Medical Information Only. Always consult your healthcare provider before enrolling in any clinical trial.
NCT01793168 · ClinicalTrials.gov registry record
Rare Disease Patient Registry & Natural History Study - Coordination of Rare Diseases at Sanford
A clinical trial of Rare Disorders and Cornelia de Lange Syndrome, sponsored by Sanford Health.
- Recruiting
- Registry status
- 20,000
- Enrollment target
- 2
- Study locations
NCT01793168: Recruiting study of Rare Disorders and Cornelia de Lange Syndrome, sponsored by Sanford Health.
NCT01793168 is a study of Rare Disorders and Cornelia de Lange Syndrome that is actively recruiting participants, run by Sanford Health. The registered enrollment target is 20,000 participants. The trial reports 2 study locations across 2 states. According to ClinicalTrials.gov, the official US trial registry.
The verdict
NCT01793168, a study of Rare Disorders and Cornelia de Lange Syndrome, is actively recruiting participants, sponsored by Sanford Health.
- RECRUITING
- Registry status
- 20,000 participants
- Enrollment target
- 2
- Study locations
Study Summary
CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access. Visit sanfordresearch.org/CoRDS to enroll.
Conditions Studied
Study Locations (2)
South Dakota
- Sanford Health - Sioux Falls
Other
- Online Patient Enrollment System - Sydney
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 20,000 participants |
| Start Date | 2010-07 |
| Est. Completion | 2100-12 |
What NCT01793168 shows while recruiting
NCT01793168 is an observational study that tracks outcomes without assigning an intervention. Its 20,000 participants enrollment target places it among the larger protocols in the corpus.
The record links to 10 conditions, with Rare Disorders appearing as the primary indexed condition, and to 0 interventions.
NCT01793168 reports a single indexed study location in South Dakota, Other.
Frequently Asked Questions
What is clinical trial NCT01793168 about?
NCT01793168 is a clinical study titled "Rare Disease Patient Registry & Natural History Study - Coordination of Rare Diseases at Sanford". CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help a...
What is the current status of trial NCT01793168?
This trial is currently recruiting. The enrollment target is 20,000 participants. The study started on 2010-07. Estimated completion is 2100-12.
What conditions does trial NCT01793168 study?
This clinical trial studies the following conditions: Rare Disorders, Cornelia de Lange Syndrome, Undiagnosed Disorders, Disorders of Unknown Prevalence, Prenatal Benign Hypophosphatasia.
Who is sponsoring clinical trial NCT01793168?
This trial is sponsored by Sanford Health, which has 34 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT01793168 being conducted?
This trial has 2 study locations across South Dakota. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
Learn More About Clinical Trials
Similar trials for Rare Disorders
Matched on the same primary condition, ranked to surface studies in the same phase first, then by recruiting status, no relevance scoring or editorial curation.
Nationwide trials with similar profiles
Cross-condition peers matched on enrollment target and registry start date, not the same-condition list above.
Similar enrollment target
- NCT00271180 · 20,000 participants
Product Performance Report: Evaluate Long-term Reliability & Performance of Medtronic Marketed Cardiac Therapy Products
- NCT00830557 · 20,000 participants
Collecting Medical Information and Tissue Samples From Patients With Pancreatic Cancer or Other Pancreatic Disorders
- NCT00900471 · 20,000 participants
Collection and Storage of Tissue Samples From Patients Undergoing Surgery For Suspected Solid Tumors
- NCT02735707 · 20,000 participants · Phase 3
Randomized, Embedded, Multifactorial Adaptive Platform Trial for Community- Acquired Pneumonia
Similar registry start date
- NCT05988463 · started 2027-01-01 · Phase 1
Dose-Escalation Study of Artesunate Patients With IPF
- NCT07219706 · started 2026-12-10 · NA
Dietary Fiber and Time Restricted Eating
- NCT02831335 · started 2026-12-01
Technical Development of Multi-Parametric Renocerebral MRI
- NCT05962346 · started 2026-12 · NA
Fetal Endoscopic Tracheal Occlusion for Congenital Diaphragmatic Hernia