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NCT01950624 · ClinicalTrials.gov registry record
DS-Connect®: The Down Syndrome Registry
A clinical trial of Down Syndrome, sponsored by University of Colorado, Denver.
- Recruiting
- Registry status
- 100,000
- Enrollment target
- 1
- Study location
NCT01950624: Recruiting study of Down Syndrome, sponsored by University of Colorado, Denver.
NCT01950624 is a study of Down Syndrome that is actively recruiting participants, run by University of Colorado, Denver. The registered enrollment target is 100,000 participants, above the 620-participant average among 54 other Down Syndrome trials with a reported enrollment target (16029% higher). The trial reports 1 study location across 1 state. According to ClinicalTrials.gov, the official US trial registry.
The verdict
NCT01950624, a study of Down Syndrome, is actively recruiting participants, sponsored by University of Colorado, Denver.
- RECRUITING
- Registry status
- 100,000 participants
- Enrollment target
- 1
- Study location
Study Summary
The goal of this study is to develop a registry for Down syndrome (DS) to facilitate research participation by individuals with Down syndrome. DS-Connect® is an online survey tool designed to collect demographic data and health information from individuals with DS. It is open to all people with Down syndrome. The purposes of DS-Connect® are: 1. To identify the various phenotypic manifestations of DS. 2. To identify individuals with DS who may be eligible for research studies or new clinical trials, based on specific information about their diagnosis and health history.
Primary Outcome
Participants in DS-Connect® will complete health history surveys regarding medical diagnoses and can update the surveys annually or whenever their health changes.
Conditions Studied
Study Locations (1)
Colorado
- Linda Crnic Institute for Down Syndrome - Aurora
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 100,000 participants |
| Start Date | 2013-09-06 |
| Est. Completion | 2035-06 |
What NCT01950624 shows while recruiting
NCT01950624 is an observational study that tracks outcomes without assigning an intervention. Its 100,000 participants enrollment target places it among the larger protocols in the corpus, above the 620-participant average among 54 other Down Syndrome trials with a reported enrollment target (16029% higher).
The record links to 1 condition, with Down Syndrome appearing as the primary indexed condition, and to 0 interventions.
NCT01950624 reports a single indexed study location in Colorado.
Frequently Asked Questions
What is clinical trial NCT01950624 about?
NCT01950624 is a clinical study titled "DS-Connect®: The Down Syndrome Registry". The goal of this study is to develop a registry for Down syndrome (DS) to facilitate research participation by individuals with Down syndrome. DS-Connect® is an online survey tool designed to collect demographic data and health information from individuals with DS. It is open to all people with Dow...
What is the current status of trial NCT01950624?
This trial is currently recruiting. The enrollment target is 100,000 participants. The study started on 2013-09-06. Estimated completion is 2035-06.
What conditions does trial NCT01950624 study?
This clinical trial studies the following conditions: Down Syndrome.
Who is sponsoring clinical trial NCT01950624?
This trial is sponsored by University of Colorado, Denver, which has 1,283 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT01950624 being conducted?
This trial has 1 study location across Colorado. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
Learn More About Clinical Trials
Similar trials for Down Syndrome
Matched on the same primary condition, ranked to surface studies in the same phase first, then by recruiting status, no relevance scoring or editorial curation.
Where NCT01950624's enrollment target sits among peer trials
100,000 1st of 54 higher than 54 of 54 other Down Syndrome trials
participants (enrollment target), bucketed by value
Each bar is a band; taller bars hold more other Down Syndrome trials. The dashed line + filled bar mark this entry. Hover or tap any bar for its full count and share, and where it sits relative to this entry.
Source ClinicalTrials.gov registry export · 2026-08-08
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