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NCT03749980 · ClinicalTrials.gov registry record
MyVHL: Patient Natural History Study
A clinical trial of Von Hippel-Lindau Disease and Hereditary Leiomyomatosis and Renal Cell Cancer, sponsored by Joshua Mann, MPH.
- Recruiting
- Registry status
- 10,000
- Enrollment target
- 1
- Study location
NCT03749980 is a study of Von Hippel-Lindau Disease and Hereditary Leiomyomatosis and Renal Cell Cancer that is actively recruiting participants, run by Joshua Mann, MPH. The registered enrollment target is 10,000 participants, above the 244-participant average among 5 other Von Hippel-Lindau Disease trials with a reported enrollment target (3998% higher). The trial reports 1 study location across 1 state.
The verdict
NCT03749980, a study of Von Hippel-Lindau Disease and Hereditary Leiomyomatosis and Renal Cell Cancer, is actively recruiting participants, sponsored by Joshua Mann, MPH.
- RECRUITING
- Registry status
- 10,000 participants
- Enrollment target
- 1
- Study location
Study Summary
MyVHL is a multi-patient database which helps researchers identify patterns across VHL patients. MyVHL provides you -and researchers -with more complete information about VHL, like how your lifestyle, medications, and other factors impact the disease and quality of life. These insights help you better understand the condition and help researchers know where to focus their efforts. Due to its rarity, there is less understanding of VHL and the factors that may have an impact. The data individuals provide in MyVHL helps researchers identify and uncover factors that may increase risk, inhibit or slow tumor growth, or lead to an effective cure.
Conditions Studied
Study Locations (1)
Massachusetts
- VHL Alliance - Boston
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 10,000 participants |
| Start Date | 2012-01 |
| Est. Completion | 2028-12 |
Interested in This Trial?
Full Details on ClinicalTrials.gov ↗What the Registry Record Tells You About NCT03749980
The ClinicalTrials.gov registry entry for NCT03749980 describes a study currently listed as recruiting, categorized as an unspecified phase. The registered enrollment target is 10,000 participants, a figure that helps gauge the scale of data the investigators plan to collect, above the 244-participant average among 5 other Von Hippel-Lindau Disease trials with a reported enrollment target (3998% higher). The listed sponsor is Joshua Mann, MPH, which has 1 total studies on file at ClinicalTrials.gov.
The record links to 4 conditions, with Von Hippel-Lindau Disease appearing as the primary indexed condition, and to 0 interventions.
NCT03749980 reports 1 study location spanning 1 distinct geographic area - top geographies include Massachusetts.
Frequently Asked Questions
What is clinical trial NCT03749980 about?
NCT03749980 is a clinical study titled "MyVHL: Patient Natural History Study". MyVHL is a multi-patient database which helps researchers identify patterns across VHL patients. MyVHL provides you -and researchers -with more complete information about VHL, like how your lifestyle, medications, and other factors impact the disease and quality of life. These insights help you bett...
What is the current status of trial NCT03749980?
This trial is currently recruiting. The enrollment target is 10,000 participants. The study started on 2012-01. Estimated completion is 2028-12.
What conditions does trial NCT03749980 study?
This clinical trial studies the following conditions: Von Hippel-Lindau Disease, Hereditary Leiomyomatosis and Renal Cell Cancer, Birt-Hogg-Dube Syndrome, SDHB Gene Mutation.
Who is sponsoring clinical trial NCT03749980?
This trial is sponsored by Joshua Mann, MPH, which has 1 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT03749980 being conducted?
This trial has 1 study location across Massachusetts. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
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