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NCT06818656 · ClinicalTrials.gov registry record
The Unhide™ Project: Economic Impact Study of IVIG Treatment for PANS
A clinical trial, sponsored by Brain Inflammation Collaborative.
- Completed
- Registry status
- 65
- Enrollment target
NCT06818656: Completed study, sponsored by Brain Inflammation Collaborative.
NCT06818656 is a clinical trial that has completed, run by Brain Inflammation Collaborative. The registered enrollment target is 65 participants. According to ClinicalTrials.gov, the official US trial registry.
The verdict
NCT06818656 has completed, sponsored by Brain Inflammation Collaborative.
- COMPLETED
- Registry status
- 65 participants
- Enrollment target
Study Summary
The Economic Impact Study of IVIG treatment for PANS is a part of the Unhide™ Project, which is a research initiative developed by the Brain Inflammation Collaborative. Specifically, the Unhide™ project is a collection of investigations with the overall goal of better understanding the problems with thinking and mood that can sometimes be symptoms of conditions like autoimmune disease, infection-associated chronic conditions like Long COVID, ME/CFS, PANDAS, PANS, and other illnesses. Your contribution to this research will allow us to better describe these symptoms and understand what causes them, how they develop, and how they can best be treated and prevented. This study seeks to assess how PANDAS/PANS affects the financial well-being of families who pursue IVIG treatment, as well as the overall health and quality of life of children with the condition. By gathering data through this survey, we aim to gain important insights into the economic consequences of treating - or not treating - PANS with IVIG, including how it impacts parents' ability to work and children's ability to attend school. Key Eligibility Criteria * Aged 2-89, U.S. resident, fluent in English, and have access to computer and/or smartphone * Suspected or confirmed diagnosis of PANS/PANDAS * Have received IVIG OR have sought and/or been prescribed IVIG but have not received it
Primary Outcome
This survey asks respondents (and/or their parent/legal guardian) about aspects of IVIG treatment related to medical encounters, treatment access, financial impacts, insurance coverage, and the functional and emotional effects of PANS/PANDAS.
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 65 participants |
| Start Date | 2025-03-01 |
| Est. Completion | 2025-06-19 |
What the finished NCT06818656 record still lists
NCT06818656 is an observational study that tracks outcomes without assigning an intervention. The registry caps enrollment at 65 participants, a relatively small participant target.
The record links to 0 conditions, and to 0 interventions.
NCT06818656 does not publish any study locations in the registry export this page uses.
Frequently Asked Questions
What is clinical trial NCT06818656 about?
NCT06818656 is a clinical study titled "The Unhide™ Project: Economic Impact Study of IVIG Treatment for PANS". The Economic Impact Study of IVIG treatment for PANS is a part of the Unhide™ Project, which is a research initiative developed by the Brain Inflammation Collaborative. Specifically, the Unhide™ project is a collection of investigations with the overall goal of better understanding the problems with...
What is the current status of trial NCT06818656?
This trial is currently completed. The enrollment target is 65 participants. The study started on 2025-03-01. Estimated completion is 2025-06-19.
Who is sponsoring clinical trial NCT06818656?
This trial is sponsored by Brain Inflammation Collaborative, which has 2 total clinical trials registered on ClinicalTrials.gov.
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