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NCT01694940 · ClinicalTrials.gov registry record
North American Mitochondrial Disease Consortium Patient Registry and Biorepository (NAMDC)
A clinical trial of Mitochondrial Diseases and Mitochondrial Disorders, sponsored by Columbia University.
- Recruiting
- Registry status
- 1,000
- Enrollment target
- 17
- Study locations
NCT01694940: Recruiting study of Mitochondrial Diseases and Mitochondrial Disorders, sponsored by Columbia University.
NCT01694940 is a study of Mitochondrial Diseases and Mitochondrial Disorders that is actively recruiting participants, run by Columbia University. The registered enrollment target is 1,000 participants, above the 134-participant average among 7 other Mitochondrial Diseases trials with a reported enrollment target (646% higher). The trial reports 17 study locations across 12 states. According to ClinicalTrials.gov, the official US trial registry.
The verdict
NCT01694940, a study of Mitochondrial Diseases and Mitochondrial Disorders, is actively recruiting participants, sponsored by Columbia University.
- RECRUITING
- Registry status
- 1,000 participants
- Enrollment target
- 17
- Study locations
Study Summary
The North American Mitochondrial Disease Consortium (NAMDC) maintains a patient contact registry and tissue biorepository for patients with mitochondrial disorders.
Primary Outcome
This is a registry protocol and therefore there is no primary outcome measure for this study.
Conditions Studied
Study Locations (17)
Ohio
- Akron Children's Hospital - Akron
- Cleveland Clinic - Cleveland
- Case Western Reserve University - Clevland
California
- University of California San Diego - San Diego
- Lucile Packard Children's Hospital - Stanford
New York
- Columbia University Medical Center - New York
- Virtual Site (Remote enrollment) - New York
Pennsylvania
- The Children's Hospital of Philadelphia - Philadelphia
- Children's Hospital of Pittsburgh - Pittsburgh
Colorado
- Children's Hospital of Colorado - Aurora
District of Columbia
- Children's National Medical Center - Washington D.C.
Florida
- University of Florida - Gainsville
Massachusetts
- Massachusetts General Hospital - Boston
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 1,000 participants |
| Start Date | 2011-01-31 |
| Est. Completion | 2026-12-31 |
What NCT01694940 shows while recruiting
NCT01694940 is an observational study that tracks outcomes without assigning an intervention. Its 1,000 participants enrollment target places it among the larger protocols in the corpus, above the 134-participant average among 7 other Mitochondrial Diseases trials with a reported enrollment target (646% higher).
The record links to 5 conditions, with Mitochondrial Diseases appearing as the primary indexed condition, and to 0 interventions.
NCT01694940 lists 17 locations in 12 states (Ohio, California, New York).
Frequently Asked Questions
What is clinical trial NCT01694940 about?
NCT01694940 is a clinical study titled "North American Mitochondrial Disease Consortium Patient Registry and Biorepository (NAMDC)". The North American Mitochondrial Disease Consortium (NAMDC) maintains a patient contact registry and tissue biorepository for patients with mitochondrial disorders.
What is the current status of trial NCT01694940?
This trial is currently recruiting. The enrollment target is 1,000 participants. The study started on 2011-01-31. Estimated completion is 2026-12-31.
What conditions does trial NCT01694940 study?
This clinical trial studies the following conditions: Mitochondrial Diseases, Mitochondrial Disorders, Mitochondrial Genetic Disorders, Disorder of Mitochondrial Respiratory Chain Complexes, Deletion and Duplication of Mitochondrial DNA.
Who is sponsoring clinical trial NCT01694940?
This trial is sponsored by Columbia University, which has 958 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT01694940 being conducted?
This trial has 17 study locations across California, Colorado, District of Columbia, Florida, Massachusetts. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
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