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NCT06524726 · ClinicalTrials.gov registry record

The International PNH Interest Group PNH Registry

A clinical trial of Paroxysmal Nocturnal Hemoglobinuria, sponsored by International PNH Interest Group.

Recruiting
Registry status
2,000
Enrollment target
1
Study location

NCT06524726 is a study of Paroxysmal Nocturnal Hemoglobinuria that is actively recruiting participants, run by International PNH Interest Group. The registered enrollment target is 2,000 participants, above the 122-participant average among 14 other Paroxysmal Nocturnal Hemoglobinuria trials with a reported enrollment target (1539% higher). The trial reports 1 study location across 1 state.

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The verdict

NCT06524726, a study of Paroxysmal Nocturnal Hemoglobinuria, is actively recruiting participants, sponsored by International PNH Interest Group.

RECRUITING
Registry status
2,000 participants
Enrollment target
1
Study location

Study Summary

The aim of this International PNH Interest Group (IPIG) registry is to develop an international database to prospectively collect data on patients with PNH covering clinical outcomes, patient reported outcomes (PROs), and health-resource utilization (HRU) on all enrolled patients, as well as long term safety data.

Study Locations (1)

Florida

  • International PNH Interest Group - Altamonte Springs

Trial Details

FieldValue
Enrollment Target 2,000 participants
Start Date 2024-05-10
Est. Completion 2029-05-10

Sponsor

International PNH Interest Group

1 total trials

What the Registry Record Tells You About NCT06524726

The ClinicalTrials.gov registry entry for NCT06524726 describes a study currently listed as recruiting, categorized as an unspecified phase. The registered enrollment target is 2,000 participants, a figure that helps gauge the scale of data the investigators plan to collect, above the 122-participant average among 14 other Paroxysmal Nocturnal Hemoglobinuria trials with a reported enrollment target (1539% higher). The listed sponsor is International PNH Interest Group, which has 1 total studies on file at ClinicalTrials.gov.

The record links to 1 condition, with Paroxysmal Nocturnal Hemoglobinuria appearing as the primary indexed condition, and to 0 interventions.

NCT06524726 reports 1 study location spanning 1 distinct geographic area - top geographies include Florida.

Frequently Asked Questions

What is clinical trial NCT06524726 about?

NCT06524726 is a clinical study titled "The International PNH Interest Group PNH Registry". The aim of this International PNH Interest Group (IPIG) registry is to develop an international database to prospectively collect data on patients with PNH covering clinical outcomes, patient reported outcomes (PROs), and health-resource utilization (HRU) on all enrolled patients, as well as long te...

What is the current status of trial NCT06524726?

This trial is currently recruiting. The enrollment target is 2,000 participants. The study started on 2024-05-10. Estimated completion is 2029-05-10.

What conditions does trial NCT06524726 study?

This clinical trial studies the following conditions: Paroxysmal Nocturnal Hemoglobinuria.

Who is sponsoring clinical trial NCT06524726?

This trial is sponsored by International PNH Interest Group, which has 1 total clinical trials registered on ClinicalTrials.gov.

Where is trial NCT06524726 being conducted?

This trial has 1 study location across Florida. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.

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