants (enrollment target), bucketed by value
Each bar is a band; taller bars hold more other Genetic Disease trials. The dashed line + filled bar mark this entry. Hover or tap any bar for its full count and share, and where it sits relative to this entry.
Source ClinicalTrials.gov registry export · 2026-08-08
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