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NCT02435940 · ClinicalTrials.gov registry record

Inherited Retinal Degenerative Disease Registry

A clinical trial of Retinal Disease and Batten Disease, sponsored by Foundation Fighting Blindness.

Recruiting
Registry status
20,000
Enrollment target
1
Study location

NCT02435940: Recruiting study of Retinal Disease and Batten Disease, sponsored by Foundation Fighting Blindness.

NCT02435940 is a study of Retinal Disease and Batten Disease that is actively recruiting participants, run by Foundation Fighting Blindness. The registered enrollment target is 20,000 participants, above the 189-participant average among 19 other Retinal Disease trials with a reported enrollment target (10482% higher). The trial reports 1 study location across 1 state. According to ClinicalTrials.gov, the official US trial registry.

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The verdict

NCT02435940, a study of Retinal Disease and Batten Disease, is actively recruiting participants, sponsored by Foundation Fighting Blindness.

RECRUITING
Registry status
20,000 participants
Enrollment target
1
Study location

Study Summary

The My Retina Tracker® Registry is sponsored by the Foundation Fighting Blindness and is for people affected by one of the rare inherited retinal degenerative diseases studied by the Foundation. It is a patient-initiated registry accessible via a secure on-line portal at www.MyRetinaTracker.org. Affected individuals who register are guided to create a profile that captures their perspective on their retinal disease and its progress; family history; genetic testing results; preventive measures; general health and interest in participation in research studies. The participants may also choose to ask their clinician to add clinical measurements and results at each clinical visit. Participants are urged to update the information regularly to create longitudinal records of their disease, from their own perspective, and their clinical progress. The overall goals of the Registry are: to better understand the diversity within the inherited retinal degenerative diseases; to understand the prevalence of the different diseases and gene variants; to assist in the establishment of genotype-phenotype relationships; to help understand the natural history of the diseases; to help accelerate research and development of clinical trials for treatments; and to provide a tool to investigators that can assist with recruitment for research studies and clinical trials.

Primary Outcome

Participant profiles broken out by disease category and genetic diagnosis

Conditions Studied

Retinal Disease Batten Disease Eye Diseases, Hereditary Choroideremia Achromatopsia Bardet-Biedl Syndrome Best Disease Cone Dystrophy Bassen-Kornzweig Syndrome Choroidal Dystrophy

Study Locations (1)

Maryland

  • Foundation Fighting Blindness - Columbia

Trial Details

FieldValue
Enrollment Target 20,000 participants
Start Date 2014-06
Est. Completion 2037-06
Foundation Fighting Blindness

3 total trials

What NCT02435940 shows while recruiting

NCT02435940 is an observational study that tracks outcomes without assigning an intervention. Its 20,000 participants enrollment target places it among the larger protocols in the corpus, above the 189-participant average among 19 other Retinal Disease trials with a reported enrollment target (10482% higher).

The record links to 10 conditions, with Retinal Disease appearing as the primary indexed condition, and to 0 interventions.

NCT02435940 reports a single indexed study location in Maryland.

Frequently Asked Questions

What is clinical trial NCT02435940 about?

NCT02435940 is a clinical study titled "Inherited Retinal Degenerative Disease Registry". The My Retina Tracker® Registry is sponsored by the Foundation Fighting Blindness and is for people affected by one of the rare inherited retinal degenerative diseases studied by the Foundation. It is a patient-initiated registry accessible via a secure on-line portal at www.MyRetinaTracker.org. Aff...

What is the current status of trial NCT02435940?

This trial is currently recruiting. The enrollment target is 20,000 participants. The study started on 2014-06. Estimated completion is 2037-06.

What conditions does trial NCT02435940 study?

This clinical trial studies the following conditions: Retinal Disease, Batten Disease, Eye Diseases, Hereditary, Choroideremia, Achromatopsia.

Who is sponsoring clinical trial NCT02435940?

This trial is sponsored by Foundation Fighting Blindness, which has 3 total clinical trials registered on ClinicalTrials.gov.

Where is trial NCT02435940 being conducted?

This trial has 1 study location across Maryland. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.

Learn More About Clinical Trials

Similar trials for Retinal Disease

Matched on the same primary condition, ranked to surface studies in the same phase first, then by recruiting status, no relevance scoring or editorial curation.

Where NCT02435940's enrollment target sits among peer trials

20,000 1st of 19 higher than 19 of 19 other Retinal Disease trials

participants (enrollment target), bucketed by value

Each bar is a band; taller bars hold more other Retinal Disease trials. The dashed line + filled bar mark this entry. Hover or tap any bar for its full count and share, and where it sits relative to this entry.

Source ClinicalTrials.gov registry export · 2026-08-08

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More recruiting context for NCT02435940

Source: ClinicalTrials.gov NCT02435940, the US trial registry maintained by the National Library of Medicine. NCT02435940 (large enrollment · single site footprint · recruiting) retrieved and formatted by PlainTrial, see methodology.