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NCT04855734 · ClinicalTrials.gov registry record · NA
FACE for Children With Rare Diseases
A NA study, sponsored by Children's National Research Institute.
- Completed
- Registry status
- NA
- Development phase
- 42
- Enrollment target
NCT04855734 is a NA study that has completed, run by Children's National Research Institute. The registered enrollment target is 42 participants.
The verdict
NCT04855734, a NA study, has completed, sponsored by Children's National Research Institute.
- COMPLETED
- Registry status
- NA
- Development phase
- 42 participants
- Enrollment target
Study Summary
Children with ultra-rare or complex rare diseases are routinely excluded from research studies because of their conditions, creating a health disparity. However, new statistical techniques make it possible to study small samples of heterogeneous populations. We propose to study the palliative care needs of family caregivers of children with ultra-rare diseases and to pilot test a palliative care needs assessment and advance care planning intervention to facilitate discussions about the future medical care choices families are likely to be asked to make for their child.
Interventions
- BEHAVIORAL FAmily CEntered (FACE) pACP Intervention
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 42 participants |
| Start Date | 2021-07-06 |
| Est. Completion | 2024-06-01 |
| Phase | NA |
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Full Details on ClinicalTrials.gov ↗What the Registry Record Tells You About NCT04855734
The ClinicalTrials.gov registry entry for NCT04855734 describes a study currently listed as completed, categorized as NA. The registered enrollment target is 42 participants, a figure that helps gauge the scale of data the investigators plan to collect. The listed sponsor is Children's National Research Institute, which has 92 total studies on file at ClinicalTrials.gov.
The record links to 0 conditions, and to 1 intervention - of which FAmily CEntered (FACE) pACP Intervention is the first listed.
NCT04855734 reports 0 study locations.
Frequently Asked Questions
What is clinical trial NCT04855734 about?
NCT04855734 is a clinical study titled "FACE for Children With Rare Diseases". Children with ultra-rare or complex rare diseases are routinely excluded from research studies because of their conditions, creating a health disparity. However, new statistical techniques make it possible to study small samples of heterogeneous populations. We propose to study the palliative care n...
What is the current status of trial NCT04855734?
This trial is currently completed. It is a NA study. The enrollment target is 42 participants. The study started on 2021-07-06. Estimated completion is 2024-06-01.
What interventions are being tested in trial NCT04855734?
The interventions under investigation include: FAmily CEntered (FACE) pACP Intervention (BEHAVIORAL).
Who is sponsoring clinical trial NCT04855734?
This trial is sponsored by Children's National Research Institute, which has 92 total clinical trials registered on ClinicalTrials.gov.
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