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NCT06265103 · ClinicalTrials.gov registry record

Epilepsy Learning Healthcare System (ELHS)

A clinical trial of Epilepsy and Neurologic Disorder, sponsored by Epilepsy Foundation of America.

Recruiting
Registry status
100,000
Enrollment target
13
Study locations

NCT06265103 is a study of Epilepsy and Neurologic Disorder that is actively recruiting participants, run by Epilepsy Foundation of America. The registered enrollment target is 100,000 participants, above the 328-participant average among 160 other Epilepsy trials with a reported enrollment target (30388% higher). The trial reports 13 study locations across 8 states.

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The verdict

NCT06265103, a study of Epilepsy and Neurologic Disorder, is actively recruiting participants, sponsored by Epilepsy Foundation of America.

RECRUITING
Registry status
100,000 participants
Enrollment target
13
Study locations

Study Summary

The Epilepsy Learning Health System (ELHS) is a quality improvement and research network to improve outcomes for people with epilepsy. The ELHS is designed as a model of value-based chronic care for epilepsy as envisioned by the National Academies of Medicine Committee in their landmark reports "The Learning Health System" and "Epilepsy Across the Spectrum: Promoting Health and Understanding". The ELHS network is a collaboration among clinicians, patients and researchers that promotes the use of data for multiple purposes including one-on-one clinical care, population management, quality improvement and research. The ELHS Registry includes data on children and adults with epilepsy collected during the process of standard epilepsy care. These data are used to create population health reports and to track changes in outcomes over time. ELHS teams use quality improvement methods, such as Plan-Do-Study-Act (PDSA) cycles, to continuously learn how to improve care.

Interventions

  • OTHER Clinical care and quality improvement

Study Locations (13)

Ohio

  • Akron Children's Hospital - Akron
  • Cincinnati Children's Hospital Comprehensive Epilepsy Center (CCHMC) - Cincinnati
  • University of Cincinnati Gardner Neuroscience Institute Epilepsy Center - Cincinnati

California

  • Children's Hospital Los Angeles - Los Angeles
  • University of Southern California - Los Angeles

Massachusetts

  • Partners - Massachusetts General Hospital Epilepsy Service (MGH)/ Partners - Brigham and Women's (BWH) - Boston
  • Brigham & Women's Hospital - Boston

Pennsylvania

  • Penn State Hershey - Hershey
  • Children's Hospital of Philadelphia (CHOP) - Philadelphia

Arizona

  • Barrow Neurological Institute Comprehensive Epilepsy Center - Phoenix

Colorado

  • UC Health University of Colorado Anshutz - Aurora

Maryland

  • Epilepsy Foundation - Bowie

Texas

  • UT Southwestern Children's Dallas - Dallas

Trial Details

FieldValue
Enrollment Target 100,000 participants
Start Date 2019-03-20
Est. Completion 2099-02-14

Sponsor

Epilepsy Foundation of America

2 total trials

What the Registry Record Tells You About NCT06265103

The ClinicalTrials.gov registry entry for NCT06265103 describes a study currently listed as recruiting, categorized as an unspecified phase. The registered enrollment target is 100,000 participants, a figure that helps gauge the scale of data the investigators plan to collect, above the 328-participant average among 160 other Epilepsy trials with a reported enrollment target (30388% higher). The listed sponsor is Epilepsy Foundation of America, which has 2 total studies on file at ClinicalTrials.gov.

The record links to 4 conditions, with Epilepsy appearing as the primary indexed condition, and to 1 intervention - of which Clinical care and quality improvement is the first listed.

NCT06265103 reports 13 study locations spanning 8 distinct geographic areas - top geographies include Ohio, California, Massachusetts.

Frequently Asked Questions

What is clinical trial NCT06265103 about?

NCT06265103 is a clinical study titled "Epilepsy Learning Healthcare System (ELHS)". The Epilepsy Learning Health System (ELHS) is a quality improvement and research network to improve outcomes for people with epilepsy. The ELHS is designed as a model of value-based chronic care for epilepsy as envisioned by the National Academies of Medicine Committee in their landmark reports "The...

What is the current status of trial NCT06265103?

This trial is currently recruiting. The enrollment target is 100,000 participants. The study started on 2019-03-20. Estimated completion is 2099-02-14.

What conditions does trial NCT06265103 study?

This clinical trial studies the following conditions: Epilepsy, Neurologic Disorder, Rare Diseases, Seizure Disorder.

What interventions are being tested in trial NCT06265103?

The interventions under investigation include: Clinical care and quality improvement (OTHER).

Who is sponsoring clinical trial NCT06265103?

This trial is sponsored by Epilepsy Foundation of America, which has 2 total clinical trials registered on ClinicalTrials.gov.

Where is trial NCT06265103 being conducted?

This trial has 13 study locations across Arizona, California, Colorado, Maryland, Massachusetts. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.

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Data sourced from official public datasets. See our methodology for details. Retrieved and formatted by PlainTrial Editorial

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