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NCT01885767 · ClinicalTrials.gov registry record
Neurofibromatosis (NF) Registry Portal
A clinical trial of Neurofibromatosis 1 and Neurofibromatosis 2, sponsored by The Children's Tumor Foundation.
- Recruiting
- Registry status
- 20,000
- Enrollment target
- 1
- Study location
NCT01885767 is a study of Neurofibromatosis 1 and Neurofibromatosis 2 that is actively recruiting participants, run by The Children's Tumor Foundation. The registered enrollment target is 20,000 participants, above the 202-participant average among 24 other Neurofibromatosis 1 trials with a reported enrollment target (9801% higher). The trial reports 1 study location across 1 state.
The verdict
NCT01885767, a study of Neurofibromatosis 1 and Neurofibromatosis 2, is actively recruiting participants, sponsored by The Children's Tumor Foundation.
- RECRUITING
- Registry status
- 20,000 participants
- Enrollment target
- 1
- Study location
Study Summary
The NF Registry is a database of patient-reported symptoms, treatments, and experiences with their neurofibromatosis disease. It is a contact registry to relay clinical trial opportunities to targeted patient subgroups, and to supply de-identified disease data to researchers. It has the potential to become a natural history resource.
Conditions Studied
Study Locations (1)
New York
- Children's Tumor Fundation - New York
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 20,000 participants |
| Start Date | 2012-06 |
| Est. Completion | 2050-06 |
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Full Details on ClinicalTrials.gov ↗What the Registry Record Tells You About NCT01885767
The ClinicalTrials.gov registry entry for NCT01885767 describes a study currently listed as recruiting, categorized as an unspecified phase. The registered enrollment target is 20,000 participants, a figure that helps gauge the scale of data the investigators plan to collect, above the 202-participant average among 24 other Neurofibromatosis 1 trials with a reported enrollment target (9801% higher). The listed sponsor is The Children's Tumor Foundation, which has 1 total studies on file at ClinicalTrials.gov.
The record links to 3 conditions, with Neurofibromatosis 1 appearing as the primary indexed condition, and to 0 interventions.
NCT01885767 reports 1 study location spanning 1 distinct geographic area - top geographies include New York.
Frequently Asked Questions
What is clinical trial NCT01885767 about?
NCT01885767 is a clinical study titled "Neurofibromatosis (NF) Registry Portal". The NF Registry is a database of patient-reported symptoms, treatments, and experiences with their neurofibromatosis disease. It is a contact registry to relay clinical trial opportunities to targeted patient subgroups, and to supply de-identified disease data to researchers. It has the potential to...
What is the current status of trial NCT01885767?
This trial is currently recruiting. The enrollment target is 20,000 participants. The study started on 2012-06. Estimated completion is 2050-06.
What conditions does trial NCT01885767 study?
This clinical trial studies the following conditions: Neurofibromatosis 1, Neurofibromatosis 2, Schwannomatosis.
Who is sponsoring clinical trial NCT01885767?
This trial is sponsored by The Children's Tumor Foundation, which has 1 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT01885767 being conducted?
This trial has 1 study location across New York. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
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