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NCT03628235 · ClinicalTrials.gov registry record
HD-Charge: Indirect and Out-of-Pocket Costs of Huntington's Disease in the United States
A clinical trial, sponsored by CHDI Foundation.
- Completed
- Registry status
- 233
- Enrollment target
NCT03628235 is a clinical trial that has completed, run by CHDI Foundation. The registered enrollment target is 233 participants.
The verdict
NCT03628235 has completed, sponsored by CHDI Foundation.
- COMPLETED
- Registry status
- 233 participants
- Enrollment target
Study Summary
Huntington's disease (HD) is a rare, inherited and progressive neurodegenerative disorder for which hallmark symptoms include movement disorders, loss of cognitive faculties and psychiatric disturbances. With the progression of the disease, patients require increasing level of medical care, caregiver support, and long-term care, which lead to substantial burden of illness. Very little data are available on the direct or indirect costs for HD. The direct medical costs of HD in the US have been summarized from retrospective commercial and Medicaid claims data analysis. The indirect and out-of-pocket costs of HD in the US have not been quantified. This study will help to bridge these gaps. This study is a single-assessment, cross-sectional online survey administered to Huntington disease gene expansion carriers (HDGECs) and companions of HDGECs by HD stage to understand the indirect and out-of-pocket costs of Huntington's disease in the US.
Interventions
- BEHAVIORAL Online survey
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 233 participants |
| Start Date | 2020-06-21 |
| Est. Completion | 2022-06-21 |
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Full Details on ClinicalTrials.gov ↗What the Registry Record Tells You About NCT03628235
The ClinicalTrials.gov registry entry for NCT03628235 describes a study currently listed as completed, categorized as an unspecified phase. The registered enrollment target is 233 participants, a figure that helps gauge the scale of data the investigators plan to collect. The listed sponsor is CHDI Foundation, which has 5 total studies on file at ClinicalTrials.gov.
The record links to 0 conditions, and to 1 intervention - of which Online survey is the first listed.
NCT03628235 reports 0 study locations.
Frequently Asked Questions
What is clinical trial NCT03628235 about?
NCT03628235 is a clinical study titled "HD-Charge: Indirect and Out-of-Pocket Costs of Huntington's Disease in the United States". Huntington's disease (HD) is a rare, inherited and progressive neurodegenerative disorder for which hallmark symptoms include movement disorders, loss of cognitive faculties and psychiatric disturbances. With the progression of the disease, patients require increasing level of medical care, caregive...
What is the current status of trial NCT03628235?
This trial is currently completed. The enrollment target is 233 participants. The study started on 2020-06-21. Estimated completion is 2022-06-21.
What interventions are being tested in trial NCT03628235?
The interventions under investigation include: Online survey (BEHAVIORAL).
Who is sponsoring clinical trial NCT03628235?
This trial is sponsored by CHDI Foundation, which has 5 total clinical trials registered on ClinicalTrials.gov.
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