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NCT06524726 · ClinicalTrials.gov registry record
The International PNH Interest Group PNH Registry
A clinical trial of Paroxysmal Nocturnal Hemoglobinuria, sponsored by International PNH Interest Group.
- Recruiting
- Registry status
- 2,000
- Enrollment target
- 1
- Study location
NCT06524726: Recruiting study of Paroxysmal Nocturnal Hemoglobinuria, sponsored by International PNH Interest Group.
NCT06524726 is a study of Paroxysmal Nocturnal Hemoglobinuria that is actively recruiting participants, run by International PNH Interest Group. The registered enrollment target is 2,000 participants, above the 122-participant average among 14 other Paroxysmal Nocturnal Hemoglobinuria trials with a reported enrollment target (1539% higher). The trial reports 1 study location across 1 state. According to ClinicalTrials.gov, the official US trial registry.
The verdict
NCT06524726, a study of Paroxysmal Nocturnal Hemoglobinuria, is actively recruiting participants, sponsored by International PNH Interest Group.
- RECRUITING
- Registry status
- 2,000 participants
- Enrollment target
- 1
- Study location
Study Summary
The aim of this International PNH Interest Group (IPIG) registry is to develop an international database to prospectively collect data on patients with PNH covering clinical outcomes, patient reported outcomes (PROs), and health-resource utilization (HRU) on all enrolled patients, as well as long term safety data.
Primary Outcome
To describe PNH disease natural history and PNH treatment course, the patterns of treatment usage, long-term safety of PNH treatments, assess patient reported quality of life and describe health resource usage
Conditions Studied
Study Locations (1)
Florida
- International PNH Interest Group - Altamonte Springs
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 2,000 participants |
| Start Date | 2024-05-10 |
| Est. Completion | 2029-05-10 |
What NCT06524726 shows while recruiting
NCT06524726 is an observational study that tracks outcomes without assigning an intervention. Its 2,000 participants enrollment target places it among the larger protocols in the corpus, above the 122-participant average among 14 other Paroxysmal Nocturnal Hemoglobinuria trials with a reported enrollment target (1539% higher).
The record links to 1 condition, with Paroxysmal Nocturnal Hemoglobinuria appearing as the primary indexed condition, and to 0 interventions.
NCT06524726 reports a single indexed study location in Florida.
Frequently Asked Questions
What is clinical trial NCT06524726 about?
NCT06524726 is a clinical study titled "The International PNH Interest Group PNH Registry". The aim of this International PNH Interest Group (IPIG) registry is to develop an international database to prospectively collect data on patients with PNH covering clinical outcomes, patient reported outcomes (PROs), and health-resource utilization (HRU) on all enrolled patients, as well as long te...
What is the current status of trial NCT06524726?
This trial is currently recruiting. The enrollment target is 2,000 participants. The study started on 2024-05-10. Estimated completion is 2029-05-10.
What conditions does trial NCT06524726 study?
This clinical trial studies the following conditions: Paroxysmal Nocturnal Hemoglobinuria.
Who is sponsoring clinical trial NCT06524726?
This trial is sponsored by International PNH Interest Group, which has 1 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT06524726 being conducted?
This trial has 1 study location across Florida. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
Learn More About Clinical Trials
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Where NCT06524726's enrollment target sits among peer trials
2,000 1st of 14 higher than 14 of 14 other Paroxysmal Nocturnal Hemoglobinuria trials
participants (enrollment target), bucketed by value
Each bar is a band; taller bars hold more other Paroxysmal Nocturnal Hemoglobinuria trials. The dashed line + filled bar mark this entry. Hover or tap any bar for its full count and share, and where it sits relative to this entry.
Source ClinicalTrials.gov registry export · 2026-08-08
-
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