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NCT02399527 · ClinicalTrials.gov registry record
Lymphatic Anomalies Registry for the Assessment of Outcome Data
A clinical trial of Klippel-Trenaunay Syndrome and Lymphatic Malformation, sponsored by Boston Children's Hospital.
- Recruiting
- Registry status
- 1,000
- Enrollment target
- 1
- Study location
NCT02399527: Recruiting study of Klippel-Trenaunay Syndrome and Lymphatic Malformation, sponsored by Boston Children's Hospital.
NCT02399527 is a study of Klippel-Trenaunay Syndrome and Lymphatic Malformation that is actively recruiting participants, run by Boston Children's Hospital. The registered enrollment target is 1,000 participants, above the 436-participant average among 3 other Klippel-Trenaunay Syndrome trials with a reported enrollment target (129% higher). The trial reports 1 study location across 1 state. According to ClinicalTrials.gov, the official US trial registry.
The verdict
NCT02399527, a study of Klippel-Trenaunay Syndrome and Lymphatic Malformation, is actively recruiting participants, sponsored by Boston Children's Hospital.
- RECRUITING
- Registry status
- 1,000 participants
- Enrollment target
- 1
- Study location
Study Summary
Lymphatic anomalies are a rare subset of vascular anomalies that are poorly understood. the understanding of the natural history, long-term outcomes, risk factors for morbidity and mortality, and the relative benefit of medical therapies and procedures is limited.The goal of this project is to better understand these diseases and improve the care of theses rare patients. To do this, the investigators are conducting an observational study of patients with lymphatic anomalies, including an annual follow-up questionnaire to gather prospective data on mortality, morbidity, treatments, and functionality as well as quality of life.
Conditions Studied
Study Locations (1)
Massachusetts
- Boston Children's Hospital - Boston
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 1,000 participants |
| Start Date | 2013-06 |
| Est. Completion | 2035-06 |
What NCT02399527 shows while recruiting
NCT02399527 is an observational study that tracks outcomes without assigning an intervention. Its 1,000 participants enrollment target places it among the larger protocols in the corpus, above the 436-participant average among 3 other Klippel-Trenaunay Syndrome trials with a reported enrollment target (129% higher).
The record links to 10 conditions, with Klippel-Trenaunay Syndrome appearing as the primary indexed condition, and to 0 interventions.
NCT02399527 reports a single indexed study location in Massachusetts.
Frequently Asked Questions
What is clinical trial NCT02399527 about?
NCT02399527 is a clinical study titled "Lymphatic Anomalies Registry for the Assessment of Outcome Data". Lymphatic anomalies are a rare subset of vascular anomalies that are poorly understood. the understanding of the natural history, long-term outcomes, risk factors for morbidity and mortality, and the relative benefit of medical therapies and procedures is limited.The goal of this project is to bette...
What is the current status of trial NCT02399527?
This trial is currently recruiting. The enrollment target is 1,000 participants. The study started on 2013-06. Estimated completion is 2035-06.
What conditions does trial NCT02399527 study?
This clinical trial studies the following conditions: Klippel-Trenaunay Syndrome, Lymphatic Malformation, CLOVES Syndrome, Blue Rubber Bleb Nevus Syndrome, Kaposiform Lymphangiomatosis.
Who is sponsoring clinical trial NCT02399527?
This trial is sponsored by Boston Children's Hospital, which has 462 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT02399527 being conducted?
This trial has 1 study location across Massachusetts. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
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