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NCT06927219 · ClinicalTrials.gov registry record
Research Accelerated by You Lupus Registry
A clinical trial of Systemic Lupus Erythematosus (SLE) and Lupus Nephritis (LN), sponsored by Lupus Foundation of America.
- Recruiting
- Registry status
- 10,000
- Enrollment target
- 1
- Study location
NCT06927219: Recruiting study of Systemic Lupus Erythematosus (SLE) and Lupus Nephritis (LN), sponsored by Lupus Foundation of America.
NCT06927219 is a study of Systemic Lupus Erythematosus (SLE) and Lupus Nephritis (LN) that is actively recruiting participants, run by Lupus Foundation of America. The registered enrollment target is 10,000 participants, above the 351-participant average among 14 other Systemic Lupus Erythematosus (SLE) trials with a reported enrollment target (2749% higher). The trial reports 1 study location across 1 state. According to ClinicalTrials.gov, the official US trial registry.
The verdict
NCT06927219, a study of Systemic Lupus Erythematosus (SLE) and Lupus Nephritis (LN), is actively recruiting participants, sponsored by Lupus Foundation of America.
- RECRUITING
- Registry status
- 10,000 participants
- Enrollment target
- 1
- Study location
Study Summary
Summary The Lupus Foundation of America (LFA) Research Accelerated by You (RAY) Registry is a fully remote, longitudinal registry designed to collect data from adults and children living with lupus. The primary goal is to better understand the diagnosis, treatment, care, and quality of life for those affected by the disease. Remote Participation This is a decentralized, online-only registry. Participation is conducted entirely through a secure web-based portal. There are no physical site visits or travel requirements; participants can contribute from any location with internet access. Participation Details Consent: Informed consent is completed electronically. Surveys: Participants complete electronic surveys upon enrollment and every six months thereafter. Data Types: Collected data is self-reported and includes demographics, diagnosis history, treatment information, and patient-reported outcomes (PROs), such as quality of life. Purpose and Data Use The LFA uses registry data to: Address Constituent Needs: Inform programs and resources for the lupus community. Advance Research: Share patient insights with to ensure therapies are developed with the consideration of what matters and what matters most to people living with lupus. Patient Engagement and Clinical Research Matching: Participants may be contacted to assess eligibility for patient engagement or clinical research opportunities or to complete specific sub-surveys regarding trial participation.
Primary Outcome
This 13-item scale measures self-report fatigue and impacts on activities of daily living and functioning. The scale as been validated in various disease areas including cancer patients, cancer survivors, rheumatoid arthritis and systemic lupus erythematosus.
Conditions Studied
Study Locations (1)
District of Columbia
- Online Registry - No Physical Site Required - Washington D.C.
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 10,000 participants |
| Start Date | 2020-10-01 |
| Est. Completion | 2050-12-31 |
What NCT06927219 shows while recruiting
NCT06927219 is an observational study that tracks outcomes without assigning an intervention. Its 10,000 participants enrollment target places it among the larger protocols in the corpus, above the 351-participant average among 14 other Systemic Lupus Erythematosus (SLE) trials with a reported enrollment target (2749% higher).
The record links to 3 conditions, with Systemic Lupus Erythematosus (SLE) appearing as the primary indexed condition, and to 0 interventions.
NCT06927219 reports a single indexed study location in District of Columbia.
Frequently Asked Questions
What is clinical trial NCT06927219 about?
NCT06927219 is a clinical study titled "Research Accelerated by You Lupus Registry". Summary The Lupus Foundation of America (LFA) Research Accelerated by You (RAY) Registry is a fully remote, longitudinal registry designed to collect data from adults and children living with lupus. The primary goal is to better understand the diagnosis, treatment, care, and quality of life for thos...
What is the current status of trial NCT06927219?
This trial is currently recruiting. The enrollment target is 10,000 participants. The study started on 2020-10-01. Estimated completion is 2050-12-31.
What conditions does trial NCT06927219 study?
This clinical trial studies the following conditions: Systemic Lupus Erythematosus (SLE), Lupus Nephritis (LN), Cutaneous Lupus Erythematosus (CLE).
Who is sponsoring clinical trial NCT06927219?
This trial is sponsored by Lupus Foundation of America, which has 1 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT06927219 being conducted?
This trial has 1 study location across District of Columbia. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
Learn More About Clinical Trials
Similar trials for Systemic Lupus Erythematosus (SLE)
Matched on the same primary condition, ranked to surface studies in the same phase first, then by recruiting status, no relevance scoring or editorial curation.
Where NCT06927219's enrollment target sits among peer trials
10,000 1st of 14 higher than 14 of 14 other Systemic Lupus Erythematosus (SLE) trials
participants (enrollment target), bucketed by value
Each bar is a band; taller bars hold more other Systemic Lupus Erythematosus (SLE) trials. The dashed line + filled bar mark this entry. Hover or tap any bar for its full count and share, and where it sits relative to this entry.
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