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NCT04972604 · ClinicalTrials.gov registry record

CureDuchenne Link®: A Resource for Research

A clinical trial of Duchenne Muscular Dystrophy and Becker Muscular Dystrophy, sponsored by CureDuchenne.

Recruiting
Registry status
5,000
Enrollment target
10
Study locations

NCT04972604 is a study of Duchenne Muscular Dystrophy and Becker Muscular Dystrophy that is actively recruiting participants, run by CureDuchenne. The registered enrollment target is 5,000 participants, above the 308-participant average among 48 other Duchenne Muscular Dystrophy trials with a reported enrollment target (1523% higher). The trial reports 10 study locations across 9 states.

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The verdict

NCT04972604, a study of Duchenne Muscular Dystrophy and Becker Muscular Dystrophy, is actively recruiting participants, sponsored by CureDuchenne.

RECRUITING
Registry status
5,000 participants
Enrollment target
10
Study locations

Study Summary

CureDuchenne link is a data hub comprised of integrated biospecimens, clinical data, and self- and/or caregiver-reported information from participants. Anyone over 4 weeks old who has been diagnosed with DMD or BMD or who is a carrier of DMD or BMD can join. Parents or legal guardians can sign up their child(ren).

Conditions Studied

Duchenne Muscular Dystrophy Becker Muscular Dystrophy

Study Locations (10)

California

  • CureDuchenne - Newport Beach
  • Children's Hospital of Orange County - Orange

Arkansas

  • Arkansas Children's Hospital - Little Rock

Georgia

  • Rare Disease Research - Atlanta

Iowa

  • University of Iowa - Iowa City

Kansas

  • Kansas University Clinical Research Center - Fairway

Michigan

  • Corewell Health - Grand Rapids

North Carolina

  • Rare Disease Research Center - Hillsborough

Pennsylvania

  • Penn State Health - Hershey

Trial Details

FieldValue
Enrollment Target 5,000 participants
Start Date 2021-07-09
Est. Completion 2031-07-09

Sponsor

CureDuchenne

1 total trials

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What the Registry Record Tells You About NCT04972604

The ClinicalTrials.gov registry entry for NCT04972604 describes a study currently listed as recruiting, categorized as an unspecified phase. The registered enrollment target is 5,000 participants, a figure that helps gauge the scale of data the investigators plan to collect, above the 308-participant average among 48 other Duchenne Muscular Dystrophy trials with a reported enrollment target (1523% higher). The listed sponsor is CureDuchenne, which has 1 total studies on file at ClinicalTrials.gov.

The record links to 2 conditions, with Duchenne Muscular Dystrophy appearing as the primary indexed condition, and to 0 interventions.

NCT04972604 reports 10 study locations spanning 9 distinct geographic areas - top geographies include California, Arkansas, Georgia.

Frequently Asked Questions

What is clinical trial NCT04972604 about?

NCT04972604 is a clinical study titled "CureDuchenne Link®: A Resource for Research". CureDuchenne link is a data hub comprised of integrated biospecimens, clinical data, and self- and/or caregiver-reported information from participants. Anyone over 4 weeks old who has been diagnosed with DMD or BMD or who is a carrier of DMD or BMD can join. Parents or legal guardians can sign up th...

What is the current status of trial NCT04972604?

This trial is currently recruiting. The enrollment target is 5,000 participants. The study started on 2021-07-09. Estimated completion is 2031-07-09.

What conditions does trial NCT04972604 study?

This clinical trial studies the following conditions: Duchenne Muscular Dystrophy, Becker Muscular Dystrophy.

Who is sponsoring clinical trial NCT04972604?

This trial is sponsored by CureDuchenne, which has 1 total clinical trials registered on ClinicalTrials.gov.

Where is trial NCT04972604 being conducted?

This trial has 10 study locations across Arkansas, California, Georgia, Iowa, Kansas. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.

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Data sourced from official public datasets. See our methodology for details. Retrieved and formatted by PlainTrial Editorial

Every figure on PlainTrial is rendered directly from the ClinicalTrials.gov registry, no number is typed in by an editor. This page mirrors this trial's own ClinicalTrials.gov registry record, live from the dataset. See our editorial standards & corrections policy, the methodology behind these numbers, or report a data error.