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NCT01950624 · ClinicalTrials.gov registry record

DS-Connect®: The Down Syndrome Registry

A clinical trial of Down Syndrome, sponsored by University of Colorado, Denver.

Recruiting
Registry status
100,000
Enrollment target
1
Study location

NCT01950624 is a study of Down Syndrome that is actively recruiting participants, run by University of Colorado, Denver. The registered enrollment target is 100,000 participants, above the 620-participant average among 54 other Down Syndrome trials with a reported enrollment target (16029% higher). The trial reports 1 study location across 1 state.

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The verdict

NCT01950624, a study of Down Syndrome, is actively recruiting participants, sponsored by University of Colorado, Denver.

RECRUITING
Registry status
100,000 participants
Enrollment target
1
Study location

Study Summary

The goal of this study is to develop a registry for Down syndrome (DS) to facilitate research participation by individuals with Down syndrome. DS-Connect® is an online survey tool designed to collect demographic data and health information from individuals with DS. It is open to all people with Down syndrome. The purposes of DS-Connect® are: 1. To identify the various phenotypic manifestations of DS. 2. To identify individuals with DS who may be eligible for research studies or new clinical trials, based on specific information about their diagnosis and health history.

Conditions Studied

Down Syndrome

Study Locations (1)

Colorado

  • Linda Crnic Institute for Down Syndrome - Aurora

Trial Details

FieldValue
Enrollment Target 100,000 participants
Start Date 2013-09-06
Est. Completion 2035-06

Sponsor

University of Colorado, Denver

1,283 total trials

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What the Registry Record Tells You About NCT01950624

The ClinicalTrials.gov registry entry for NCT01950624 describes a study currently listed as recruiting, categorized as an unspecified phase. The registered enrollment target is 100,000 participants, a figure that helps gauge the scale of data the investigators plan to collect, above the 620-participant average among 54 other Down Syndrome trials with a reported enrollment target (16029% higher). The listed sponsor is University of Colorado, Denver, which has 1,283 total studies on file at ClinicalTrials.gov.

The record links to 1 condition, with Down Syndrome appearing as the primary indexed condition, and to 0 interventions.

NCT01950624 reports 1 study location spanning 1 distinct geographic area - top geographies include Colorado.

Frequently Asked Questions

What is clinical trial NCT01950624 about?

NCT01950624 is a clinical study titled "DS-Connect®: The Down Syndrome Registry". The goal of this study is to develop a registry for Down syndrome (DS) to facilitate research participation by individuals with Down syndrome. DS-Connect® is an online survey tool designed to collect demographic data and health information from individuals with DS. It is open to all people with Dow...

What is the current status of trial NCT01950624?

This trial is currently recruiting. The enrollment target is 100,000 participants. The study started on 2013-09-06. Estimated completion is 2035-06.

What conditions does trial NCT01950624 study?

This clinical trial studies the following conditions: Down Syndrome.

Who is sponsoring clinical trial NCT01950624?

This trial is sponsored by University of Colorado, Denver, which has 1,283 total clinical trials registered on ClinicalTrials.gov.

Where is trial NCT01950624 being conducted?

This trial has 1 study location across Colorado. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.

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Data sourced from official public datasets. See our methodology for details. Retrieved and formatted by PlainTrial Editorial

Every figure on PlainTrial is rendered directly from the ClinicalTrials.gov registry, no number is typed in by an editor. This page mirrors this trial's own ClinicalTrials.gov registry record, live from the dataset. See our editorial standards & corrections policy, the methodology behind these numbers, or report a data error.