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NCT04434729 · ClinicalTrials.gov registry record · NA

Fetal Treatment of Galenic Malformations

A NA study of Vein of Galen Malformations, sponsored by Darren Orbach.

Active
Registry status
NA
Development phase
7
Enrollment target
1
Study location

NCT04434729: Active NA study of Vein of Galen Malformations, sponsored by Darren Orbach.

NCT04434729 is a NA study of Vein of Galen Malformations that is active but no longer recruiting, run by Darren Orbach. The registered enrollment target is 7 participants, below the 1,404-participant average among 58,714 other NA trials with a reported enrollment target (100% lower). The trial reports 1 study location across 1 state. According to ClinicalTrials.gov, the official US trial registry.

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The verdict

NCT04434729, a NA study of Vein of Galen Malformations, is active but no longer recruiting, sponsored by Darren Orbach.

ACTIVE NOT RECRUITING
Registry status
NA
Development phase
7 participants
Enrollment target
1
Study location

Study Summary

This is a prospective, single-arm non-randomized interventional study of fetuses to assess the safety and efficacy of fetal embolization of Vein of Galen Malformation (VOGM). Subjects will receive a one-time study intervention of fetal embolization. Follow-up assessments will be collected every 4 weeks until delivery, as per standard of care. After delivery, neurological assessments will be performed every 6 months for 2 years (adjusted for gestational age). Data will be compared to historical cohorts.

Primary Outcome

The procedure is deemed safe if 1. None of the following unacceptable events occur within 7 days of fetal embolization: 1. Fetal death 2. Fetal intracranial hemorrhage, either parenchymal or extra-axial, other than petechial hemorrhage. 3. Maternal death 2. None of the following unacceptable events occur between fetal embolization and delivery: 1. Intra-procedural and post-procedural morbidity to the fetus and mother, probably related to the fetal intervention, e.g. placental abru

Interventions

  • DEVICE Fetal embolization of vein of Galen malformation using Target XL and XXL Detachable Coils

Study Locations (1)

Massachusetts

  • Boston Children's Hospital - Boston

Trial Details

FieldValue
Enrollment Target 7 participants
Start Date 2022-09-30
Est. Completion 2026-08
Phase NA
Darren Orbach

2 total trials

What the registry record for NCT04434729 still lists

NCT04434729 is an interventional study that assigns participants to a tested intervention. The registry caps enrollment at 7 participants, a relatively small participant target, below the 1,404-participant average among 58,714 other NA trials with a reported enrollment target (100% lower).

The record links to 1 condition, with Vein of Galen Malformations appearing as the primary indexed condition, and to 1 intervention - of which Fetal embolization of vein of Galen malformation using Target XL and XXL Detachable Coils is the first listed.

NCT04434729 reports a single indexed study location in Massachusetts.

Frequently Asked Questions

What is clinical trial NCT04434729 about?

NCT04434729 is a clinical study titled "Fetal Treatment of Galenic Malformations". This is a prospective, single-arm non-randomized interventional study of fetuses to assess the safety and efficacy of fetal embolization of Vein of Galen Malformation (VOGM). Subjects will receive a one-time study intervention of fetal embolization. Follow-up assessments will be collected every 4 we...

What is the current status of trial NCT04434729?

This trial is currently active not recruiting. It is a NA study. The enrollment target is 7 participants. The study started on 2022-09-30. Estimated completion is 2026-08.

What conditions does trial NCT04434729 study?

This clinical trial studies the following conditions: Vein of Galen Malformations.

What interventions are being tested in trial NCT04434729?

The interventions under investigation include: Fetal embolization of vein of Galen malformation using Target XL and XXL Detachable Coils (DEVICE).

Who is sponsoring clinical trial NCT04434729?

This trial is sponsored by Darren Orbach, which has 2 total clinical trials registered on ClinicalTrials.gov.

Where is trial NCT04434729 being conducted?

This trial has 1 study location across Massachusetts. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.

How this trial's enrollment target compares

Where NCT04434729's enrollment target sits among peer trials

7 1982nd of 2000 higher than 18 of 2,000 other NA trials

participants (enrollment target), bucketed by value

Each bar is a band; taller bars hold more other NA trials. The dashed line + filled bar mark this entry. Hover or tap any bar for its full count and share, and where it sits relative to this entry.

Source ClinicalTrials.gov registry export · 2026-08-08

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Source: ClinicalTrials.gov NCT04434729, the US trial registry maintained by the National Library of Medicine. NCT04434729 (small enrollment · single site footprint · active not recruiting) retrieved and formatted by PlainTrial, see methodology.