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NCT06554275 · ClinicalTrials.gov registry record
CCHS Secure Health-hub Advancing Research Efforts (CCHS SHARE)
A clinical trial of Congenital Central Hypoventilation Syndrome, sponsored by Ann & Robert H Lurie Children's Hospital of Chicago.
- Recruiting
- Registry status
- 125
- Enrollment target
- 1
- Study location
NCT06554275: Recruiting study of Congenital Central Hypoventilation Syndrome, sponsored by Ann & Robert H Lurie Children's Hospital of Chicago.
NCT06554275 is a study of Congenital Central Hypoventilation Syndrome that is actively recruiting participants, run by Ann & Robert H Lurie Children's Hospital of Chicago. The registered enrollment target is 125 participants. The trial reports 1 study location across 1 state. According to ClinicalTrials.gov, the official US trial registry.
The verdict
NCT06554275, a study of Congenital Central Hypoventilation Syndrome, is actively recruiting participants, sponsored by Ann & Robert H Lurie Children's Hospital of Chicago.
- RECRUITING
- Registry status
- 125 participants
- Enrollment target
- 1
- Study location
Study Summary
The purpose of this study is to capture longitudinal natural history data in Congenital Central Hypoventilation Syndrome (CCHS). This will include capturing standardized clinical data from standard of care assessments at several CCHS referral centers. Funding source-FDA OOPD
Primary Outcome
Patient reported outcome common data elements reflecting core aspects of CCHS will be captured using the Pediatric Quality of Life Inventory (PedsQL) and the 36-item Short Form Health Survey (SF-36)
Conditions Studied
Study Locations (1)
Illinois
- Ann & Robert H Lurie Children's Hospital of Chicago - Chicago
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 125 participants |
| Start Date | 2024-09-01 |
| Est. Completion | 2028-08-31 |
What NCT06554275 shows while recruiting
NCT06554275 is an observational study that tracks outcomes without assigning an intervention. The registered 125 participants enrollment target is mid-sized for trials with a published cap.
The record links to 1 condition, with Congenital Central Hypoventilation Syndrome appearing as the primary indexed condition, and to 0 interventions.
NCT06554275 reports a single indexed study location in Illinois.
Frequently Asked Questions
What is clinical trial NCT06554275 about?
NCT06554275 is a clinical study titled "CCHS Secure Health-hub Advancing Research Efforts (CCHS SHARE)". The purpose of this study is to capture longitudinal natural history data in Congenital Central Hypoventilation Syndrome (CCHS). This will include capturing standardized clinical data from standard of care assessments at several CCHS referral centers. Funding source-FDA OOPD
What is the current status of trial NCT06554275?
This trial is currently recruiting. The enrollment target is 125 participants. The study started on 2024-09-01. Estimated completion is 2028-08-31.
What conditions does trial NCT06554275 study?
This clinical trial studies the following conditions: Congenital Central Hypoventilation Syndrome.
Who is sponsoring clinical trial NCT06554275?
This trial is sponsored by Ann & Robert H Lurie Children's Hospital of Chicago, which has 159 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT06554275 being conducted?
This trial has 1 study location across Illinois. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
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