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NCT06927219 · ClinicalTrials.gov registry record

Research Accelerated by You Lupus Registry

A clinical trial of Systemic Lupus Erythematosus (SLE) and Lupus Nephritis (LN), sponsored by Lupus Foundation of America.

Recruiting
Registry status
10,000
Enrollment target
1
Study location

NCT06927219 is a study of Systemic Lupus Erythematosus (SLE) and Lupus Nephritis (LN) that is actively recruiting participants, run by Lupus Foundation of America. The registered enrollment target is 10,000 participants, above the 351-participant average among 14 other Systemic Lupus Erythematosus (SLE) trials with a reported enrollment target (2749% higher). The trial reports 1 study location across 1 state.

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The verdict

NCT06927219, a study of Systemic Lupus Erythematosus (SLE) and Lupus Nephritis (LN), is actively recruiting participants, sponsored by Lupus Foundation of America.

RECRUITING
Registry status
10,000 participants
Enrollment target
1
Study location

Study Summary

Summary The Lupus Foundation of America (LFA) Research Accelerated by You (RAY) Registry is a fully remote, longitudinal registry designed to collect data from adults and children living with lupus. The primary goal is to better understand the diagnosis, treatment, care, and quality of life for those affected by the disease. Remote Participation This is a decentralized, online-only registry. Participation is conducted entirely through a secure web-based portal. There are no physical site visits or travel requirements; participants can contribute from any location with internet access. Participation Details Consent: Informed consent is completed electronically. Surveys: Participants complete electronic surveys upon enrollment and every six months thereafter. Data Types: Collected data is self-reported and includes demographics, diagnosis history, treatment information, and patient-reported outcomes (PROs), such as quality of life. Purpose and Data Use The LFA uses registry data to: Address Constituent Needs: Inform programs and resources for the lupus community. Advance Research: Share patient insights with to ensure therapies are developed with the consideration of what matters and what matters most to people living with lupus. Patient Engagement and Clinical Research Matching: Participants may be contacted to assess eligibility for patient engagement or clinical research opportunities or to complete specific sub-surveys regarding trial participation.

Conditions Studied

Systemic Lupus Erythematosus (SLE) Lupus Nephritis (LN) Cutaneous Lupus Erythematosus (CLE)

Study Locations (1)

District of Columbia

  • Online Registry - No Physical Site Required - Washington D.C.

Trial Details

FieldValue
Enrollment Target 10,000 participants
Start Date 2020-10-01
Est. Completion 2050-12-31

Sponsor

Lupus Foundation of America

1 total trials

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What the Registry Record Tells You About NCT06927219

The ClinicalTrials.gov registry entry for NCT06927219 describes a study currently listed as recruiting, categorized as an unspecified phase. The registered enrollment target is 10,000 participants, a figure that helps gauge the scale of data the investigators plan to collect, above the 351-participant average among 14 other Systemic Lupus Erythematosus (SLE) trials with a reported enrollment target (2749% higher). The listed sponsor is Lupus Foundation of America, which has 1 total studies on file at ClinicalTrials.gov.

The record links to 3 conditions, with Systemic Lupus Erythematosus (SLE) appearing as the primary indexed condition, and to 0 interventions.

NCT06927219 reports 1 study location spanning 1 distinct geographic area - top geographies include District of Columbia.

Frequently Asked Questions

What is clinical trial NCT06927219 about?

NCT06927219 is a clinical study titled "Research Accelerated by You Lupus Registry". Summary The Lupus Foundation of America (LFA) Research Accelerated by You (RAY) Registry is a fully remote, longitudinal registry designed to collect data from adults and children living with lupus. The primary goal is to better understand the diagnosis, treatment, care, and quality of life for thos...

What is the current status of trial NCT06927219?

This trial is currently recruiting. The enrollment target is 10,000 participants. The study started on 2020-10-01. Estimated completion is 2050-12-31.

What conditions does trial NCT06927219 study?

This clinical trial studies the following conditions: Systemic Lupus Erythematosus (SLE), Lupus Nephritis (LN), Cutaneous Lupus Erythematosus (CLE).

Who is sponsoring clinical trial NCT06927219?

This trial is sponsored by Lupus Foundation of America, which has 1 total clinical trials registered on ClinicalTrials.gov.

Where is trial NCT06927219 being conducted?

This trial has 1 study location across District of Columbia. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.

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