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NCT02398786 · ClinicalTrials.gov registry record
Myotonic Dystrophy Family Registry
A clinical trial of Myotonic Dystrophy and Myotonic Dystrophy 1, sponsored by Myotonic Dystrophy Foundation.
- Recruiting
- Registry status
- 3,500
- Enrollment target
- 1
- Study location
NCT02398786 is a study of Myotonic Dystrophy and Myotonic Dystrophy 1 that is actively recruiting participants, run by Myotonic Dystrophy Foundation. The registered enrollment target is 3,500 participants, above the 467-participant average among 9 other Myotonic Dystrophy trials with a reported enrollment target (649% higher). The trial reports 1 study location across 1 state.
The verdict
NCT02398786, a study of Myotonic Dystrophy and Myotonic Dystrophy 1, is actively recruiting participants, sponsored by Myotonic Dystrophy Foundation.
- RECRUITING
- Registry status
- 3,500 participants
- Enrollment target
- 1
- Study location
Study Summary
The Myotonic Dystrophy Family Registry (MDFR) is an online, patient-entered database that collects information on myotonic dystrophy (DM) to aid researchers in developing new, effective treatments and help identify participants for research studies and clinical trials.
Conditions Studied
Interventions
- OTHER Patient-entered data
Study Locations (1)
California
- Myotonic Dystrophy Foundation - Oakland
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 3,500 participants |
| Start Date | 2013-02 |
| Est. Completion | 2030-02 |
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Full Details on ClinicalTrials.gov ↗What the Registry Record Tells You About NCT02398786
The ClinicalTrials.gov registry entry for NCT02398786 describes a study currently listed as recruiting, categorized as an unspecified phase. The registered enrollment target is 3,500 participants, a figure that helps gauge the scale of data the investigators plan to collect, above the 467-participant average among 9 other Myotonic Dystrophy trials with a reported enrollment target (649% higher). The listed sponsor is Myotonic Dystrophy Foundation, which has 1 total studies on file at ClinicalTrials.gov.
The record links to 10 conditions, with Myotonic Dystrophy appearing as the primary indexed condition, and to 1 intervention - of which Patient-entered data is the first listed.
NCT02398786 reports 1 study location spanning 1 distinct geographic area - top geographies include California.
Frequently Asked Questions
What is clinical trial NCT02398786 about?
NCT02398786 is a clinical study titled "Myotonic Dystrophy Family Registry". The Myotonic Dystrophy Family Registry (MDFR) is an online, patient-entered database that collects information on myotonic dystrophy (DM) to aid researchers in developing new, effective treatments and help identify participants for research studies and clinical trials.
What is the current status of trial NCT02398786?
This trial is currently recruiting. The enrollment target is 3,500 participants. The study started on 2013-02. Estimated completion is 2030-02.
What conditions does trial NCT02398786 study?
This clinical trial studies the following conditions: Myotonic Dystrophy, Myotonic Dystrophy 1, Congenital Myotonic Dystrophy, Myotonic Dystrophy 2, Dystrophia Myotonica.
What interventions are being tested in trial NCT02398786?
The interventions under investigation include: Patient-entered data (OTHER).
Who is sponsoring clinical trial NCT02398786?
This trial is sponsored by Myotonic Dystrophy Foundation, which has 1 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT02398786 being conducted?
This trial has 1 study location across California. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
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