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NCT06503367 · ClinicalTrials.gov registry record
Observation Study in Patients Age 0-5 Years With LAMA2-related Congenital Muscular Dystrophy
A clinical trial of LAMA2-MD \(Merosin Deficient Congenital Muscular Dystrophy, MDC1A\), sponsored by Nationwide Children's Hospital.
- Recruiting
- Registry status
- 44
- Enrollment target
- 14
- Study locations
NCT06503367 is a study of LAMA2-MD \(Merosin Deficient Congenital Muscular Dystrophy, MDC1A\) that is actively recruiting participants, run by Nationwide Children's Hospital. The registered enrollment target is 44 participants. The trial reports 14 study locations across 12 states.
The verdict
NCT06503367, a study of LAMA2-MD \(Merosin Deficient Congenital Muscular Dystrophy, MDC1A\), is actively recruiting participants, sponsored by Nationwide Children's Hospital.
- RECRUITING
- Registry status
- 44 participants
- Enrollment target
- 14
- Study locations
Study Summary
The goal of this observational study is to understand how young children with LAMA2-related dystrophy move and change over time. We will also learn about how this condition impacts other body systems. Participants will undergo: * Neuromuscular assessments * Blood collections * Swallowing and breathing assessments * Questionnaires
Conditions Studied
Study Locations (14)
California
- University of California, Los Angeles - Los Angeles
- Stanford University - Stanford
Ohio
- Cincinnati Children's Hospital Medical Center - Cincinnati
- Nationwide Children's Hospital - Columbus
Illinois
- Ann & Robert H. Lurie Children's Hospital of Chicago - Chicago
Iowa
- University of Iowa Stead Family Children's Hospital - Iowa City
Maryland
- National Institute of Neurological Disorders and Stroke, NIH - Bethesda
Massachusetts
- Boston Children's Hospital - Boston
Minnesota
- University of Minnesota - Saint Paul
Missouri
- Washington University in St. Louis - St Louis
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 44 participants |
| Start Date | 2025-05-12 |
| Est. Completion | 2028-09 |
Interested in This Trial?
Full Details on ClinicalTrials.gov ↗What the Registry Record Tells You About NCT06503367
The ClinicalTrials.gov registry entry for NCT06503367 describes a study currently listed as recruiting, categorized as an unspecified phase. The registered enrollment target is 44 participants, a figure that helps gauge the scale of data the investigators plan to collect. The listed sponsor is Nationwide Children's Hospital, which has 188 total studies on file at ClinicalTrials.gov.
The record links to 1 condition, with LAMA2-MD \(Merosin Deficient Congenital Muscular Dystrophy, MDC1A\) appearing as the primary indexed condition, and to 0 interventions.
NCT06503367 reports 14 study locations spanning 12 distinct geographic areas - top geographies include California, Ohio, Illinois.
Frequently Asked Questions
What is clinical trial NCT06503367 about?
NCT06503367 is a clinical study titled "Observation Study in Patients Age 0-5 Years With LAMA2-related Congenital Muscular Dystrophy". The goal of this observational study is to understand how young children with LAMA2-related dystrophy move and change over time. We will also learn about how this condition impacts other body systems. Participants will undergo: * Neuromuscular assessments * Blood collections * Swallowing and breat...
What is the current status of trial NCT06503367?
This trial is currently recruiting. The enrollment target is 44 participants. The study started on 2025-05-12. Estimated completion is 2028-09.
What conditions does trial NCT06503367 study?
This clinical trial studies the following conditions: LAMA2-MD \(Merosin Deficient Congenital Muscular Dystrophy, MDC1A\).
Who is sponsoring clinical trial NCT06503367?
This trial is sponsored by Nationwide Children's Hospital, which has 188 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT06503367 being conducted?
This trial has 14 study locations across California, Illinois, Iowa, Maryland, Massachusetts. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
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