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NCT01738386 · ClinicalTrials.gov registry record
Living With Frontotemporal Dementia
A clinical trial, sponsored by National Human Genome Research Institute (NHGRI).
- Terminated
- Registry status
- 16
- Enrollment target
NCT01738386 is a clinical trial that was terminated before completion, run by National Human Genome Research Institute (NHGRI). The registered enrollment target is 16 participants.
The verdict
NCT01738386 was terminated before completion, sponsored by National Human Genome Research Institute (NHGRI).
- TERMINATED
- Registry status
- 16 participants
- Enrollment target
Study Summary
Background: \- Frontotemporal dementia (FTD) is the second most common cause of early-onset dementia. Alzheimer s disease is the most common. Alzheimer s disease happens most often in the elderly, but FTD typically appears between 40 and 60 years of age. It also has a strong genetic component: Up to 40% of FTD cases are linked to positive family histories. Earlier diagnoses and genetic tests mean that people with FTD will spend more years in earlier stages of disease, aware that they have it. However, few studies have looked at the personal experiences or coping styles of people with FTD. Researchers want to interview people with FTD and their caregivers to understand their experiences with the disease. This information will help create better treatments and therapies for those affected by FTD. Objectives: \- To study the experiences of persons with FTD and their primary caregivers. Eligibility: * Individuals at least 18 years of age who have been diagnosed with FTD. * Primary caregivers (spouse or partner at least 18 years of age) of individuals who have been diagnosed with FTD. Design: * Before FTD participants are recruited, a pilot study will test the interview questions. This pilot study will be given to people with Alzheimer s disease and their caregivers. It will study how well people with dementia understand the interview questions. * FTD study participants will be recruited through dementia care centers. * All participants will have in-person interviews. These interviews will take up to 1 hour. * Participants with FTD will answer questions about their experience with the disease. They will talk about their mental abilities, challenges, and coping strategies. * Caregivers will answer questions about their experience in caring for someone with FTD. They will talk about their challenges and coping strategies. They will also talk about the person with FTD, and how aware they believe that the person is of the dementia symptoms. * All participants will rec
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 16 participants |
| Start Date | 2012-06-13 |
| Est. Completion | 2016-02-24 |
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Full Details on ClinicalTrials.gov ↗What the Registry Record Tells You About NCT01738386
The ClinicalTrials.gov registry entry for NCT01738386 describes a study currently listed as terminated, categorized as an unspecified phase. The registered enrollment target is 16 participants, a figure that helps gauge the scale of data the investigators plan to collect. The listed sponsor is National Human Genome Research Institute (NHGRI), which has 185 total studies on file at ClinicalTrials.gov.
The record links to 0 conditions, and to 0 interventions.
NCT01738386 reports 0 study locations.
Frequently Asked Questions
What is clinical trial NCT01738386 about?
NCT01738386 is a clinical study titled "Living With Frontotemporal Dementia". Background: \- Frontotemporal dementia (FTD) is the second most common cause of early-onset dementia. Alzheimer s disease is the most common. Alzheimer s disease happens most often in the elderly, but FTD typically appears between 40 and 60 years of age. It also has a strong genetic component: Up t...
What is the current status of trial NCT01738386?
This trial is currently terminated. The enrollment target is 16 participants. The study started on 2012-06-13. Estimated completion is 2016-02-24.
Who is sponsoring clinical trial NCT01738386?
This trial is sponsored by National Human Genome Research Institute (NHGRI), which has 185 total clinical trials registered on ClinicalTrials.gov.
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