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Prospective Multisite Study of Quality of Life in Pediatric Intestinal Failure
NCT04629014 · View on ClinicalTrials.gov ↗
Study Summary
This study proposes to quantify and describe the quality of life of children with intestinal failure, and to identify the medical and socio-economic factors that impact this quality of life, using data from multiple multidisciplinary intestinal failure centers across the United States and Canada specializing in the care of these participants.
Conditions Studied
Study Locations (14)
Texas
- Dallas Children's Hospital — Dallas
- UT Health Houston — Houston
Alabama
- Children's of Alabama — Birmingham
Colorado
- Children's Hospital Colorado — Aurora
Connecticut
- Connecticut Children's Medical Center — Hartford
Illinois
- Lurie Children's Hospital — Chicago
Massachusetts
- Boston Children's Hospital — Boston
Michigan
- C.S. Mott Children's Hospital — Ann Arbor
Missouri
- St. Louis Children's Hospital — St Louis
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 750 participants |
| Start Date | 2020-02-27 |
| Est. Completion | 2029-12 |
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Full Details on ClinicalTrials.gov ↗What the Registry Record Tells You About NCT04629014
The ClinicalTrials.gov registry entry for NCT04629014 describes a study currently listed as recruiting. It is categorized as an unspecified phase, which is the standard way researchers label where a study sits along the investigational pathway from early safety work through later efficacy and post-marketing evaluation. The registered enrollment target is 750 participants, a figure that helps gauge the scale of data the investigators plan to collect. The listed sponsor is Boston Children's Hospital, which has 752 total studies on file at ClinicalTrials.gov, and sponsors are the parties responsible for study design, oversight, and regulatory filings.
The record links to 1 condition, with Pediatric Intestinal Failure appearing as the primary indexed condition, and to 0 interventions. Interventions can include drugs, devices, procedures, behavioral programs, or observational arms, and each is tracked as a separate registry field so that downstream queries can filter accurately. When a trial lists multiple interventions, it usually reflects a multi-arm design or a comparison protocol rather than a single treatment being tested in isolation. The brief summary published in the registry is the clearest source of protocol intent and should be read before drawing conclusions from any sidebar tags.
Geographic footprint matters for practical reasons: NCT04629014 reports 14 study locations spanning 13 distinct geographic areas — top geographies include Texas, Alabama, Colorado. A larger site network tends to correlate with broader recruitment capacity, but it does not imply anything about study quality, and site-level enrollment status can diverge from the overall registry status shown above. Every data point on this page comes from the public ClinicalTrials.gov dataset and is reproduced here for reference only; it is not a medical recommendation, an endorsement of the sponsor, or an invitation to enroll. Verify current status, eligibility criteria, and contact details directly at ClinicalTrials.gov, and discuss any participation decision with your own healthcare provider.
Frequently Asked Questions
What is clinical trial NCT04629014 about?
NCT04629014 is a clinical study titled "Prospective Multisite Study of Quality of Life in Pediatric Intestinal Failure". This study proposes to quantify and describe the quality of life of children with intestinal failure, and to identify the medical and socio-economic factors that impact this quality of life, using data from multiple multidisciplinary intestinal failure centers across the United States and Canada spe...
What is the current status of trial NCT04629014?
This trial is currently recruiting. The enrollment target is 750 participants. The study started on 2020-02-27. Estimated completion is 2029-12.
What conditions does trial NCT04629014 study?
This clinical trial studies the following conditions: Pediatric Intestinal Failure. These conditions were identified from the trial registry and reflect the primary focus areas of the research.
Who is sponsoring clinical trial NCT04629014?
This trial is sponsored by Boston Children's Hospital, which has 752 total clinical trials registered on ClinicalTrials.gov. The sponsor is responsible for the study's design, funding, and regulatory compliance.
Where is trial NCT04629014 being conducted?
This trial has 14 study locations across Alabama, Colorado, Connecticut, Illinois, Massachusetts. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
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