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NCT01885767 · ClinicalTrials.gov registry record
Neurofibromatosis (NF) Registry Portal
A clinical trial of Neurofibromatosis 1 and Neurofibromatosis 2, sponsored by The Children's Tumor Foundation.
- Recruiting
- Registry status
- 20,000
- Enrollment target
- 1
- Study location
NCT01885767: Recruiting study of Neurofibromatosis 1 and Neurofibromatosis 2, sponsored by The Children's Tumor Foundation.
NCT01885767 is a study of Neurofibromatosis 1 and Neurofibromatosis 2 that is actively recruiting participants, run by The Children's Tumor Foundation. The registered enrollment target is 20,000 participants, above the 202-participant average among 24 other Neurofibromatosis 1 trials with a reported enrollment target (9801% higher). The trial reports 1 study location across 1 state. According to ClinicalTrials.gov, the official US trial registry.
The verdict
NCT01885767, a study of Neurofibromatosis 1 and Neurofibromatosis 2, is actively recruiting participants, sponsored by The Children's Tumor Foundation.
- RECRUITING
- Registry status
- 20,000 participants
- Enrollment target
- 1
- Study location
Study Summary
The NF Registry is a database of patient-reported symptoms, treatments, and experiences with their neurofibromatosis disease. It is a contact registry to relay clinical trial opportunities to targeted patient subgroups, and to supply de-identified disease data to researchers. It has the potential to become a natural history resource.
Primary Outcome
patients will input medical information and treatment information about their NF and update at least yearly in an ongoing natural history study
Conditions Studied
Study Locations (1)
New York
- Children's Tumor Fundation - New York
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 20,000 participants |
| Start Date | 2012-06 |
| Est. Completion | 2050-06 |
What NCT01885767 shows while recruiting
NCT01885767 is an observational study that tracks outcomes without assigning an intervention. Its 20,000 participants enrollment target places it among the larger protocols in the corpus, above the 202-participant average among 24 other Neurofibromatosis 1 trials with a reported enrollment target (9801% higher).
The record links to 3 conditions, with Neurofibromatosis 1 appearing as the primary indexed condition, and to 0 interventions.
NCT01885767 reports a single indexed study location in New York.
Frequently Asked Questions
What is clinical trial NCT01885767 about?
NCT01885767 is a clinical study titled "Neurofibromatosis (NF) Registry Portal". The NF Registry is a database of patient-reported symptoms, treatments, and experiences with their neurofibromatosis disease. It is a contact registry to relay clinical trial opportunities to targeted patient subgroups, and to supply de-identified disease data to researchers. It has the potential to...
What is the current status of trial NCT01885767?
This trial is currently recruiting. The enrollment target is 20,000 participants. The study started on 2012-06. Estimated completion is 2050-06.
What conditions does trial NCT01885767 study?
This clinical trial studies the following conditions: Neurofibromatosis 1, Neurofibromatosis 2, Schwannomatosis.
Who is sponsoring clinical trial NCT01885767?
This trial is sponsored by The Children's Tumor Foundation, which has 1 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT01885767 being conducted?
This trial has 1 study location across New York. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
Learn More About Clinical Trials
Similar trials for Neurofibromatosis 1
Matched on the same primary condition, ranked to surface studies in the same phase first, then by recruiting status, no relevance scoring or editorial curation.
Where NCT01885767's enrollment target sits among peer trials
20,000 1st of 24 higher than 24 of 24 other Neurofibromatosis 1 trials
participants (enrollment target), bucketed by value
Each bar is a band; taller bars hold more other Neurofibromatosis 1 trials. The dashed line + filled bar mark this entry. Hover or tap any bar for its full count and share, and where it sits relative to this entry.
Source ClinicalTrials.gov registry export · 2026-08-08
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