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NCT04338048 · ClinicalTrials.gov registry record
Autosomal Dominant Polycystic Kidney Disease (ADPKD) Study
A clinical trial of ADPKD, sponsored by Children's Hospital of Philadelphia.
- Recruiting
- Registry status
- 300
- Enrollment target
- 4
- Study locations
NCT04338048 is a study of ADPKD that is actively recruiting participants, run by Children's Hospital of Philadelphia. The registered enrollment target is 300 participants, above the 146-participant average among 3 other ADPKD trials with a reported enrollment target (105% higher). The trial reports 4 study locations across 4 states.
The verdict
NCT04338048, a study of ADPKD, is actively recruiting participants, sponsored by Children's Hospital of Philadelphia.
- RECRUITING
- Registry status
- 300 participants
- Enrollment target
- 4
- Study locations
Study Summary
Autosomal Dominant Polycystic Kidney Disease (ADPKD) is the most common genetic cause of renal failure. For several decades, ADPKD was regarded as an adult-onset disease. In the last decade, it has become more widely appreciated that the disease course begins in childhood. However, evidence-based guidelines on how to manage and approach children diagnosed with or at-risk for of ADPKD are lacking. Overall, there is insufficient data on the clinical course during childhood. The study intends to get more information on Autosomal Dominant Polycystic Kidney Disease (ADPKD) and other hepato/renal fibrocystic diseases. Additionally, the study intends to expand web-based resources so anyone can learn about ADPKD or other hepato/renal fibrocystic diseases. Individuals diagnosed with the dominant form of a hepato/renal fibrocystic condition are invited to be in the study.
Conditions Studied
Study Locations (4)
District of Columbia
- Children's National Hospital - Washington D.C.
Minnesota
- Mayo Clinic - Rochester
New York
- Cohen Children's Medical Center - New Hyde Park
Pennsylvania
- Children's Hospital of Philadelphia - Philadelphia
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 300 participants |
| Start Date | 2019-10-10 |
| Est. Completion | 2030-10-30 |
Interested in This Trial?
Full Details on ClinicalTrials.gov ↗What the Registry Record Tells You About NCT04338048
The ClinicalTrials.gov registry entry for NCT04338048 describes a study currently listed as recruiting, categorized as an unspecified phase. The registered enrollment target is 300 participants, a figure that helps gauge the scale of data the investigators plan to collect, above the 146-participant average among 3 other ADPKD trials with a reported enrollment target (105% higher). The listed sponsor is Children's Hospital of Philadelphia, which has 431 total studies on file at ClinicalTrials.gov.
The record links to 1 condition, with ADPKD appearing as the primary indexed condition, and to 0 interventions.
NCT04338048 reports 4 study locations spanning 4 distinct geographic areas - top geographies include District of Columbia, Minnesota, New York.
Frequently Asked Questions
What is clinical trial NCT04338048 about?
NCT04338048 is a clinical study titled "Autosomal Dominant Polycystic Kidney Disease (ADPKD) Study". Autosomal Dominant Polycystic Kidney Disease (ADPKD) is the most common genetic cause of renal failure. For several decades, ADPKD was regarded as an adult-onset disease. In the last decade, it has become more widely appreciated that the disease course begins in childhood. However, evidence-based gu...
What is the current status of trial NCT04338048?
This trial is currently recruiting. The enrollment target is 300 participants. The study started on 2019-10-10. Estimated completion is 2030-10-30.
What conditions does trial NCT04338048 study?
This clinical trial studies the following conditions: ADPKD.
Who is sponsoring clinical trial NCT04338048?
This trial is sponsored by Children's Hospital of Philadelphia, which has 431 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT04338048 being conducted?
This trial has 4 study locations across District of Columbia, Minnesota, New York, Pennsylvania. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
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Related
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