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NCT06847282 · ClinicalTrials.gov registry record
Motor Outcomes to Validate Evaluations in Pediatric FSHD (MOVE Peds)
A clinical trial of Muscular Dystrophy, Facioscapulohumeral, sponsored by University of Kansas Medical Center.
- Recruiting
- Registry status
- 80
- Enrollment target
- 7
- Study locations
NCT06847282: Recruiting study of Muscular Dystrophy, Facioscapulohumeral, sponsored by University of Kansas Medical Center.
NCT06847282 is a study of Muscular Dystrophy, Facioscapulohumeral that is actively recruiting participants, run by University of Kansas Medical Center. The registered enrollment target is 80 participants. The trial reports 7 study locations across 7 states. According to ClinicalTrials.gov, the official US trial registry.
The verdict
NCT06847282, a study of Muscular Dystrophy, Facioscapulohumeral, is actively recruiting participants, sponsored by University of Kansas Medical Center.
- RECRUITING
- Registry status
- 80 participants
- Enrollment target
- 7
- Study locations
Study Summary
The primary goal of this study is to validate motor and functional outcomes and refine clinical trial strategies for pediatric-onset FSHD
Primary Outcome
Investigators will collect the FSH-Composite outcome measure for children and adolescents. This measure assesses multiple body regions identified as important by patients, including leg function, shoulder and arm function, trunk function, hand function, and functional balance. The FSHD-COM Peds has been modified to include lighter weights for shoulder abduction and flexion, as well as elbow flexion, to accommodate the motor development and lower strength levels seen in children. Although the FSH
Conditions Studied
Study Locations (7)
California
- Stanford University - Palo Alto
Iowa
- University of Iowa - Iowa City
Kansas
- University of Kansas Medical Center - Kansas City
New York
- University of Rochester - Rochester
North Carolina
- Duke University - Durham
Utah
- University of Utah - Salt Lake City
Other
- Murdoch Children's Research Institute - Melbourne
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 80 participants |
| Start Date | 2025-05-22 |
| Est. Completion | 2028-05 |
What NCT06847282 shows while recruiting
NCT06847282 is an observational study that tracks outcomes without assigning an intervention. The registry caps enrollment at 80 participants, a relatively small participant target.
The record links to 1 condition, with Muscular Dystrophy, Facioscapulohumeral appearing as the primary indexed condition, and to 0 interventions.
NCT06847282 lists 7 locations in 7 states (California, Iowa, Kansas).
Frequently Asked Questions
What is clinical trial NCT06847282 about?
NCT06847282 is a clinical study titled "Motor Outcomes to Validate Evaluations in Pediatric FSHD (MOVE Peds)". The primary goal of this study is to validate motor and functional outcomes and refine clinical trial strategies for pediatric-onset FSHD
What is the current status of trial NCT06847282?
This trial is currently recruiting. The enrollment target is 80 participants. The study started on 2025-05-22. Estimated completion is 2028-05.
What conditions does trial NCT06847282 study?
This clinical trial studies the following conditions: Muscular Dystrophy, Facioscapulohumeral.
Who is sponsoring clinical trial NCT06847282?
This trial is sponsored by University of Kansas Medical Center, which has 408 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT06847282 being conducted?
This trial has 7 study locations across California, Iowa, Kansas, New York, North Carolina. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
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