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NCT05116566 · ClinicalTrials.gov registry record
Revealing Information Genuinely & Honestly Across Time: Pediatric Oncology Stakeholder Preferences and Recommendations for Prognostic Communication
A clinical trial, sponsored by St. Jude Children's Research Hospital.
- Completed
- Registry status
- 95
- Enrollment target
NCT05116566: Completed study, sponsored by St. Jude Children's Research Hospital.
NCT05116566 is a clinical trial that has completed, run by St. Jude Children's Research Hospital. The registered enrollment target is 95 participants. According to ClinicalTrials.gov, the official US trial registry.
The verdict
NCT05116566 has completed, sponsored by St. Jude Children's Research Hospital.
- COMPLETED
- Registry status
- 95 participants
- Enrollment target
Study Summary
This study is being conducted to better understand the preferences and recommendations of patients and parents regarding optimal ways to share prognostic communication. Specifically, to learn what stakeholders (i.e., patients, parents, and doctors) believe to be the "right" content, timing, and delivery of this important information. Specific Aim 1 * To define key stakeholder preferences and recommendations for timing, content, and delivery of prognostic communication across the advancing illness course and bereavement. Specific Aim 2 * To engage stakeholders in the design of a patient/parent centered RIGHTime framework and communication intervention to promote individualized, timely prognostic disclosure.
Primary Outcome
We will use the rapid analysis (RA) qualitative approach for analysis of interview transcripts methods to define patient, parent, and oncologist preferences and recommendations with respect to timing, content, and delivery of prognostic communication at varying timepoints across the advancing illness course.
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 95 participants |
| Start Date | 2022-06-18 |
| Est. Completion | 2024-08-14 |
What the finished NCT05116566 record still lists
NCT05116566 is an observational study that tracks outcomes without assigning an intervention. The registry caps enrollment at 95 participants, a relatively small participant target.
The record links to 0 conditions, and to 0 interventions.
NCT05116566 does not publish any study locations in the registry export this page uses.
Frequently Asked Questions
What is clinical trial NCT05116566 about?
NCT05116566 is a clinical study titled "Revealing Information Genuinely & Honestly Across Time: Pediatric Oncology Stakeholder Preferences and Recommendations for Prognostic Communication". This study is being conducted to better understand the preferences and recommendations of patients and parents regarding optimal ways to share prognostic communication. Specifically, to learn what stakeholders (i.e., patients, parents, and doctors) believe to be the "right" content, timing, and deli...
What is the current status of trial NCT05116566?
This trial is currently completed. The enrollment target is 95 participants. The study started on 2022-06-18. Estimated completion is 2024-08-14.
Who is sponsoring clinical trial NCT05116566?
This trial is sponsored by St. Jude Children's Research Hospital, which has 410 total clinical trials registered on ClinicalTrials.gov.
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