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NCT01633021 · ClinicalTrials.gov registry record
Developing the Family Map: Looking at Communal Coping
A clinical trial, sponsored by National Human Genome Research Institute (NHGRI).
- Completed
- Registry status
- 1,061
- Enrollment target
NCT01633021: Completed study, sponsored by National Human Genome Research Institute (NHGRI).
NCT01633021 is a clinical trial that has completed, run by National Human Genome Research Institute (NHGRI). The registered enrollment target is 1,061 participants. According to ClinicalTrials.gov, the official US trial registry.
The verdict
NCT01633021 has completed, sponsored by National Human Genome Research Institute (NHGRI).
- COMPLETED
- Registry status
- 1,061 participants
- Enrollment target
Study Summary
Background: \- Knowing one s family medical history is a part of staying healthy. Some health risks run in families, and knowing these risks can promote more healthy behavior. Different social and cultural factors may affect how family members share this information. Genetic risk information that is shared in one family may not be shared in the same way in another. This information may also be shared differently between spouses, siblings, or parents and children. It may even be shared with more distant relatives. Knowing the information that family members share and how they share it may help researchers improve genetic disease treatment and support plans. Family surveys of people who have genetic health risks may help provide this information. Objectives: \- To study how family members affected by genetic-related diseases share health information with each other. Eligibility: * Individuals at least 18 years of age who can read English or Spanish. * Participants affected by a genetic disease or be related or married to someone who has the disease. Design: * Participants will be screened with an initial questionnaire. They will identify their genetic disease and provide a basic health history. * Participants who have the disease will complete an online survey or participate in a personal interview. The questions will take about 45 minutes to 1 hour to answer. The survey will ask about family health history and family support. Participants will also provide referrals to a spouse or relatives who will participate in the study. * The spouse or relative will answer a similar survey. The survey will ask about health history and support for the spouse/relative with the disease. * A gift card will be given as thanks for participating in the study.
Primary Outcome
Identify social and relational factors used to characterize family environment re communication of health information, encouragement of health behaviors, provision of support.
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 1,061 participants |
| Start Date | 2012-07-05 |
What the finished NCT01633021 record still lists
NCT01633021 is an observational study that tracks outcomes without assigning an intervention. Its 1,061 participants enrollment target places it among the larger protocols in the corpus.
The record links to 0 conditions, and to 0 interventions.
NCT01633021 does not publish any study locations in the registry export this page uses.
Frequently Asked Questions
What is clinical trial NCT01633021 about?
NCT01633021 is a clinical study titled "Developing the Family Map: Looking at Communal Coping". Background: \- Knowing one s family medical history is a part of staying healthy. Some health risks run in families, and knowing these risks can promote more healthy behavior. Different social and cultural factors may affect how family members share this information. Genetic risk information that i...
What is the current status of trial NCT01633021?
This trial is currently completed. The enrollment target is 1,061 participants. The study started on 2012-07-05.
Who is sponsoring clinical trial NCT01633021?
This trial is sponsored by National Human Genome Research Institute (NHGRI), which has 185 total clinical trials registered on ClinicalTrials.gov.
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