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NCT02398786 · ClinicalTrials.gov registry record
Myotonic Dystrophy Family Registry
A clinical trial of Myotonic Dystrophy and Myotonic Dystrophy 1, sponsored by Myotonic Dystrophy Foundation.
- Recruiting
- Registry status
- 3,500
- Enrollment target
- 1
- Study location
NCT02398786: Recruiting study of Myotonic Dystrophy and Myotonic Dystrophy 1, sponsored by Myotonic Dystrophy Foundation.
NCT02398786 is a study of Myotonic Dystrophy and Myotonic Dystrophy 1 that is actively recruiting participants, run by Myotonic Dystrophy Foundation. The registered enrollment target is 3,500 participants, above the 467-participant average among 9 other Myotonic Dystrophy trials with a reported enrollment target (649% higher). The trial reports 1 study location across 1 state. According to ClinicalTrials.gov, the official US trial registry.
The verdict
NCT02398786, a study of Myotonic Dystrophy and Myotonic Dystrophy 1, is actively recruiting participants, sponsored by Myotonic Dystrophy Foundation.
- RECRUITING
- Registry status
- 3,500 participants
- Enrollment target
- 1
- Study location
Study Summary
The Myotonic Dystrophy Family Registry (MDFR) is an online, patient-entered database that collects information on myotonic dystrophy (DM) to aid researchers in developing new, effective treatments and help identify participants for research studies and clinical trials.
Primary Outcome
Number of patients reporting specific symptoms and symptom severity, as well as impacts to quality of life and overall burden of disease in order to inform clinical trial development, understanding of disease for academic, industry and federal agency stakeholders and overall policy decisions. Results will be analyzed in comparison to other registry data and surveys to characterize this disease population cohort and to further define the population.
Conditions Studied
Interventions
- OTHER Patient-entered data
Study Locations (1)
California
- Myotonic Dystrophy Foundation - Oakland
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 3,500 participants |
| Start Date | 2013-02 |
| Est. Completion | 2030-02 |
What NCT02398786 shows while recruiting
NCT02398786 is an observational study that tracks outcomes without assigning an intervention. Its 3,500 participants enrollment target places it among the larger protocols in the corpus, above the 467-participant average among 9 other Myotonic Dystrophy trials with a reported enrollment target (649% higher).
The record links to 10 conditions, with Myotonic Dystrophy appearing as the primary indexed condition, and to 1 intervention - of which Patient-entered data is the first listed.
NCT02398786 reports a single indexed study location in California.
Frequently Asked Questions
What is clinical trial NCT02398786 about?
NCT02398786 is a clinical study titled "Myotonic Dystrophy Family Registry". The Myotonic Dystrophy Family Registry (MDFR) is an online, patient-entered database that collects information on myotonic dystrophy (DM) to aid researchers in developing new, effective treatments and help identify participants for research studies and clinical trials.
What is the current status of trial NCT02398786?
This trial is currently recruiting. The enrollment target is 3,500 participants. The study started on 2013-02. Estimated completion is 2030-02.
What conditions does trial NCT02398786 study?
This clinical trial studies the following conditions: Myotonic Dystrophy, Myotonic Dystrophy 1, Congenital Myotonic Dystrophy, Myotonic Dystrophy 2, Dystrophia Myotonica.
What interventions are being tested in trial NCT02398786?
The interventions under investigation include: Patient-entered data (OTHER).
Who is sponsoring clinical trial NCT02398786?
This trial is sponsored by Myotonic Dystrophy Foundation, which has 1 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT02398786 being conducted?
This trial has 1 study location across California. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
Learn More About Clinical Trials
Similar trials for Myotonic Dystrophy
Matched on the same primary condition, ranked to surface studies in the same phase first, then by recruiting status, no relevance scoring or editorial curation.
Where NCT02398786's enrollment target sits among peer trials
3,500 1st of 9 higher than 9 of 9 other Myotonic Dystrophy trials
participants (enrollment target), bucketed by value
Each bar is a band; taller bars hold more other Myotonic Dystrophy trials. The dashed line + filled bar mark this entry. Hover or tap any bar for its full count and share, and where it sits relative to this entry.
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