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NCT07233408 · ClinicalTrials.gov registry record · NA
Tailoring an Online Platform to Promote Evidence-Based Care for Adults With Neurofibromatosis 1 and Low Health Literacy
A NA study of Neurofibromatosis 1, sponsored by Massachusetts General Hospital.
- Recruiting
- Registry status
- NA
- Development phase
- 50
- Enrollment target
- 1
- Study location
NCT07233408: Recruiting NA study of Neurofibromatosis 1, sponsored by Massachusetts General Hospital.
NCT07233408 is a NA study of Neurofibromatosis 1 that is actively recruiting participants, run by Massachusetts General Hospital. The registered enrollment target is 50 participants, below the 1,033-participant average among 24 other Neurofibromatosis 1 trials with a reported enrollment target (95% lower). The trial reports 1 study location across 1 state. According to ClinicalTrials.gov, the official US trial registry.
The verdict
NCT07233408, a NA study of Neurofibromatosis 1, is actively recruiting participants, sponsored by Massachusetts General Hospital.
- RECRUITING
- Registry status
- NA
- Development phase
- 50 participants
- Enrollment target
- 1
- Study location
Study Summary
This decentralized, randomized study seeks to assess the feasibility, acceptability, and preliminary effectiveness of two approaches to assisting Neurofibromatosis 1 (NF1) patients with low health literacy improve their understanding of NF1 symptoms and care recommendations. Participants will be provided with personalized NF1 care letters for themselves and their doctors, along with either NF1 educational videos or a call with an NF1 peer navigator. Adults with NF1 from across the U.S. who have upcoming annual wellness visits scheduled with a primary care provider (PCP) are eligible to enroll in the study. To see if you might be eligible, fill out a prescreening survey here: https://redcap.link/nfpeer
Primary Outcome
* Recruitment (% of people that complete prescreening who are eligible) * Willingness to Enroll (% of prescreening-eligible people who enroll) * Retention (% of consented individuals who complete both the baseline survey and follow-up survey) * Intervention Completion (% of people who watch all videos or complete peer navigator meeting, as applicable based on intervention assigned)
Conditions Studied
Interventions
- OTHER NF1 Educational Videos
- OTHER Peer Navigator
- OTHER Letters about NF1 Care
Study Locations (1)
Massachusetts
- Massachusetts General Hospital - Boston
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 50 participants |
| Start Date | 2025-12-28 |
| Est. Completion | 2026-05-30 |
| Phase | NA |
What NCT07233408 shows while recruiting
NCT07233408 is an interventional study that assigns participants to a tested intervention. The registry caps enrollment at 50 participants, a relatively small participant target, below the 1,033-participant average among 24 other Neurofibromatosis 1 trials with a reported enrollment target (95% lower).
The record links to 1 condition, with Neurofibromatosis 1 appearing as the primary indexed condition, and to 3 interventions - of which NF1 Educational Videos is the first listed.
NCT07233408 reports a single indexed study location in Massachusetts.
Frequently Asked Questions
What is clinical trial NCT07233408 about?
NCT07233408 is a clinical study titled "Tailoring an Online Platform to Promote Evidence-Based Care for Adults With Neurofibromatosis 1 and Low Health Literacy". This decentralized, randomized study seeks to assess the feasibility, acceptability, and preliminary effectiveness of two approaches to assisting Neurofibromatosis 1 (NF1) patients with low health literacy improve their understanding of NF1 symptoms and care recommendations. Participants will be pro...
What is the current status of trial NCT07233408?
This trial is currently recruiting. It is a NA study. The enrollment target is 50 participants. The study started on 2025-12-28. Estimated completion is 2026-05-30.
What conditions does trial NCT07233408 study?
This clinical trial studies the following conditions: Neurofibromatosis 1.
What interventions are being tested in trial NCT07233408?
The interventions under investigation include: NF1 Educational Videos (OTHER), Peer Navigator (OTHER), Letters about NF1 Care (OTHER).
Who is sponsoring clinical trial NCT07233408?
This trial is sponsored by Massachusetts General Hospital, which has 2,032 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT07233408 being conducted?
This trial has 1 study location across Massachusetts. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
Learn More About Clinical Trials
Similar trials for Neurofibromatosis 1
Matched on the same primary condition, ranked to surface studies in the same phase first, then by recruiting status, no relevance scoring or editorial curation.
Where NCT07233408's enrollment target sits among peer trials
50 19th of 24 higher than 6 of 24 other Neurofibromatosis 1 trials
participants (enrollment target), bucketed by value
Each bar is a band; taller bars hold more other Neurofibromatosis 1 trials. The dashed line + filled bar mark this entry. Hover or tap any bar for its full count and share, and where it sits relative to this entry.
Source ClinicalTrials.gov registry export · 2026-08-08
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