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NCT00410670 · ClinicalTrials.gov registry record

Chordoma Family Study

A clinical trial of Chordoma, sponsored by National Cancer Institute (NCI).

Completed
Registry status
55
Enrollment target
1
Study location

NCT00410670: Completed study of Chordoma, sponsored by National Cancer Institute (NCI).

NCT00410670 is a study of Chordoma that has completed, run by National Cancer Institute (NCI). The registered enrollment target is 55 participants, below the 83-participant average among 15 other Chordoma trials with a reported enrollment target (34% lower). The trial reports 1 study location across 1 state. According to ClinicalTrials.gov, the official US trial registry.

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The verdict

NCT00410670, a study of Chordoma, has completed, sponsored by National Cancer Institute (NCI).

COMPLETED
Registry status
55 participants
Enrollment target
1
Study location

Study Summary

This pilot study, conducted by the National Cancer Institute and the Massachusetts General Hospital, will investigate genetic factors that contribute to the development of chordoma in people from some families. Chordoma is a very rare, potentially fatal, slow-growing bone tumor derived from remnants of embryonic material. This study will determine the feasibility of conducting a larger study aimed at identifying new families with multiple members affected by chordoma to study the genetic basis of the disease. English-speaking persons diagnosed with chordoma when they were 18 years of age or younger and who were treated at the Massachusetts General Hospital Department of Radiation Oncology between 1988 and the end of the study period may be eligible for this protocol. The age range of these patients is currently from about 5 months to 33 years. Patients (or parents of minor patients) will be mailed a packet with instructions for completing the following procedures at home: * Provide permission for researchers to obtain medical records relating to the patient's chordoma and any other serious medical conditions he or she has had, and to obtain a piece of the patient's stored tumor tissue. * Complete a questionnaire about the patient's close blood relatives, including parents, brothers, sisters, and any more distant relatives who have had chordoma or a cancer or tumor which started in the brain or spine. The questionnaire will also include demographic information, such as education, marital status, ethnicity, religion, and household income. * Collect two samples of cheek cells (only from patients 6 years and older). Patients' packets include instructions and materials for collecting the cells. Parents of children 6 to 9 years old will collect cells from the child's mouth using a sterile soft-bristled brush contained in a tube. They will brush the inside of the child's cheek with the brush for about 30 seconds and then place the brush back in the tube. They will repea

Conditions Studied

Study Locations (1)

Massachusetts

  • Massachusetts General Hospital - Boston

Trial Details

FieldValue
Enrollment Target 55 participants
Start Date 2003-08-01
Est. Completion 2017-12-29
National Cancer Institute (NCI)

3,257 total trials

What the finished NCT00410670 record still lists

NCT00410670 is an observational study that tracks outcomes without assigning an intervention. The registry caps enrollment at 55 participants, a relatively small participant target, below the 83-participant average among 15 other Chordoma trials with a reported enrollment target (34% lower).

The record links to 1 condition, with Chordoma appearing as the primary indexed condition, and to 0 interventions.

NCT00410670 reports a single indexed study location in Massachusetts.

Frequently Asked Questions

What is clinical trial NCT00410670 about?

NCT00410670 is a clinical study titled "Chordoma Family Study". This pilot study, conducted by the National Cancer Institute and the Massachusetts General Hospital, will investigate genetic factors that contribute to the development of chordoma in people from some families. Chordoma is a very rare, potentially fatal, slow-growing bone tumor derived from remnants...

What is the current status of trial NCT00410670?

This trial is currently completed. The enrollment target is 55 participants. The study started on 2003-08-01. Estimated completion is 2017-12-29.

What conditions does trial NCT00410670 study?

This clinical trial studies the following conditions: Chordoma.

Who is sponsoring clinical trial NCT00410670?

This trial is sponsored by National Cancer Institute (NCI), which has 3,257 total clinical trials registered on ClinicalTrials.gov.

Where is trial NCT00410670 being conducted?

This trial has 1 study location across Massachusetts. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.

Similar trials for Chordoma

Matched on the same primary condition, ranked to surface studies in the same phase first, then by recruiting status, no relevance scoring or editorial curation.

Where NCT00410670's enrollment target sits among peer trials

55 5th of 15 higher than 11 of 15 other Chordoma trials

participants (enrollment target), bucketed by value

Each bar is a band; taller bars hold more other Chordoma trials. The dashed line + filled bar mark this entry. Hover or tap any bar for its full count and share, and where it sits relative to this entry.

Source ClinicalTrials.gov registry export · 2026-08-08

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Source: ClinicalTrials.gov NCT00410670, the US trial registry maintained by the National Library of Medicine. NCT00410670 (small enrollment · single site footprint · completed) retrieved and formatted by PlainTrial, see methodology.