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NCT03090789 · ClinicalTrials.gov registry record

FA Clinical Outcome Measures

A clinical trial of Friedreich Ataxia and Neuro-Degenerative Disease, sponsored by Friedreich's Ataxia Research Alliance.

Active
Registry status
2,000
Enrollment target
14
Study locations

NCT03090789 is a study of Friedreich Ataxia and Neuro-Degenerative Disease that is active but no longer recruiting, run by Friedreich's Ataxia Research Alliance. The registered enrollment target is 2,000 participants, above the 307-participant average among 14 other Friedreich Ataxia trials with a reported enrollment target (551% higher). The trial reports 14 study locations across 12 states.

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The verdict

NCT03090789, a study of Friedreich Ataxia and Neuro-Degenerative Disease, is active but no longer recruiting, sponsored by Friedreich's Ataxia Research Alliance.

ACTIVE NOT RECRUITING
Registry status
2,000 participants
Enrollment target
14
Study locations

Study Summary

This multicenter natural history study aims to expand the network of clinical research centers in FA, and to provide a framework for facilitating therapeutic interventions. In addition, this study will lead to the development of valid yet sensitive clinical measures crucial to outcome assessment of patients with Friedreich's Ataxia. This study will support genetic modifier studies, biomarker studies, and frataxin protein level assessments by building a sample repository. This natural history study is no longer recruiting under this protocol NCT03090789 but remains actively recruiting under the harmonized study (UNIFAI) NCT06016946.

Conditions Studied

Friedreich Ataxia Neuro-Degenerative Disease

Study Locations (14)

Florida

  • University of Florida - Neurology - Gainesville
  • USF Ataxia Research Center - Tampa

Other

  • All India Institute of Medical Sciences (Aiims) - New Delhi
  • Auckland City Hospital - Auckland

California

  • UCLA Ataxia Center - Los Angeles

Colorado

  • University of Colorado - Denver

Georgia

  • Emory University Hospital - Neurology - Atlanta

Iowa

  • University of Iowa, Stead Family Children's Hospital - Iowa City

Ohio

  • Ohio State University - Neurology - Columbus

Pennsylvania

  • Children's Hospital of Philadelphia - Neurology - Philadelphia

Trial Details

FieldValue
Enrollment Target 2,000 participants
Start Date 2001-01-01
Est. Completion 2030-01-01

Sponsor

Friedreich's Ataxia Research Alliance

2 total trials

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What the Registry Record Tells You About NCT03090789

The ClinicalTrials.gov registry entry for NCT03090789 describes a study currently listed as active not recruiting, categorized as an unspecified phase. The registered enrollment target is 2,000 participants, a figure that helps gauge the scale of data the investigators plan to collect, above the 307-participant average among 14 other Friedreich Ataxia trials with a reported enrollment target (551% higher). The listed sponsor is Friedreich's Ataxia Research Alliance, which has 2 total studies on file at ClinicalTrials.gov.

The record links to 2 conditions, with Friedreich Ataxia appearing as the primary indexed condition, and to 0 interventions.

NCT03090789 reports 14 study locations spanning 12 distinct geographic areas - top geographies include Florida, Other, California.

Frequently Asked Questions

What is clinical trial NCT03090789 about?

NCT03090789 is a clinical study titled "FA Clinical Outcome Measures". This multicenter natural history study aims to expand the network of clinical research centers in FA, and to provide a framework for facilitating therapeutic interventions. In addition, this study will lead to the development of valid yet sensitive clinical measures crucial to outcome assessment of ...

What is the current status of trial NCT03090789?

This trial is currently active not recruiting. The enrollment target is 2,000 participants. The study started on 2001-01-01. Estimated completion is 2030-01-01.

What conditions does trial NCT03090789 study?

This clinical trial studies the following conditions: Friedreich Ataxia, Neuro-Degenerative Disease.

Who is sponsoring clinical trial NCT03090789?

This trial is sponsored by Friedreich's Ataxia Research Alliance, which has 2 total clinical trials registered on ClinicalTrials.gov.

Where is trial NCT03090789 being conducted?

This trial has 14 study locations across California, Colorado, Florida, Georgia, Iowa. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.

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Data sourced from official public datasets. See our methodology for details. Retrieved and formatted by PlainTrial Editorial

Every figure on PlainTrial is rendered directly from the ClinicalTrials.gov registry, no number is typed in by an editor. This page mirrors this trial's own ClinicalTrials.gov registry record, live from the dataset. See our editorial standards & corrections policy, the methodology behind these numbers, or report a data error.