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NCT04039061 · ClinicalTrials.gov registry record

ADPKD Patient Registry

A clinical trial of Polycystic Kidney Diseases, sponsored by PKD Foundation.

Recruiting
Registry status
3,000
Enrollment target
1
Study location

NCT04039061 is a study of Polycystic Kidney Diseases that is actively recruiting participants, run by PKD Foundation. The registered enrollment target is 3,000 participants. The trial reports 1 study location across 1 state.

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The verdict

NCT04039061, a study of Polycystic Kidney Diseases, is actively recruiting participants, sponsored by PKD Foundation.

RECRUITING
Registry status
3,000 participants
Enrollment target
1
Study location

Study Summary

The purpose of the ADPKD Registry is to create an online patient network that includes at least 5,000 people with Autosomal Dominant Polycystic Kidney Disease (ADPKD) who contribute data on their health and other topics. The ADPKD Patient Registry aims to support important scientific discoveries and support patient needs in the following ways: * Connect ADPKD patients with opportunities to join clinical studies. * Collect data for the research community to better describe the ADPKD disease experience and improve patient care. * Engage with patients by measuring quality of life outcomes.

Conditions Studied

Study Locations (1)

Missouri

  • PKD Foundation - Kansas City

Trial Details

FieldValue
Enrollment Target 3,000 participants
Start Date 2019-09-04
Est. Completion 2029-09-04

Sponsor

PKD Foundation

1 total trials

What the Registry Record Tells You About NCT04039061

The ClinicalTrials.gov registry entry for NCT04039061 describes a study currently listed as recruiting, categorized as an unspecified phase. The registered enrollment target is 3,000 participants, a figure that helps gauge the scale of data the investigators plan to collect. The listed sponsor is PKD Foundation, which has 1 total studies on file at ClinicalTrials.gov.

The record links to 1 condition, with Polycystic Kidney Diseases appearing as the primary indexed condition, and to 0 interventions.

NCT04039061 reports 1 study location spanning 1 distinct geographic area - top geographies include Missouri.

Frequently Asked Questions

What is clinical trial NCT04039061 about?

NCT04039061 is a clinical study titled "ADPKD Patient Registry". The purpose of the ADPKD Registry is to create an online patient network that includes at least 5,000 people with Autosomal Dominant Polycystic Kidney Disease (ADPKD) who contribute data on their health and other topics. The ADPKD Patient Registry aims to support important scientific discoveries and...

What is the current status of trial NCT04039061?

This trial is currently recruiting. The enrollment target is 3,000 participants. The study started on 2019-09-04. Estimated completion is 2029-09-04.

What conditions does trial NCT04039061 study?

This clinical trial studies the following conditions: Polycystic Kidney Diseases.

Who is sponsoring clinical trial NCT04039061?

This trial is sponsored by PKD Foundation, which has 1 total clinical trials registered on ClinicalTrials.gov.

Where is trial NCT04039061 being conducted?

This trial has 1 study location across Missouri. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.

Data sourced from official public datasets. See our methodology for details. Retrieved and formatted by PlainTrial Editorial

Every figure on PlainTrial is rendered directly from the ClinicalTrials.gov registry, no number is typed in by an editor. This page mirrors this trial's own ClinicalTrials.gov registry record, live from the dataset. See our editorial standards & corrections policy, the methodology behind these numbers, or report a data error.