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NCT03813667 · ClinicalTrials.gov registry record · NA
Palliative Care Coaching for Families With Rare Advanced Lung Diseases
A NA study of Lung Diseases and Rare Non-Neoplastic Disorder, sponsored by West Virginia University.
- Completed
- Registry status
- NA
- Development phase
- 35
- Enrollment target
- 1
- Study location
NCT03813667: Completed NA study of Lung Diseases and Rare Non-Neoplastic Disorder, sponsored by West Virginia University.
NCT03813667 is a NA study of Lung Diseases and Rare Non-Neoplastic Disorder that has completed, run by West Virginia University. The registered enrollment target is 35 participants, below the 738-participant average among 31 other Lung Diseases trials with a reported enrollment target (95% lower). The trial reports 1 study location across 1 state. According to ClinicalTrials.gov, the official US trial registry.
The verdict
NCT03813667, a NA study of Lung Diseases and Rare Non-Neoplastic Disorder, has completed, sponsored by West Virginia University.
- COMPLETED
- Registry status
- NA
- Development phase
- 35 participants
- Enrollment target
- 1
- Study location
Study Summary
With one of the highest incidences of lung disease deaths in the nation, there is great need for home end-of-life palliative care in the rural, disadvantaged communities of West Virginia. The aims of this proposed study are to: (1) pilot test the nursing care intervention with patients and family members managing home supportive EOLPC for rare advanced lung disease and (2) collect research data to report in the NIH resubmission and future trials.
Primary Outcome
The intervention group R-ALD patients will report lower scores on breathlessness scale compared to control group patients at 3 months. Breathlessness is measured by Self-report shortness of breath scale (1 item, 0-10; 0-no shortness of breath, 10 = shortness of breath as bad as can be) (Gift, Narsavage, 1998
Conditions Studied
Interventions
- BEHAVIORAL Intervention FamPALcare
Study Locations (1)
West Virginia
- West Virginia University Hospital - Morgantown
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 35 participants |
| Start Date | 2018-11-01 |
| Est. Completion | 2019-09-30 |
| Phase | NA |
What the finished NCT03813667 record still lists
NCT03813667 is an interventional study that assigns participants to a tested intervention. The registry caps enrollment at 35 participants, a relatively small participant target, below the 738-participant average among 31 other Lung Diseases trials with a reported enrollment target (95% lower).
The record links to 2 conditions, with Lung Diseases appearing as the primary indexed condition, and to 1 intervention - of which Intervention FamPALcare is the first listed.
NCT03813667 reports a single indexed study location in West Virginia.
Frequently Asked Questions
What is clinical trial NCT03813667 about?
NCT03813667 is a clinical study titled "Palliative Care Coaching for Families With Rare Advanced Lung Diseases". With one of the highest incidences of lung disease deaths in the nation, there is great need for home end-of-life palliative care in the rural, disadvantaged communities of West Virginia. The aims of this proposed study are to: (1) pilot test the nursing care intervention with patients and family me...
What is the current status of trial NCT03813667?
This trial is currently completed. It is a NA study. The enrollment target is 35 participants. The study started on 2018-11-01. Estimated completion is 2019-09-30.
What conditions does trial NCT03813667 study?
This clinical trial studies the following conditions: Lung Diseases, Rare Non-Neoplastic Disorder.
What interventions are being tested in trial NCT03813667?
The interventions under investigation include: Intervention FamPALcare (BEHAVIORAL).
Who is sponsoring clinical trial NCT03813667?
This trial is sponsored by West Virginia University, which has 122 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT03813667 being conducted?
This trial has 1 study location across West Virginia. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
Learn More About Clinical Trials
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Matched on the same primary condition, ranked to surface studies in the same phase first, then by recruiting status, no relevance scoring or editorial curation.
Where NCT03813667's enrollment target sits among peer trials
35 29th of 31 higher than 3 of 31 other Lung Diseases trials
participants (enrollment target), bucketed by value
Each bar is a band; taller bars hold more other Lung Diseases trials. The dashed line + filled bar mark this entry. Hover or tap any bar for its full count and share, and where it sits relative to this entry.
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