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NCT03354403 · ClinicalTrials.gov registry record
Mothers Experiences With X-linked Retinoschisis Compared to Fathers Experiences
A clinical trial of Retinoschisis and X-Linked, sponsored by National Eye Institute (NEI).
- Completed
- Registry status
- 12
- Enrollment target
- 1
- Study location
NCT03354403: Completed study of Retinoschisis and X-Linked, sponsored by National Eye Institute (NEI).
NCT03354403 is a study of Retinoschisis and X-Linked that has completed, run by National Eye Institute (NEI). The registered enrollment target is 12 participants. The trial reports 1 study location across 1 state. According to ClinicalTrials.gov, the official US trial registry.
The verdict
NCT03354403, a study of Retinoschisis and X-Linked, has completed, sponsored by National Eye Institute (NEI).
- COMPLETED
- Registry status
- 12 participants
- Enrollment target
- 1
- Study location
Study Summary
Background: X-linked retinoschisis (XLRS) is a genetic condition. It usually presents in boys in childhood with vision loss. Genetic conditions affect the people who have it and also their family members. Researchers want to learn if mothers and fathers react differently when a son gets XLRS. They also want to learn how personality impacts the way people react. This will help researchers find better ways to support families living with XLRS. Objective: To learn more about the experiences of mothers of sons with XLRS compared to fathers of sons with XLRS. Also to study personality differences between mothers and fathers. Eligibility: Parents of a biological son of any age with XLRS who is enrolled in protocol 03-EI-0033 Design: Participants will be asked questions in person or by phone. This will last 30 90 minutes. They will be asked about their experience with XLRS and how it has impacted their family. The interview will be recorded. Participants will complete a survey about personality traits. It will be anonymous. It can be completed by mail, email, or fax. It will take about 15 minutes. Participants data may be shared with others, including those not at NIH, if they agree. Their data may be stored. Sponsoring Institution: National Eye Institute
Conditions Studied
Study Locations (1)
Maryland
- National Institutes of Health Clinical Center - Bethesda
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 12 participants |
| Start Date | 2017-12-01 |
| Est. Completion | 2019-10-30 |
What the finished NCT03354403 record still lists
NCT03354403 is an observational study that tracks outcomes without assigning an intervention. The registry caps enrollment at 12 participants, a relatively small participant target.
The record links to 2 conditions, with Retinoschisis appearing as the primary indexed condition, and to 0 interventions.
NCT03354403 reports a single indexed study location in Maryland.
Frequently Asked Questions
What is clinical trial NCT03354403 about?
NCT03354403 is a clinical study titled "Mothers Experiences With X-linked Retinoschisis Compared to Fathers Experiences". Background: X-linked retinoschisis (XLRS) is a genetic condition. It usually presents in boys in childhood with vision loss. Genetic conditions affect the people who have it and also their family members. Researchers want to learn if mothers and fathers react differently when a son gets XLRS. They ...
What is the current status of trial NCT03354403?
This trial is currently completed. The enrollment target is 12 participants. The study started on 2017-12-01. Estimated completion is 2019-10-30.
What conditions does trial NCT03354403 study?
This clinical trial studies the following conditions: Retinoschisis, X-Linked.
Who is sponsoring clinical trial NCT03354403?
This trial is sponsored by National Eye Institute (NEI), which has 221 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT03354403 being conducted?
This trial has 1 study location across Maryland. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
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