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NCT05902351 · ClinicalTrials.gov registry record
Natural History Study for Charcot Marie Tooth Disease
A clinical trial of Charcot Marie Tooth Disease and Charcot-Marie-Tooth, sponsored by Hereditary Neuropathy Foundation.
- Recruiting
- Registry status
- 10,000
- Enrollment target
- 1
- Study location
NCT05902351 is a study of Charcot Marie Tooth Disease and Charcot-Marie-Tooth that is actively recruiting participants, run by Hereditary Neuropathy Foundation. The registered enrollment target is 10,000 participants, above the 937-participant average among 7 other Charcot Marie Tooth Disease trials with a reported enrollment target (967% higher). The trial reports 1 study location across 1 state.
The verdict
NCT05902351, a study of Charcot Marie Tooth Disease and Charcot-Marie-Tooth, is actively recruiting participants, sponsored by Hereditary Neuropathy Foundation.
- RECRUITING
- Registry status
- 10,000 participants
- Enrollment target
- 1
- Study location
Study Summary
The goal of this Natural History Study for Charcot-Marie-Tooth is to acquire, record, and analyze patient-reported data and associated genetic reports, Electronic Health Records (EHRs) and clinical notes to identify the burden, diagnostic journey, and prevalence of disease that will aid scientists in their work toward finding a cure. Participants will be asked to complete a Natural History Survey.
Conditions Studied
Study Locations (1)
New York
- Hereditary Neuropathy Foundation - New York
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 10,000 participants |
| Start Date | 2013-11-01 |
| Est. Completion | 2029-12-31 |
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Full Details on ClinicalTrials.gov ↗What the Registry Record Tells You About NCT05902351
The ClinicalTrials.gov registry entry for NCT05902351 describes a study currently listed as recruiting, categorized as an unspecified phase. The registered enrollment target is 10,000 participants, a figure that helps gauge the scale of data the investigators plan to collect, above the 937-participant average among 7 other Charcot Marie Tooth Disease trials with a reported enrollment target (967% higher). The listed sponsor is Hereditary Neuropathy Foundation, which has 1 total studies on file at ClinicalTrials.gov.
The record links to 10 conditions, with Charcot Marie Tooth Disease appearing as the primary indexed condition, and to 0 interventions.
NCT05902351 reports 1 study location spanning 1 distinct geographic area - top geographies include New York.
Frequently Asked Questions
What is clinical trial NCT05902351 about?
NCT05902351 is a clinical study titled "Natural History Study for Charcot Marie Tooth Disease". The goal of this Natural History Study for Charcot-Marie-Tooth is to acquire, record, and analyze patient-reported data and associated genetic reports, Electronic Health Records (EHRs) and clinical notes to identify the burden, diagnostic journey, and prevalence of disease that will aid scientists i...
What is the current status of trial NCT05902351?
This trial is currently recruiting. The enrollment target is 10,000 participants. The study started on 2013-11-01. Estimated completion is 2029-12-31.
What conditions does trial NCT05902351 study?
This clinical trial studies the following conditions: Charcot Marie Tooth Disease, Charcot-Marie-Tooth, Charcot-Marie-Tooth Disease, Type IA, Charcot-Marie-Tooth Disease Type 2A, Charcot-Marie-Tooth Disease Type 2.
Who is sponsoring clinical trial NCT05902351?
This trial is sponsored by Hereditary Neuropathy Foundation, which has 1 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT05902351 being conducted?
This trial has 1 study location across New York. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
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Related
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