Medical Information Only. Always consult your healthcare provider before enrolling in any clinical trial.
NCT05955014 · ClinicalTrials.gov registry record
Data Collection Protocol for Patients With Von Hippel Lindau Disease
A clinical trial of Von Hippel-Lindau Disease, sponsored by M.D. Anderson Cancer Center.
- Recruiting
- Registry status
- 125
- Enrollment target
- 1
- Study location
NCT05955014: Recruiting study of Von Hippel-Lindau Disease, sponsored by M.D. Anderson Cancer Center.
NCT05955014 is a study of Von Hippel-Lindau Disease that is actively recruiting participants, run by M.D. Anderson Cancer Center. The registered enrollment target is 125 participants, below the 2,219-participant average among 5 other Von Hippel-Lindau Disease trials with a reported enrollment target (94% lower). The trial reports 1 study location across 1 state. According to ClinicalTrials.gov, the official US trial registry.
The verdict
NCT05955014, a study of Von Hippel-Lindau Disease, is actively recruiting participants, sponsored by M.D. Anderson Cancer Center.
- RECRUITING
- Registry status
- 125 participants
- Enrollment target
- 1
- Study location
Study Summary
To collect information from patients with vHL disease. Information collected will include data on the status of the disease, any surgeries or therapies patients have received for vHL disease, and quality of life.
Conditions Studied
Study Locations (1)
Texas
- M D Anderson Cancer Center - Houston
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 125 participants |
| Start Date | 2023-08-24 |
| Est. Completion | 2026-12-31 |
What NCT05955014 shows while recruiting
NCT05955014 is an observational study that tracks outcomes without assigning an intervention. The registered 125 participants enrollment target is mid-sized for trials with a published cap, below the 2,219-participant average among 5 other Von Hippel-Lindau Disease trials with a reported enrollment target (94% lower).
The record links to 1 condition, with Von Hippel-Lindau Disease appearing as the primary indexed condition, and to 0 interventions.
NCT05955014 reports a single indexed study location in Texas.
Frequently Asked Questions
What is clinical trial NCT05955014 about?
NCT05955014 is a clinical study titled "Data Collection Protocol for Patients With Von Hippel Lindau Disease". To collect information from patients with vHL disease. Information collected will include data on the status of the disease, any surgeries or therapies patients have received for vHL disease, and quality of life.
What is the current status of trial NCT05955014?
This trial is currently recruiting. The enrollment target is 125 participants. The study started on 2023-08-24. Estimated completion is 2026-12-31.
What conditions does trial NCT05955014 study?
This clinical trial studies the following conditions: Von Hippel-Lindau Disease.
Who is sponsoring clinical trial NCT05955014?
This trial is sponsored by M.D. Anderson Cancer Center, which has 2,692 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT05955014 being conducted?
This trial has 1 study location across Texas. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
Learn More About Clinical Trials
Similar trials for Von Hippel-Lindau Disease
Matched on the same primary condition, ranked to surface studies in the same phase first, then by recruiting status, no relevance scoring or editorial curation.
-
Belzutifan/MK-6482 for the Treatment of Advanced Pheochromocytoma/Paraganglioma (PPGL), Pancreatic Neuroendocrine Tumor (pNET), Von Hippel-Lindau (VHL) Disease-Associated Tumors, Advanced Gastrointestinal Stromal Tumor (wt GIST), or Solid Tumors With HIF-2α Related Genetic Alterations (MK-6482-015)
RECRUITING · Phase 2
-
MyVHL: Patient Natural History Study
RECRUITING
-
Natural History and Management of Von Hippel-Lindau (VHL) Associated Pancreatic Neuroendocrine Tumors
RECRUITING · Phase 2
-
Retrospective Case Series of Trans-scleral Cryotherapy for Retinal Hemangioblastoma
ACTIVE NOT RECRUITING
-
Effect of Vorinostat on Nervous System Hemangioblastomas in Von Hippel-Lindau Disease (Missense Mutation Only)
COMPLETED · Phase 1
Nationwide trials with similar profiles
Cross-condition peers matched on enrollment target and registry start date, not the same-condition list above.
Similar enrollment target
- NCT02717039 · 125 participants
Pharmacogenomics of Heparin-Induced Thrombocytopenia
- NCT02763033 · 125 participants · Phase 2
Dietary Manipulation of the Microbiome-metabolomic Axis for Mitigating GVHD in Allo HCT Patients
- NCT02793999 · 125 participants
Perinatal Brain Injury: Potential of Innovative NIRS to Optimize Hypothermia
- NCT03003299 · 125 participants · NA
PARTNER 3 Trial - Aortic Valve-in-Valve
Similar registry start date
- NCT05962346 · started 2026-12 · NA
Fetal Endoscopic Tracheal Occlusion for Congenital Diaphragmatic Hernia
- NCT07125183 · started 2026-12 · Phase 2
Study on Efficacy and Tolerability of Weekly Doxorubicin in Elderly Patients With Advanced or Metastatic Leiomyosarcoma
- NCT07292298 · started 2026-11 · Phase 2
Phase 2 Single-Arm Rectal Cancer Brachytherapy for Patients With Low-Lying Residual Adenocarcinoma After Total Neoadjuvant Therapy to Improve Organ Preservation Rates
- NCT04263285 · started 2026-10 · NA
Treatment of Depression Post-SCI