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NCT00082108 · ClinicalTrials.gov registry record
Myotonic Dystrophy and Facioscapulohumeral Muscular Dystrophy Registry
A clinical trial of Muscular Dystrophy and Myotonic Dystrophy, sponsored by University of Rochester.
- Recruiting
- Registry status
- 3,000
- Enrollment target
- 1
- Study location
NCT00082108 is a study of Muscular Dystrophy and Myotonic Dystrophy that is actively recruiting participants, run by University of Rochester. The registered enrollment target is 3,000 participants, above the 608-participant average among 11 other Muscular Dystrophy trials with a reported enrollment target (393% higher). The trial reports 1 study location across 1 state.
The verdict
NCT00082108, a study of Muscular Dystrophy and Myotonic Dystrophy, is actively recruiting participants, sponsored by University of Rochester.
- RECRUITING
- Registry status
- 3,000 participants
- Enrollment target
- 1
- Study location
Study Summary
Myotonic dystrophy (DM) and facioscapulohumeral muscular dystrophy (FSHD) are inherited disorders characterized by progressive muscle weakness and loss of muscle tissue. The purpose of this registry is to connect people with DM or FSHD with researchers studying these diseases. The registry will offer individuals with DM and FSHD an opportunity to participate in research that focuses of their diseases. The registry will also help scientists to accomplish research on DM and FSHD and to distribute their findings to patients and care providers.
Conditions Studied
Study Locations (1)
New York
- University of Rochester Medical Center, Department of Neurology - Rochester
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 3,000 participants |
| Start Date | 2000-09 |
| Est. Completion | 2028-06 |
Interested in This Trial?
Full Details on ClinicalTrials.gov ↗What the Registry Record Tells You About NCT00082108
The ClinicalTrials.gov registry entry for NCT00082108 describes a study currently listed as recruiting, categorized as an unspecified phase. The registered enrollment target is 3,000 participants, a figure that helps gauge the scale of data the investigators plan to collect, above the 608-participant average among 11 other Muscular Dystrophy trials with a reported enrollment target (393% higher). The listed sponsor is University of Rochester, which has 636 total studies on file at ClinicalTrials.gov.
The record links to 9 conditions, with Muscular Dystrophy appearing as the primary indexed condition, and to 0 interventions.
NCT00082108 reports 1 study location spanning 1 distinct geographic area - top geographies include New York.
Frequently Asked Questions
What is clinical trial NCT00082108 about?
NCT00082108 is a clinical study titled "Myotonic Dystrophy and Facioscapulohumeral Muscular Dystrophy Registry". Myotonic dystrophy (DM) and facioscapulohumeral muscular dystrophy (FSHD) are inherited disorders characterized by progressive muscle weakness and loss of muscle tissue. The purpose of this registry is to connect people with DM or FSHD with researchers studying these diseases. The registry will offe...
What is the current status of trial NCT00082108?
This trial is currently recruiting. The enrollment target is 3,000 participants. The study started on 2000-09. Estimated completion is 2028-06.
What conditions does trial NCT00082108 study?
This clinical trial studies the following conditions: Muscular Dystrophy, Myotonic Dystrophy, Facioscapulohumeral Muscular Dystrophy, Congenital Myotonic Dystrophy, Myotonic Dystrophy Type 1.
Who is sponsoring clinical trial NCT00082108?
This trial is sponsored by University of Rochester, which has 636 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT00082108 being conducted?
This trial has 1 study location across New York. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
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