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NCT02435940 · ClinicalTrials.gov registry record
Inherited Retinal Degenerative Disease Registry
A clinical trial of Retinal Disease and Batten Disease, sponsored by Foundation Fighting Blindness.
- Recruiting
- Registry status
- 20,000
- Enrollment target
- 1
- Study location
NCT02435940 is a study of Retinal Disease and Batten Disease that is actively recruiting participants, run by Foundation Fighting Blindness. The registered enrollment target is 20,000 participants, above the 189-participant average among 19 other Retinal Disease trials with a reported enrollment target (10482% higher). The trial reports 1 study location across 1 state.
The verdict
NCT02435940, a study of Retinal Disease and Batten Disease, is actively recruiting participants, sponsored by Foundation Fighting Blindness.
- RECRUITING
- Registry status
- 20,000 participants
- Enrollment target
- 1
- Study location
Study Summary
The My Retina Tracker® Registry is sponsored by the Foundation Fighting Blindness and is for people affected by one of the rare inherited retinal degenerative diseases studied by the Foundation. It is a patient-initiated registry accessible via a secure on-line portal at www.MyRetinaTracker.org. Affected individuals who register are guided to create a profile that captures their perspective on their retinal disease and its progress; family history; genetic testing results; preventive measures; general health and interest in participation in research studies. The participants may also choose to ask their clinician to add clinical measurements and results at each clinical visit. Participants are urged to update the information regularly to create longitudinal records of their disease, from their own perspective, and their clinical progress. The overall goals of the Registry are: to better understand the diversity within the inherited retinal degenerative diseases; to understand the prevalence of the different diseases and gene variants; to assist in the establishment of genotype-phenotype relationships; to help understand the natural history of the diseases; to help accelerate research and development of clinical trials for treatments; and to provide a tool to investigators that can assist with recruitment for research studies and clinical trials.
Conditions Studied
Study Locations (1)
Maryland
- Foundation Fighting Blindness - Columbia
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 20,000 participants |
| Start Date | 2014-06 |
| Est. Completion | 2037-06 |
Interested in This Trial?
Full Details on ClinicalTrials.gov ↗What the Registry Record Tells You About NCT02435940
The ClinicalTrials.gov registry entry for NCT02435940 describes a study currently listed as recruiting, categorized as an unspecified phase. The registered enrollment target is 20,000 participants, a figure that helps gauge the scale of data the investigators plan to collect, above the 189-participant average among 19 other Retinal Disease trials with a reported enrollment target (10482% higher). The listed sponsor is Foundation Fighting Blindness, which has 3 total studies on file at ClinicalTrials.gov.
The record links to 10 conditions, with Retinal Disease appearing as the primary indexed condition, and to 0 interventions.
NCT02435940 reports 1 study location spanning 1 distinct geographic area - top geographies include Maryland.
Frequently Asked Questions
What is clinical trial NCT02435940 about?
NCT02435940 is a clinical study titled "Inherited Retinal Degenerative Disease Registry". The My Retina Tracker® Registry is sponsored by the Foundation Fighting Blindness and is for people affected by one of the rare inherited retinal degenerative diseases studied by the Foundation. It is a patient-initiated registry accessible via a secure on-line portal at www.MyRetinaTracker.org. Aff...
What is the current status of trial NCT02435940?
This trial is currently recruiting. The enrollment target is 20,000 participants. The study started on 2014-06. Estimated completion is 2037-06.
What conditions does trial NCT02435940 study?
This clinical trial studies the following conditions: Retinal Disease, Batten Disease, Eye Diseases, Hereditary, Choroideremia, Achromatopsia.
Who is sponsoring clinical trial NCT02435940?
This trial is sponsored by Foundation Fighting Blindness, which has 3 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT02435940 being conducted?
This trial has 1 study location across Maryland. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
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Read our methodology - how this data is sourced, computed, and verified.
Related
Every figure on PlainTrial is rendered directly from the ClinicalTrials.gov registry, no number is typed in by an editor. This page mirrors this trial's own ClinicalTrials.gov registry record, live from the dataset. See our editorial standards & corrections policy, the methodology behind these numbers, or report a data error.