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NCT04039061 · ClinicalTrials.gov registry record
ADPKD Patient Registry
A clinical trial of Polycystic Kidney Diseases, sponsored by PKD Foundation.
- Recruiting
- Registry status
- 3,000
- Enrollment target
- 1
- Study location
NCT04039061: Recruiting study of Polycystic Kidney Diseases, sponsored by PKD Foundation.
NCT04039061 is a study of Polycystic Kidney Diseases that is actively recruiting participants, run by PKD Foundation. The registered enrollment target is 3,000 participants. The trial reports 1 study location across 1 state. According to ClinicalTrials.gov, the official US trial registry.
The verdict
NCT04039061, a study of Polycystic Kidney Diseases, is actively recruiting participants, sponsored by PKD Foundation.
- RECRUITING
- Registry status
- 3,000 participants
- Enrollment target
- 1
- Study location
Study Summary
The purpose of the ADPKD Registry is to create an online patient network that includes at least 5,000 people with Autosomal Dominant Polycystic Kidney Disease (ADPKD) who contribute data on their health and other topics. The ADPKD Patient Registry aims to support important scientific discoveries and support patient needs in the following ways: * Connect ADPKD patients with opportunities to join clinical studies. * Collect data for the research community to better describe the ADPKD disease experience and improve patient care. * Engage with patients by measuring quality of life outcomes.
Primary Outcome
To be assessed with online modules, developed both internally and through validated partners
Conditions Studied
Study Locations (1)
Missouri
- PKD Foundation - Kansas City
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 3,000 participants |
| Start Date | 2019-09-04 |
| Est. Completion | 2029-09-04 |
What NCT04039061 shows while recruiting
NCT04039061 is an observational study that tracks outcomes without assigning an intervention. Its 3,000 participants enrollment target places it among the larger protocols in the corpus.
The record links to 1 condition, with Polycystic Kidney Diseases appearing as the primary indexed condition, and to 0 interventions.
NCT04039061 reports a single indexed study location in Missouri.
Frequently Asked Questions
What is clinical trial NCT04039061 about?
NCT04039061 is a clinical study titled "ADPKD Patient Registry". The purpose of the ADPKD Registry is to create an online patient network that includes at least 5,000 people with Autosomal Dominant Polycystic Kidney Disease (ADPKD) who contribute data on their health and other topics. The ADPKD Patient Registry aims to support important scientific discoveries and...
What is the current status of trial NCT04039061?
This trial is currently recruiting. The enrollment target is 3,000 participants. The study started on 2019-09-04. Estimated completion is 2029-09-04.
What conditions does trial NCT04039061 study?
This clinical trial studies the following conditions: Polycystic Kidney Diseases.
Who is sponsoring clinical trial NCT04039061?
This trial is sponsored by PKD Foundation, which has 1 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT04039061 being conducted?
This trial has 1 study location across Missouri. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
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