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NCT01905865 · ClinicalTrials.gov registry record
The Role of Uncertainty in Coping: The Experience of Parents of Children With Undiagnosed Medical Conditions
A clinical trial, sponsored by National Human Genome Research Institute (NHGRI).
- Completed
- Registry status
- 168
- Enrollment target
NCT01905865 is a clinical trial that has completed, run by National Human Genome Research Institute (NHGRI). The registered enrollment target is 168 participants.
The verdict
NCT01905865 has completed, sponsored by National Human Genome Research Institute (NHGRI).
- COMPLETED
- Registry status
- 168 participants
- Enrollment target
Study Summary
Background: \- Parents of a child with an undiagnosed medical condition face a lot of uncertainty. They may not know how to take care of their child or how the illness will affect their family life. Researchers want to study how these parents cope with and adapt to their child s condition in light of this uncertainty. Being uncertain can make it hard for parents to adapt. But it also might give them hope. Researchers want to study how uncertain the parents think their situation is and how that affects the way they think they can cope. Personality traits, like being able to handle uncertainty and being resilient, might also affect coping. Objectives: \- To understand how having a child with an undiagnosed illness affects the way their parents think they can cope. Eligibility: \- Adults with a child who has a medical condition that has not been diagnosed for at least 2 years and involves at least 2 parts of the body. Design: * Participants will answer survey questions for about 30 minutes. The questions are about their thoughts and feelings about having a child with an undisclosed illness. * Participants can take the survey on paper or online.
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 168 participants |
| Start Date | 2013-06-12 |
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Full Details on ClinicalTrials.gov ↗What the Registry Record Tells You About NCT01905865
The ClinicalTrials.gov registry entry for NCT01905865 describes a study currently listed as completed, categorized as an unspecified phase. The registered enrollment target is 168 participants, a figure that helps gauge the scale of data the investigators plan to collect. The listed sponsor is National Human Genome Research Institute (NHGRI), which has 185 total studies on file at ClinicalTrials.gov.
The record links to 0 conditions, and to 0 interventions.
NCT01905865 reports 0 study locations.
Frequently Asked Questions
What is clinical trial NCT01905865 about?
NCT01905865 is a clinical study titled "The Role of Uncertainty in Coping: The Experience of Parents of Children With Undiagnosed Medical Conditions". Background: \- Parents of a child with an undiagnosed medical condition face a lot of uncertainty. They may not know how to take care of their child or how the illness will affect their family life. Researchers want to study how these parents cope with and adapt to their child s condition in light ...
What is the current status of trial NCT01905865?
This trial is currently completed. The enrollment target is 168 participants. The study started on 2013-06-12.
Who is sponsoring clinical trial NCT01905865?
This trial is sponsored by National Human Genome Research Institute (NHGRI), which has 185 total clinical trials registered on ClinicalTrials.gov.
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