Medical Information Only. Consult your healthcare provider before considering clinical trial enrollment.

2026 data Public-data reference. official source

Turner Syndrome

Open-data reference.

15 US clinical trials · 8 currently recruiting

Active & Recent Trials

RECRUITING 5,000 participants

Inspiring New Science In Guiding Healthcare in Turner Syndrome Registry

University of Colorado, Denver

NCT05052606

RECRUITING 400 participants

Natural History of Noncirrhotic Portal Hypertension

National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)

NCT02417740

RECRUITING 200 participants

UTHealth Turner Syndrome Research Registry

The University of Texas Health Science Center, Houston

NCT03185702

RECRUITING 200 participants

Gonadal Tissue Freezing for Fertility Preservation in Individuals at Risk for Ovarian Dysfunction, Premature Ovarian Insufficiency and Clinically Indicated Gonadectomy

Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)

NCT04948658

RECRUITING Phase 3 186 participants

Trial Investigating the Efficacy and Safety of Weekly Lonapegsomatropin Compared to Daily Somatropin in Children and Adolescents With Short Stature or Growth Failure Due to Growth Hormone Sufficient Disorders

Ascendis Pharma A/S

NCT07221851

RECRUITING Phase 2 54 participants

A Basket Study of Vosoritide in Children With Turner Syndrome, Short Stature Homeobox-Containing Gene Deficiency, and Noonan Syndrome With Inadequate Growth During or After Human Growth Hormone Treatment

BioMarin Pharmaceutical

NCT06668805

RECRUITING Phase 4 40 participants

Bleeding Patterns in Sequential and Continuous Progesterone Supplementation in Adolescents With Turner Syndrome

Children's Mercy Hospital Kansas City

NCT06834594

RECRUITING Phase 2 20 participants

Vosoritide for Short Stature in Turner Syndrome

Roopa Kanakatti Shankar, MBBS, MS

NCT05849389

ACTIVE NOT RECRUITING Phase 2 48 participants

A Trial to Investigate Different Doses of Lonapegsomatropin Compared to Somatropin in Individuals With Turner Syndrome

Ascendis Pharma Endocrinology Division A/S

NCT05690386

ACTIVE NOT RECRUITING Phase 3 47 participants

A Research Study Looking at How Safe Somapacitan is and How Well it Works in Children Who Need Help to Grow - REAL 9

Novo Nordisk A/S

NCT05723835

COMPLETED 760 participants

Expanded Noninvasive Genomic Medical Assessment: The Enigma Study

Progenity

NCT02787486

COMPLETED 120 participants

Risk of Diabetes in Young Turner Syndrome Patients

Children's Hospital Medical Center, Cincinnati

NCT02160717

COMPLETED Phase 3 100 participants

The Effect of Growth Hormone in Very Young Girls With Turner Syndrome

Eli Lilly and Company

NCT00406926

COMPLETED 72 participants

Dry Eye in Women With Turner Syndrome and Women With Premature Ovarian Failure

National Eye Institute (NEI)

NCT00471731

COMPLETED 20 participants

Micro RNAs as a Marker of Aortic Aneurysm in Hereditary Aortopathy Syndromes

University of Colorado, Denver

NCT02213484

Phase Distribution

PhaseTrial count
Phase 2 3
Phase 3 3
Phase 4 1

Source: ClinicalTrials.gov, National Library of Medicine. Data is informational only.

Reading the Turner Syndrome Trial Landscape

ClinicalTrials.gov lists 15 US studies indexed under Turner Syndrome, and 8 of those are currently open to recruitment — roughly 53% of the total volume on the registry. That ratio is a useful proxy for activity level: a high share of recruiting studies often signals that research interest is current and that new enrollment opportunities are appearing, while a low share typically means the field is dominated by completed or follow-up work where most participant spots have already been filled. These counts reflect the public registry only and include studies at every stage of design, so they should be read as an index of research attention rather than as a measure of treatment availability.

The phase distribution for Turner Syndrome shows 4 late-stage studies (Phase 3 and Phase 4 combined) alongside 3 earlier-phase entries (Phase 1 through Phase 2). Phase 1 and Phase 2 studies focus on early safety signals, dosing, and preliminary effect, while Phase 3 studies are typically the larger efficacy and safety trials submitted toward regulatory review, and Phase 4 studies follow approved interventions in real-world use. A condition weighted toward later phases often reflects a mature research pipeline with several interventions already close to or past approval, whereas a heavier early-phase tilt suggests the field is still exploring new mechanisms and candidate approaches.

Top sponsor activity for Turner Syndrome is led by University of Colorado, Denver with 2 indexed trials, alongside 9 other organizations in the top contributor list. The list on this page surfaces up to 15 of the most relevant recent and active entries, ordered with recruiting studies first so practical options are visible. All figures are derived from the public ClinicalTrials.gov dataset maintained by the National Library of Medicine and are reproduced here for reference. Inclusion of a trial, sponsor, or intervention on this page is neither an endorsement nor a recommendation — eligibility, protocol changes, and site-level status can shift frequently, so always verify current details on ClinicalTrials.gov and consult a qualified healthcare provider before acting on anything you see here.

Frequently Asked Questions

How many clinical trials are there for Turner Syndrome?

PlainTrial tracks 15 US clinical trials for Turner Syndrome, of which 8 are currently recruiting participants. Data sourced from ClinicalTrials.gov.

How do I find a recruiting trial for Turner Syndrome?

Use the trial list above filtered by "Recruiting" status, or visit our trial finder at /recruiting to search by condition and state. Always discuss trial participation with your healthcare provider before enrolling.

Is this data current?

Data is sourced from ClinicalTrials.gov and reflects our most recent data pull. Trial status may have changed since then. Always verify current information at ClinicalTrials.gov before making decisions about participation.

Related

Data sourced from official U.S. government datasets. See our methodology for details. Retrieved and formatted by PlainTrial Editorial

Disclaimer: This information is provided for informational purposes only and does not constitute professional advice. Data is sourced from ClinicalTrials.gov (National Library of Medicine). Consult a qualified professional before making decisions based on this data.

Source: ClinicalTrials.gov (NIH/NLM) ClinicalTrials.gov AACT registry · 2024 Trial counts and statuses sourced from ClinicalTrials.gov. Sponsor counts include both industry and federal/academic sponsors.

Verify with NIH →