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NCT03105492 · ClinicalTrials.gov registry record
Pregnant Women s Views About the Ethics of Prenatal Whole Genome Sequencing
A clinical trial of Pregnant, sponsored by National Human Genome Research Institute (NHGRI).
- Completed
- Registry status
- 553
- Enrollment target
- 1
- Study location
NCT03105492: Completed study of Pregnant, sponsored by National Human Genome Research Institute (NHGRI).
NCT03105492 is a study of Pregnant that has completed, run by National Human Genome Research Institute (NHGRI). The registered enrollment target is 553 participants. The trial reports 1 study location across 1 state. According to ClinicalTrials.gov, the official US trial registry.
The verdict
NCT03105492, a study of Pregnant, has completed, sponsored by National Human Genome Research Institute (NHGRI).
- COMPLETED
- Registry status
- 553 participants
- Enrollment target
- 1
- Study location
Study Summary
Background: Prenatal whole genome sequencing (PWGS) will give expecting parents large amounts of genetic data about their baby. This raises ethical concerns. Researchers want to find out if women want access to the kind of data PWGS provides. They want to know why and under what circumstances women would or would not want the data. Objective: To explore the views of pregnant women about possible use of PWGS. To find out whether they would want different categories of genetic data, and how they would use such findings. Eligibility: Women ages 18 and older who pregnant and speak English or Spanish Design: Participants will be recruited by their doctors. Participants will take a survey about their views of PWGQ. They may take it online or on paper.
Primary Outcome
This study seeks to explore the views of pregnant women about the hypothetical utility of PWGS, whether they would want different categories of genetic information, and how they would anticipate using such findings.
Conditions Studied
Study Locations (1)
Virginia
- INOVA Fairfax Hospital - Falls Church
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 553 participants |
| Start Date | 2017-06-15 |
| Est. Completion | 2019-04-10 |
What the finished NCT03105492 record still lists
NCT03105492 is an observational study that tracks outcomes without assigning an intervention. The registered 553 participants enrollment target is mid-sized for trials with a published cap.
The record links to 1 condition, with Pregnant appearing as the primary indexed condition, and to 0 interventions.
NCT03105492 reports a single indexed study location in Virginia.
Frequently Asked Questions
What is clinical trial NCT03105492 about?
NCT03105492 is a clinical study titled "Pregnant Women s Views About the Ethics of Prenatal Whole Genome Sequencing". Background: Prenatal whole genome sequencing (PWGS) will give expecting parents large amounts of genetic data about their baby. This raises ethical concerns. Researchers want to find out if women want access to the kind of data PWGS provides. They want to know why and under what circumstances women...
What is the current status of trial NCT03105492?
This trial is currently completed. The enrollment target is 553 participants. The study started on 2017-06-15. Estimated completion is 2019-04-10.
What conditions does trial NCT03105492 study?
This clinical trial studies the following conditions: Pregnant.
Who is sponsoring clinical trial NCT03105492?
This trial is sponsored by National Human Genome Research Institute (NHGRI), which has 185 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT03105492 being conducted?
This trial has 1 study location across Virginia. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
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