Medical Information Only. Consult your healthcare provider before considering clinical trial enrollment.
Cornelia de Lange Syndrome clinical trials
2 of 2 indexed Cornelia de Lange Syndrome trials are currently recruiting.
Corpus placement: #7,188 of 28,707 conditions by registered trial count.
2 US clinical trials · 2 currently recruiting · #7,188 of 28,707 conditions by registered trial count
Cornelia de Lange Syndrome: 2 US clinical trials tracked, 2 recruiting.
Cornelia de Lange Syndrome is the subject of 2 registered US clinical trials on ClinicalTrials.gov, 2 of them currently open to new participants. The most active sponsor is Hugo W. Moser Research Institute at Kennedy Krieger, running 1 of these trials.
Enrollment posture brief
Registry condition cornelia-de-lange-syndrome
OPEN 2 | RECR 100% | LATE 0 | EARLY 0 | RANK #7188 | SPON 1
Volume-matched condition peers
Nearest open-share peer: Aortic Arch Aneurysm (100% recruiting · 5 trials)
Cornelia de Lange Syndrome lists 2 open slots (100% of 2 indexed trials). Peers are matched on registered volume, not therapeutic-area browse lists. How peer matching works →
Key findings
What ClinicalTrials.gov does not surface for Cornelia de Lange Syndrome on its own pages , computed from the registry mirror as of 2026-08-08. Each line carries its own denominator so it can be quoted as it stands.
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Cornelia de Lange Syndrome is recruiting above its size-band peers.
2 of 2 indexed trials (100%) are open to enrollment, against a 46.5% average across 27,806 conditions with fewer than 20 trials. The peer set uses the same ClinicalTrials.gov-derived counts as this page.
Open and recent trials
2 total, page 1 of 1
Rare Disease Patient Registry & Natural History Study - Coordination of Rare Diseases at Sanford
Sanford Health
NCT01793168
Behavioral Assessment and Treatment of Problem Behavior in Children With Cornelia de Lange Syndrome
Hugo W. Moser Research Institute at Kennedy Krieger
NCT05829668
Phase Distribution
Phase data not available
Top Sponsors
Named interventions
Most-linked intervention names on Cornelia de Lange Syndrome records (sponsor-reported on ClinicalTrials.gov). Counts are trial links, not unique products.
US sites by state
Facility locations filed on Cornelia de Lange Syndrome trials. A trial with sites in several states counts in each.
Source: ClinicalTrials.gov, National Library of Medicine. Data is informational only.
Related
What to do with this Cornelia de Lange Syndrome page
2 registered trials, 2 currently recruiting, is a starting point for a conversation, not a diagnosis or a recommendation.
- 2 Cornelia de Lange Syndrome trials are currently recruiting, check eligibility criteria before contacting a site. Browse recruiting trials
- Hugo W. Moser Research Institute at Kennedy Krieger sponsors the most Cornelia de Lange Syndrome trials on record, review their full trial history before evaluating a specific study. See Hugo W. Moser Research Institute at Kennedy Krieger's trials
- Bring the specific trial ID (NCT number) to your own doctor before enrolling, this page is a directory, not medical guidance. Read the trial-finding guide
Trial and recruiting counts reflect ClinicalTrials.gov registry status as of the data vintage above; individual trial eligibility and enrollment status can change.
Every figure on PlainTrial is rendered directly from the ClinicalTrials.gov registry, no number is typed in by an editor. This Cornelia de Lange Syndrome condition card totals 2 registered trials; most-linked intervention ABA-based functional analysis and treatment; top US site state South Dakota. See our editorial standards & corrections policy, the methodology behind these numbers, the data changelog, or report a data error.