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Pulmonary Hypertension Association Registry
NCT04071327 · View on ClinicalTrials.gov ↗
Study Summary
The PHA Registry (PHAR) is a national study about people who have pulmonary arterial hypertension (PAH) and chronic thromboembolic pulmonary hypertension (CTEPH). PHAR collects information from people with PAH and CTEPH who are cared for in participating PHA-accredited Pulmonary Hypertension Care Centers throughout the U.S. PHAR will determine how people with PAH and CTEPH are evaluated, tested, and treated, and will observe how well these participants do. The goal is to see if people with PH are treated according to recommended guidelines, and to see if there are certain factors that can lead to better or worse outcomes. PHAR will include information about people with PAH and CTEPH in the U.S. who are seen at participating PHA-accredited PH Care Centers. PHAR contains data about patient care and outcomes. Specifically, data in the PHAR includes information on diagnosis; clinical status; socioeconomic status; diagnosis test results; body size; treatment information; interest in participating in clinical trials; family health and social history; and information about smoking, alcohol, or drug use. Participants are followed over time, and provide updates such as changes in therapy, how often participants need to go to the hospital, and survival. Such information may help healthcare providers provide better care.
Conditions Studied
Study Locations (20)
California
- UC Davis Health — Sacramento
- UCSF Medical Center — San Francisco
- UCSF Benioff Children's Hospital — San Francisco
- Cottage Health System - Santa Barbara Pulmonary Associates — Santa Barbara
- Stanford University — Stanford
Colorado
- Children's Hospital Colorado — Aurora
- UC Health - Anschutz Medical Campus — Aurora
Louisiana
- Ochsner Medical Center — Jefferson
- LSU Healthcare Network Clinic — New Orleans
Maryland
- University of MD Medical Group, PA — Baltimore
- Johns Hopkins University — Baltimore
Arizona
- Arizona Pulmonary Specialists, Ltd. — Phoenix
Connecticut
- University of Connecticut Health — Farmington
Florida
- Mayo Clinic Florida — Jacksonville
Georgia
- Northside Hospital — Atlanta
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 3,000 participants |
| Start Date | 2015-10 |
| Est. Completion | 2025-12 |
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Full Details on ClinicalTrials.gov ↗What the Registry Record Tells You About NCT04071327
The ClinicalTrials.gov registry entry for NCT04071327 describes a study currently listed as recruiting. It is categorized as an unspecified phase, which is the standard way researchers label where a study sits along the investigational pathway from early safety work through later efficacy and post-marketing evaluation. The registered enrollment target is 3,000 participants, a figure that helps gauge the scale of data the investigators plan to collect. The listed sponsor is Pulmonary Hypertension Association, which has 1 total studies on file at ClinicalTrials.gov, and sponsors are the parties responsible for study design, oversight, and regulatory filings.
The record links to 3 conditions, with Pulmonary Hypertension appearing as the primary indexed condition, and to 0 interventions. Interventions can include drugs, devices, procedures, behavioral programs, or observational arms, and each is tracked as a separate registry field so that downstream queries can filter accurately. When a trial lists multiple interventions, it usually reflects a multi-arm design or a comparison protocol rather than a single treatment being tested in isolation. The brief summary published in the registry is the clearest source of protocol intent and should be read before drawing conclusions from any sidebar tags.
Geographic footprint matters for practical reasons: NCT04071327 reports 20 study locations spanning 13 distinct geographic areas — top geographies include California, Colorado, Louisiana. A larger site network tends to correlate with broader recruitment capacity, but it does not imply anything about study quality, and site-level enrollment status can diverge from the overall registry status shown above. Every data point on this page comes from the public ClinicalTrials.gov dataset and is reproduced here for reference only; it is not a medical recommendation, an endorsement of the sponsor, or an invitation to enroll. Verify current status, eligibility criteria, and contact details directly at ClinicalTrials.gov, and discuss any participation decision with your own healthcare provider.
Frequently Asked Questions
What is clinical trial NCT04071327 about?
NCT04071327 is a clinical study titled "Pulmonary Hypertension Association Registry". The PHA Registry (PHAR) is a national study about people who have pulmonary arterial hypertension (PAH) and chronic thromboembolic pulmonary hypertension (CTEPH). PHAR collects information from people with PAH and CTEPH who are cared for in participating PHA-accredited Pulmonary Hypertension Care Ce...
What is the current status of trial NCT04071327?
This trial is currently recruiting. The enrollment target is 3,000 participants. The study started on 2015-10. Estimated completion is 2025-12.
What conditions does trial NCT04071327 study?
This clinical trial studies the following conditions: Pulmonary Hypertension, Pulmonary Arterial Hypertension, Chronic Thromboembolic Pulmonary Hypertension. These conditions were identified from the trial registry and reflect the primary focus areas of the research.
Who is sponsoring clinical trial NCT04071327?
This trial is sponsored by Pulmonary Hypertension Association, which has 1 total clinical trials registered on ClinicalTrials.gov. The sponsor is responsible for the study's design, funding, and regulatory compliance.
Where is trial NCT04071327 being conducted?
This trial has 20 study locations across Arizona, California, Colorado, Connecticut, Florida. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
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