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NCT00106015 · ClinicalTrials.gov registry record

Diamond Blackfan Anemia Registry (DBAR)

A clinical trial of Anemia and Blood Disease, sponsored by Northwell Health.

Recruiting
Registry status
900
Enrollment target
1
Study location

NCT00106015: Recruiting study of Anemia and Blood Disease, sponsored by Northwell Health.

NCT00106015 is a study of Anemia and Blood Disease that is actively recruiting participants, run by Northwell Health. The registered enrollment target is 900 participants, above the 415-participant average among 72 other Anemia trials with a reported enrollment target (117% higher). The trial reports 1 study location across 1 state. According to ClinicalTrials.gov, the official US trial registry.

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The verdict

NCT00106015, a study of Anemia and Blood Disease, is actively recruiting participants, sponsored by Northwell Health.

RECRUITING
Registry status
900 participants
Enrollment target
1
Study location

Study Summary

The purpose of this study is to maintain a comprehensive registry of patients with the rare inherited bone marrow failure syndrome Diamond Blackfan anemia (DBA).

Primary Outcome

Epidemiology

Conditions Studied

Study Locations (1)

New York

  • Cohen Children's Medical Center of NY - New Hyde Park

Trial Details

FieldValue
Enrollment Target 900 participants
Start Date 2004-09
Est. Completion 2026-04
Northwell Health

370 total trials

What NCT00106015 shows while recruiting

NCT00106015 is an observational study that tracks outcomes without assigning an intervention. The registered 900 participants enrollment target is mid-sized for trials with a published cap, above the 415-participant average among 72 other Anemia trials with a reported enrollment target (117% higher).

The record links to 2 conditions, with Anemia appearing as the primary indexed condition, and to 0 interventions.

NCT00106015 reports a single indexed study location in New York.

Frequently Asked Questions

What is clinical trial NCT00106015 about?

NCT00106015 is a clinical study titled "Diamond Blackfan Anemia Registry (DBAR)". The purpose of this study is to maintain a comprehensive registry of patients with the rare inherited bone marrow failure syndrome Diamond Blackfan anemia (DBA).

What is the current status of trial NCT00106015?

This trial is currently recruiting. The enrollment target is 900 participants. The study started on 2004-09. Estimated completion is 2026-04.

What conditions does trial NCT00106015 study?

This clinical trial studies the following conditions: Anemia, Blood Disease.

Who is sponsoring clinical trial NCT00106015?

This trial is sponsored by Northwell Health, which has 370 total clinical trials registered on ClinicalTrials.gov.

Where is trial NCT00106015 being conducted?

This trial has 1 study location across New York. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.

Similar trials for Anemia

Matched on the same primary condition, ranked to surface studies in the same phase first, then by recruiting status, no relevance scoring or editorial curation.

Where NCT00106015's enrollment target sits among peer trials

900 9th of 72 higher than 64 of 72 other Anemia trials

participants (enrollment target), bucketed by value

Each bar is a band; taller bars hold more other Anemia trials. The dashed line + filled bar mark this entry. Hover or tap any bar for its full count and share, and where it sits relative to this entry.

Source ClinicalTrials.gov registry export · 2026-08-08

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Source: ClinicalTrials.gov NCT00106015, the US trial registry maintained by the National Library of Medicine. NCT00106015 (mid enrollment · single site footprint · recruiting) retrieved and formatted by PlainTrial, see methodology.