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NCT00684879 · ClinicalTrials.gov registry record
Screening Behavior in Adults With Hereditary Hemorrhagic Telangiectasia
A clinical trial, sponsored by National Human Genome Research Institute (NHGRI).
- Completed
- Registry status
- 320
- Enrollment target
NCT00684879: Completed study, sponsored by National Human Genome Research Institute (NHGRI).
NCT00684879 is a clinical trial that has completed, run by National Human Genome Research Institute (NHGRI). The registered enrollment target is 320 participants. According to ClinicalTrials.gov, the official US trial registry.
The verdict
NCT00684879 has completed, sponsored by National Human Genome Research Institute (NHGRI).
- COMPLETED
- Registry status
- 320 participants
- Enrollment target
Study Summary
This study will explore the factors that influence screening behaviors of adults diagnosed with hereditary hemorrhagic telangiectasia (HHT), an inherited condition in which blood vessel defects called arteriovenous malformations (AVMs) result in direct connections between arteries and veins. Patients most commonly have small AVMs called telangiectases on the tongue, face, hands, mouth, and throat and the mucosal linings of the nose and gastrointestinal tract. Recurrent nosebleeds are a hallmark of the disease. Large AVMs can also occur in various organs, causing sudden and life-threatening complications. The study will examine how patients think and feel about their condition and what actions they take to screen for internal symptoms of the disease. Men and women 18 years of age and older who have HHT may be eligible for this study. Participants fill out a 30-minute questionnaire, available in print or online, that includes questions about the participant s * beliefs about HHT * actions taken to screen for internal symptoms of HHT * experience with HHT * current health status, family history and demographic information
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 320 participants |
| Start Date | 2008-05-21 |
| Est. Completion | 2016-01-07 |
What the finished NCT00684879 record still lists
NCT00684879 is an observational study that tracks outcomes without assigning an intervention. The registered 320 participants enrollment target is mid-sized for trials with a published cap.
The record links to 0 conditions, and to 0 interventions.
NCT00684879 does not publish any study locations in the registry export this page uses.
Frequently Asked Questions
What is clinical trial NCT00684879 about?
NCT00684879 is a clinical study titled "Screening Behavior in Adults With Hereditary Hemorrhagic Telangiectasia". This study will explore the factors that influence screening behaviors of adults diagnosed with hereditary hemorrhagic telangiectasia (HHT), an inherited condition in which blood vessel defects called arteriovenous malformations (AVMs) result in direct connections between arteries and veins. Patient...
What is the current status of trial NCT00684879?
This trial is currently completed. The enrollment target is 320 participants. The study started on 2008-05-21. Estimated completion is 2016-01-07.
Who is sponsoring clinical trial NCT00684879?
This trial is sponsored by National Human Genome Research Institute (NHGRI), which has 185 total clinical trials registered on ClinicalTrials.gov.
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