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NCT01873924 · ClinicalTrials.gov registry record
Clinical and Neuropsychological Investigations in Batten Disease
A clinical trial of Batten Disease and Neuronal Ceroid Lipofuscinosis, sponsored by University of Rochester.
- Recruiting
- Registry status
- 500
- Enrollment target
- 1
- Study location
NCT01873924 is a study of Batten Disease and Neuronal Ceroid Lipofuscinosis that is actively recruiting participants, run by University of Rochester. The registered enrollment target is 500 participants, below the 2,784-participant average among 11 other Batten Disease trials with a reported enrollment target (82% lower). The trial reports 1 study location across 1 state.
The verdict
NCT01873924, a study of Batten Disease and Neuronal Ceroid Lipofuscinosis, is actively recruiting participants, sponsored by University of Rochester.
- RECRUITING
- Registry status
- 500 participants
- Enrollment target
- 1
- Study location
Study Summary
This study aims to assess the natural history of Batten disease (Neuronal Ceroid Lipofuscinosis) by obtaining information about the motor, behavioral, and functional capabilities of individuals with Batten disease. This study will also refine and validate the Unified Batten Disease Rating Scale (UBDRS) as a clinical rating instrument for Batten disease.
Conditions Studied
Study Locations (1)
New York
- University of Rochester - Rochester
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 500 participants |
| Start Date | 2004-08 |
| Est. Completion | 2035-08 |
Interested in This Trial?
Full Details on ClinicalTrials.gov ↗What the Registry Record Tells You About NCT01873924
The ClinicalTrials.gov registry entry for NCT01873924 describes a study currently listed as recruiting, categorized as an unspecified phase. The registered enrollment target is 500 participants, a figure that helps gauge the scale of data the investigators plan to collect, below the 2,784-participant average among 11 other Batten Disease trials with a reported enrollment target (82% lower). The listed sponsor is University of Rochester, which has 636 total studies on file at ClinicalTrials.gov.
The record links to 10 conditions, with Batten Disease appearing as the primary indexed condition, and to 0 interventions.
NCT01873924 reports 1 study location spanning 1 distinct geographic area - top geographies include New York.
Frequently Asked Questions
What is clinical trial NCT01873924 about?
NCT01873924 is a clinical study titled "Clinical and Neuropsychological Investigations in Batten Disease". This study aims to assess the natural history of Batten disease (Neuronal Ceroid Lipofuscinosis) by obtaining information about the motor, behavioral, and functional capabilities of individuals with Batten disease. This study will also refine and validate the Unified Batten Disease Rating Scale (UBD...
What is the current status of trial NCT01873924?
This trial is currently recruiting. The enrollment target is 500 participants. The study started on 2004-08. Estimated completion is 2035-08.
What conditions does trial NCT01873924 study?
This clinical trial studies the following conditions: Batten Disease, Neuronal Ceroid Lipofuscinosis, Neuronal Ceroid Lipofuscinosis CLN5, Neuronal Ceroid Lipofuscinosis CLN1, Neuronal Ceroid Lipofuscinosis CLN2.
Who is sponsoring clinical trial NCT01873924?
This trial is sponsored by University of Rochester, which has 636 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT01873924 being conducted?
This trial has 1 study location across New York. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
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Related
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