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NCT00341718 · ClinicalTrials.gov registry record
Experiences of Genetics Patients With Visible Abnormalities Who Facilitate Teaching in Genetics Clinics
A clinical trial, sponsored by National Human Genome Research Institute (NHGRI).
- Completed
- Registry status
- 30
- Enrollment target
NCT00341718 is a clinical trial that has completed, run by National Human Genome Research Institute (NHGRI). The registered enrollment target is 30 participants.
The verdict
NCT00341718 has completed, sponsored by National Human Genome Research Institute (NHGRI).
- COMPLETED
- Registry status
- 30 participants
- Enrollment target
Study Summary
This study will describe the experience of patients with visible physical abnormalities in the genetics clinic when they are involved in teaching others about their condition. Information from this study may be used to enhance educational experiences in genetics clinics. Patients 18 years of age and older with a visible physical anomaly who have been seen by a genetics professional in the past 5 years may be eligible for this study. In a tape-recorded telephone interview, patients are asked about the following: * Their experiences when visiting the genetics clinic * The circumstances under which they have been approached to participate in teaching others * Their perspective on specific teaching behaviors used in genetic consultations, and how this perspective is affected by their perception of their own visible difference * The benefits and downsides of being involved in teaching others * The circumstances under which they feel comfortable being approached by genetics providers to help teach others about their condition * The conditions or circumstances that make some individual teaching experiences better or worse than others
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 30 participants |
| Start Date | 2006-03-29 |
| Est. Completion | 2007-03-31 |
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Full Details on ClinicalTrials.gov ↗What the Registry Record Tells You About NCT00341718
The ClinicalTrials.gov registry entry for NCT00341718 describes a study currently listed as completed, categorized as an unspecified phase. The registered enrollment target is 30 participants, a figure that helps gauge the scale of data the investigators plan to collect. The listed sponsor is National Human Genome Research Institute (NHGRI), which has 185 total studies on file at ClinicalTrials.gov.
The record links to 0 conditions, and to 0 interventions.
NCT00341718 reports 0 study locations.
Frequently Asked Questions
What is clinical trial NCT00341718 about?
NCT00341718 is a clinical study titled "Experiences of Genetics Patients With Visible Abnormalities Who Facilitate Teaching in Genetics Clinics". This study will describe the experience of patients with visible physical abnormalities in the genetics clinic when they are involved in teaching others about their condition. Information from this study may be used to enhance educational experiences in genetics clinics. Patients 18 years of age an...
What is the current status of trial NCT00341718?
This trial is currently completed. The enrollment target is 30 participants. The study started on 2006-03-29. Estimated completion is 2007-03-31.
Who is sponsoring clinical trial NCT00341718?
This trial is sponsored by National Human Genome Research Institute (NHGRI), which has 185 total clinical trials registered on ClinicalTrials.gov.
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