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NCT04765345 · ClinicalTrials.gov registry record
Rate of Progression of PCDH15-Related Retinal Degeneration in Usher Syndrome 1F
A clinical trial of Retinitis Pigmentosa and Retinal Degeneration, sponsored by Jaeb Center for Health Research.
- Active
- Registry status
- 44
- Enrollment target
- 10
- Study locations
NCT04765345 is a study of Retinitis Pigmentosa and Retinal Degeneration that is active but no longer recruiting, run by Jaeb Center for Health Research. The registered enrollment target is 44 participants, below the 260-participant average among 37 other Retinitis Pigmentosa trials with a reported enrollment target (83% lower). The trial reports 10 study locations across 5 states.
The verdict
NCT04765345, a study of Retinitis Pigmentosa and Retinal Degeneration, is active but no longer recruiting, sponsored by Jaeb Center for Health Research.
- ACTIVE NOT RECRUITING
- Registry status
- 44 participants
- Enrollment target
- 10
- Study locations
Study Summary
The overall goal of this project, co-funded by the Foundation Fighting Blindness and the USHER 1F Collaborative is to characterize the natural history of disease progression in patients with PCDH15 mutations in order to accelerate the development of outcome measures for clinical trials.
Conditions Studied
Study Locations (10)
Other
- CHNO des Quinze-Vingts - Paris
- University of Tubingen - Tübingen
- Haddassah Medical Center - Jerusalem
- Radboud University - Nijmegen
- University Hospital Basel - Basel
- Moorfields Eye Hospital - London
California
- University of California, San Francisco - San Francisco
Maryland
- The Johns Hopkins Wilmer Eye Institute - Baltimore
North Carolina
- Duke University, Duke Eye Center - Durham
Ontario
- Hospital for Sick Children - Toronto
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 44 participants |
| Start Date | 2021-06-08 |
| Est. Completion | 2027-06-30 |
Interested in This Trial?
Full Details on ClinicalTrials.gov ↗What the Registry Record Tells You About NCT04765345
The ClinicalTrials.gov registry entry for NCT04765345 describes a study currently listed as active not recruiting, categorized as an unspecified phase. The registered enrollment target is 44 participants, a figure that helps gauge the scale of data the investigators plan to collect, below the 260-participant average among 37 other Retinitis Pigmentosa trials with a reported enrollment target (83% lower). The listed sponsor is Jaeb Center for Health Research, which has 119 total studies on file at ClinicalTrials.gov.
The record links to 3 conditions, with Retinitis Pigmentosa appearing as the primary indexed condition, and to 0 interventions.
NCT04765345 reports 10 study locations spanning 5 distinct geographic areas - top geographies include Other, California, Maryland.
Frequently Asked Questions
What is clinical trial NCT04765345 about?
NCT04765345 is a clinical study titled "Rate of Progression of PCDH15-Related Retinal Degeneration in Usher Syndrome 1F". The overall goal of this project, co-funded by the Foundation Fighting Blindness and the USHER 1F Collaborative is to characterize the natural history of disease progression in patients with PCDH15 mutations in order to accelerate the development of outcome measures for clinical trials.
What is the current status of trial NCT04765345?
This trial is currently active not recruiting. The enrollment target is 44 participants. The study started on 2021-06-08. Estimated completion is 2027-06-30.
What conditions does trial NCT04765345 study?
This clinical trial studies the following conditions: Retinitis Pigmentosa, Retinal Degeneration, Eye Diseases, Hereditary.
Who is sponsoring clinical trial NCT04765345?
This trial is sponsored by Jaeb Center for Health Research, which has 119 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT04765345 being conducted?
This trial has 10 study locations across California, Maryland, North Carolina, Ontario. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
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