Medical Information Only. Always consult your healthcare provider before enrolling in any clinical trial.
NCT01793168 · ClinicalTrials.gov registry record
Rare Disease Patient Registry & Natural History Study - Coordination of Rare Diseases at Sanford
A clinical trial of Rare Disorders and Cornelia de Lange Syndrome, sponsored by Sanford Health.
- Recruiting
- Registry status
- 20,000
- Enrollment target
- 2
- Study locations
NCT01793168 is a study of Rare Disorders and Cornelia de Lange Syndrome that is actively recruiting participants, run by Sanford Health. The registered enrollment target is 20,000 participants. The trial reports 2 study locations across 2 states.
The verdict
NCT01793168, a study of Rare Disorders and Cornelia de Lange Syndrome, is actively recruiting participants, sponsored by Sanford Health.
- RECRUITING
- Registry status
- 20,000 participants
- Enrollment target
- 2
- Study locations
Study Summary
CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access. Visit sanfordresearch.org/CoRDS to enroll.
Conditions Studied
Study Locations (2)
South Dakota
- Sanford Health - Sioux Falls
Other
- Online Patient Enrollment System - Sydney
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 20,000 participants |
| Start Date | 2010-07 |
| Est. Completion | 2100-12 |
Interested in This Trial?
Full Details on ClinicalTrials.gov ↗What the Registry Record Tells You About NCT01793168
The ClinicalTrials.gov registry entry for NCT01793168 describes a study currently listed as recruiting, categorized as an unspecified phase. The registered enrollment target is 20,000 participants, a figure that helps gauge the scale of data the investigators plan to collect. The listed sponsor is Sanford Health, which has 34 total studies on file at ClinicalTrials.gov.
The record links to 10 conditions, with Rare Disorders appearing as the primary indexed condition, and to 0 interventions.
NCT01793168 reports 2 study locations spanning 2 distinct geographic areas - top geographies include South Dakota, Other.
Frequently Asked Questions
What is clinical trial NCT01793168 about?
NCT01793168 is a clinical study titled "Rare Disease Patient Registry & Natural History Study - Coordination of Rare Diseases at Sanford". CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help a...
What is the current status of trial NCT01793168?
This trial is currently recruiting. The enrollment target is 20,000 participants. The study started on 2010-07. Estimated completion is 2100-12.
What conditions does trial NCT01793168 study?
This clinical trial studies the following conditions: Rare Disorders, Cornelia de Lange Syndrome, Undiagnosed Disorders, Disorders of Unknown Prevalence, Prenatal Benign Hypophosphatasia.
Who is sponsoring clinical trial NCT01793168?
This trial is sponsored by Sanford Health, which has 34 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT01793168 being conducted?
This trial has 2 study locations across South Dakota. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
Learn More About Clinical Trials
Similar trials for Rare Disorders
Matched on the same primary condition, ranked to surface studies in the same phase first, then by recruiting status, no relevance scoring or editorial curation.
Explore more on PlainTrial
Read our methodology - how this data is sourced, computed, and verified.
Related
Every figure on PlainTrial is rendered directly from the ClinicalTrials.gov registry, no number is typed in by an editor. This page mirrors this trial's own ClinicalTrials.gov registry record, live from the dataset. See our editorial standards & corrections policy, the methodology behind these numbers, or report a data error.