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NCT01953016 · ClinicalTrials.gov registry record
Participation in a Research Registry for Immune Disorders
A clinical trial, sponsored by National Human Genome Research Institute (NHGRI).
- Completed
- Registry status
- 716
- Enrollment target
NCT01953016 is a clinical trial that has completed, run by National Human Genome Research Institute (NHGRI). The registered enrollment target is 716 participants.
The verdict
NCT01953016 has completed, sponsored by National Human Genome Research Institute (NHGRI).
- COMPLETED
- Registry status
- 716 participants
- Enrollment target
Study Summary
Background: \- People with primary immune deficiency diseases (PIDD) have weak immune systems. This makes it hard for their bodies to fight infection. The Immune Deficiency Foundation has a network to collect data about people with PIDD. It is called the United States Immunodeficiency Network. It will help doctors and scientists better understand these disorders. The goal is to get medical data for everyone with these disorders in the U.S. and Canada. Data will be stored in a registry. Researchers can use it to study if these disorders are increasing. They can also learn how the disorders are diagnosed and treated. Objectives: \- To collect data on people with primary immune deficiency disorders. Eligibility: \- People who have a PIDD. Design: * Data can be added with no record of personal identity. * Data can be added with identity kept separate. This data will be linked to the registry by a code number. * Data for the registry includes: * Family history * Disease treatment * Disease characteristics * Medical history * Laboratory data
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 716 participants |
| Start Date | 2013-09-30 |
| Est. Completion | 2023-07-19 |
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Full Details on ClinicalTrials.gov ↗What the Registry Record Tells You About NCT01953016
The ClinicalTrials.gov registry entry for NCT01953016 describes a study currently listed as completed, categorized as an unspecified phase. The registered enrollment target is 716 participants, a figure that helps gauge the scale of data the investigators plan to collect. The listed sponsor is National Human Genome Research Institute (NHGRI), which has 185 total studies on file at ClinicalTrials.gov.
The record links to 0 conditions, and to 0 interventions.
NCT01953016 reports 0 study locations.
Frequently Asked Questions
What is clinical trial NCT01953016 about?
NCT01953016 is a clinical study titled "Participation in a Research Registry for Immune Disorders". Background: \- People with primary immune deficiency diseases (PIDD) have weak immune systems. This makes it hard for their bodies to fight infection. The Immune Deficiency Foundation has a network to collect data about people with PIDD. It is called the United States Immunodeficiency Network. It w...
What is the current status of trial NCT01953016?
This trial is currently completed. The enrollment target is 716 participants. The study started on 2013-09-30. Estimated completion is 2023-07-19.
Who is sponsoring clinical trial NCT01953016?
This trial is sponsored by National Human Genome Research Institute (NHGRI), which has 185 total clinical trials registered on ClinicalTrials.gov.
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